Cargando…

Health-related quality of life in hemoglobinopathies: A systematic review from a global perspective

BACKGROUND: Sickle cell disease (SCD) and thalassemia are inherited blood disorders, which can lead to life-threatening events and chronic organ damage. Recent advances in treatments have increased life expectancy, and hemoglobinopathies have become chronic illnesses with social and emotional impair...

Descripción completa

Detalles Bibliográficos
Autores principales:	Rodigari, Francesca, Brugnera, Giorgia, Colombatti, Raffaella
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Frontiers Media S.A. 2022
Materias:	Pediatrics
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9452907/ https://www.ncbi.nlm.nih.gov/pubmed/36090573 http://dx.doi.org/10.3389/fped.2022.886674

Ejemplares similares

How to Facilitate Decision-Making for Hematopoietic Stem Cell Transplantation in Patients With Hemoglobinopathies. The Perspectives of Healthcare Professionals
por: Mekelenkamp, Hilda, et al.
Publicado: (2021)

Health-Related Quality of Life in Italian Adolescents During Covid-19 Outbreak
por: Mastorci, Francesca, et al.
Publicado: (2021)

The blood count as a compass to navigate in the ever-changing landscape of the carrier state of hemoglobinopathies: a single-center Italian experience
por: Marchesani, Silvio, et al.
Publicado: (2023)

Health-Related Quality of Life in Children With Kaposiform Hemangioendothelioma
por: Dai, Shiyi, et al.
Publicado: (2022)

Health-Related Quality of Life in Pediatric Inflammatory Bowel Disease Patients: A Narrative Review
por: Ahmed, Saad, et al.
Publicado: (2022)

Improvement in Health-Related Quality of Life After Community Acquired Pediatric Septic Shock
por: Pinto, Neethi P., et al.
Publicado: (2021)

Health-Related Physical Fitness and Quality of Life in Children and Adolescents With Isolated Left-to-Right Shunt
por: Fuertes Moure, Angeles, et al.
Publicado: (2019)

A review of health—related quality of life issues in children suffering from certain key otolaryngological illnesses
por: Chmielik, Lechosław Paweł, et al.
Publicado: (2023)

Health Measurement Model—Bringing a Life Course Perspective to Health Measurement: The PRISM Model
por: Hirschfeld, Steven, et al.
Publicado: (2021)

Hematological characteristics and hepatobiliary complications of hereditary spherocytosis in a tertiary care pediatric center: optimizing diagnosis and care through local and international networks
por: Boaro, Maria Paola, et al.
Publicado: (2023)

Surgery-Related Quality of Life of Pediatric Patients With Crohn's Disease
por: Dipasquale, Valeria, et al.
Publicado: (2020)

Impaired Health-Related Quality of Life in Adolescent Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Impact of Core Symptoms
por: Roma, Maria, et al.
Publicado: (2019)

Neonates in the Intensive Care Unit: Maternal Health-Related Quality of Life and Depression After Term and Preterm Births
por: Mautner, Eva, et al.
Publicado: (2022)

Language and health-related quality of life outcomes of children early-detected with unilateral and mild bilateral hearing loss
por: Carew, Peter, et al.
Publicado: (2023)

Updates in Hemoglobinopathies
por: Al-Tonbary, Youssef, et al.
Publicado: (2013)

Distribution of HbS Allele and Haplotypes in a Multi-Ethnic Population of Guinea Bissau, West Africa: Implications for Public Health Screening
por: Martella, Maddalena, et al.
Publicado: (2022)

HCV Infection in Thalassemia Syndromes and Hemoglobinopathies: New Perspectives
por: Maffei, Laura, et al.
Publicado: (2020)

Pain and quality of life in youth with inflammatory bowel disease: the role of parent and youth perspectives on family functioning
por: Caes, Line, et al.
Publicado: (2019)

Health-Related Quality of Life Among HIV-Infected Children and Its Association With Socio-Demographic, Clinical and Nutritional Variables: A Comparative Approach
por: Ogbonna-Nwosu, Chinyere G, et al.
Publicado: (2022)

