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Fibrodysplasia ossificans progressiva in Brazil: challenges and strategies to create assistance and educational networks
Fibrodysplasia ossificans progressiva (FOP) is an ultrarare condition and one of the most impactful disorders associated with progressive heterotopic ossification events. It is estimated that there are 120–150 patients in Brazil; however, currently, fewer than 100 patients have been identified, and...
Autores principales: | Zorzi, Alessandro Rozim, Delai, Patricia R., Rosa, Henrique L. C., Brito, Wander E., Montalli, Victor A. M., Napimoga, Juliana C., Napimoga, Marcelo H., Nociti, Francisco H. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9450346/ https://www.ncbi.nlm.nih.gov/pubmed/36071499 http://dx.doi.org/10.1186/s13023-022-02503-6 |
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