The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups

BACKGROUND: Patients struggling with rare diseases may face challenges caused by care providers being unfamiliar with their condition. The life span of people with rare diseases may be the same as that of healthy people, but their quality of life is different. Patients with chronic pain are constant...

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Detalles Bibliográficos
Autores principales: Ashtari, Sadaf, Taylor, Adam Daniel
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2022
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9459833/
https://www.ncbi.nlm.nih.gov/pubmed/36006679
http://dx.doi.org/10.2196/39172

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9459833/
https://www.ncbi.nlm.nih.gov/pubmed/36006679
http://dx.doi.org/10.2196/39172

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