Minimal Associations Between Clinical Data and Children's Self-Reported Health-Related Quality of Life in Children With Chronic Conditions—A Cross-Sectional Study
por: Fischer, Kathrin I., et al.
Publicado: (2019)

Differences in quality-of-life dimensions of Adult Strabismus Quality of Life and Amblyopia & Strabismus Questionnaires
por: van de Graaf, Elizabeth S., et al.
Publicado: (2017)

Gene Therapy for Hemoglobinopathies
por: Cavazzana, Marina, et al.
Publicado: (2018)

Gene Therapy of the Hemoglobinopathies
por: Kunz, Joachim B., et al.
Publicado: (2020)

Hemoglobinopathy and COVID-19
por: Mungmunpuntipantip, Rujittika, et al.
Publicado: (2021)

Rare Combinational Hemoglobinopathies
por: Husan, Ammar, et al.
Publicado: (2022)

Screening and diagnosis of hemoglobinopathies in Germany: Current state and future perspectives
por: Aramayo-Singelmann, Carmen, et al.
Publicado: (2022)

Health Problems in Individuals With PWS Are Associated With Lower Quality of Life for Their Parents: A Snapshot in the Brazilian Population
por: Amaro, Alexandre Slowetzky, et al.
Publicado: (2022)

Health-Related Quality of Life in Cushing Disease: Discrepancy Between Parent and Child Reports
por: Keil, Margaret F, et al.
Publicado: (2021)

Cystic Dysplasia of the Rete Testis: Case Report and Systematic Review of the Literature
por: Contini, Giorgia, et al.
Publicado: (2022)

Perceived Outcomes, Parental Satisfaction, and Oral Health-Related Quality of Life After Full Mouth Rehabilitation Under General Anesthesia for Early Childhood Caries
por: Mathew, Mebin George, et al.
Publicado: (2023)

Disease burden and quality of life in children with sickle cell disease in Italy: time to be considered a priority
por: Colombatti, Raffaella, et al.
Publicado: (2021)

Trajectories of Health-Related Quality of Life and HbA1c Values of Children and Adolescents With Diabetes Mellitus Type 1 Over 6 Months: A Longitudinal Observational Study
por: Fischer, Kathrin I., et al.
Publicado: (2020)

Effects of physical activity on lung function and quality of life in asthmatic children: An updated systematic review and meta-analysis
por: Jing, Zenghui, et al.
Publicado: (2023)

Effects of Anakinra on Health-Related Quality of Life in a Patient with 1129G>A/928G>A Mutations in MVK Gene and Heterozygosity for the Mutation 2107C>A in CIAS1 Gene
por: Laccetta, Gianluigi, et al.
Publicado: (2017)

The Global Prevalence of Amblyopia in Children: A Systematic Review and Meta-Analysis
por: Hu, Budan, et al.
Publicado: (2022)

Global Health Determinants Perceived and Expressed by Children and Adolescents Between 6 and 17 Years: A Systematic Review of Qualitative Studies
por: Deyra, Maéliane, et al.
Publicado: (2020)

Quality of Life of Children with Cystic Periventricular Leukomalacia – A Prospective Analysis with the Child Health Questionnaire-Parent Form 50
por: Resch, Bernhard, et al.
Publicado: (2016)

Long-term Bowel function and pediatric health-related quality of life after transanal rectal mucosectomy and partial internal anal sphincterectomy pull-through for Hirschsprung Disease
por: Zhang, Zhen, et al.
Publicado: (2023)

Infections in Thalassemia and Hemoglobinopathies: Focus on Therapy-Related Complications
por: Ricerca, Bianca Maria, et al.
Publicado: (2009)

A qualitative exploration of parental perspectives on quality of care for children with serious illnesses
por: Ang, Felicia Jia Ler, et al.
Publicado: (2023)

Cannot write session to /tmp/vufind_sessions/sess_34rskn8udr3f2liri48nddc0dt