Family Caregivers’ Experiences of Caring for Children With Cerebral Palsy in China: A Qualitative Descriptive Study

This study aimed to investigate family caregivers’ experiences of caring for children with cerebral palsy in China. This study used a descriptive qualitative design. We selected 18 family caregivers from 3 children’s hospitals in Jiangsu Province, China, using a purposive sampling method. The follow...

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Detalles Bibliográficos
Autores principales: Ni, Zhi Hong, Ding, Sheng, Wu, Jin Hua, Zhang, Shuo, Liu, Chun Yan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2022
Materias:
Original Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9449510/
https://www.ncbi.nlm.nih.gov/pubmed/36062607
http://dx.doi.org/10.1177/00469580221121510
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author Ni, Zhi Hong
Ding, Sheng
Wu, Jin Hua
Zhang, Shuo
Liu, Chun Yan
author_facet Ni, Zhi Hong
Ding, Sheng
Wu, Jin Hua
Zhang, Shuo
Liu, Chun Yan
author_sort Ni, Zhi Hong
collection PubMed
description This study aimed to investigate family caregivers’ experiences of caring for children with cerebral palsy in China. This study used a descriptive qualitative design. We selected 18 family caregivers from 3 children’s hospitals in Jiangsu Province, China, using a purposive sampling method. The following 5 themes emerged as needs of family caregivers’ experiences of caring for children with cerebral palsy: overall responsibility, being alone, exhaustion from caring, being a prisoner of life, and uncertainty regarding the future. The findings of our research contribute to a better understanding of the life situation of family caregivers of children with cerebral palsy as we identify the difficulties they experience as well as their specific needs.
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spelling pubmed-94495102022-09-08 Family Caregivers’ Experiences of Caring for Children With Cerebral Palsy in China: A Qualitative Descriptive Study Ni, Zhi Hong Ding, Sheng Wu, Jin Hua Zhang, Shuo Liu, Chun Yan Inquiry Original Research This study aimed to investigate family caregivers’ experiences of caring for children with cerebral palsy in China. This study used a descriptive qualitative design. We selected 18 family caregivers from 3 children’s hospitals in Jiangsu Province, China, using a purposive sampling method. The following 5 themes emerged as needs of family caregivers’ experiences of caring for children with cerebral palsy: overall responsibility, being alone, exhaustion from caring, being a prisoner of life, and uncertainty regarding the future. The findings of our research contribute to a better understanding of the life situation of family caregivers of children with cerebral palsy as we identify the difficulties they experience as well as their specific needs. SAGE Publications 2022-09-05 /pmc/articles/PMC9449510/ /pubmed/36062607 http://dx.doi.org/10.1177/00469580221121510 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Original Research
Ni, Zhi Hong
Ding, Sheng
Wu, Jin Hua
Zhang, Shuo
Liu, Chun Yan
Family Caregivers’ Experiences of Caring for Children With Cerebral Palsy in China: A Qualitative Descriptive Study
title Family Caregivers’ Experiences of Caring for Children With Cerebral Palsy in China: A Qualitative Descriptive Study
title_full Family Caregivers’ Experiences of Caring for Children With Cerebral Palsy in China: A Qualitative Descriptive Study
title_fullStr Family Caregivers’ Experiences of Caring for Children With Cerebral Palsy in China: A Qualitative Descriptive Study
title_full_unstemmed Family Caregivers’ Experiences of Caring for Children With Cerebral Palsy in China: A Qualitative Descriptive Study
title_short Family Caregivers’ Experiences of Caring for Children With Cerebral Palsy in China: A Qualitative Descriptive Study
title_sort family caregivers’ experiences of caring for children with cerebral palsy in china: a qualitative descriptive study
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9449510/
https://www.ncbi.nlm.nih.gov/pubmed/36062607
http://dx.doi.org/10.1177/00469580221121510
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