Evaluating the national system for rare diseases in China from the point of drug access: progress and challenges

BACKGROUND: There are about 7000 rare diseases worldwide, of which only 5% of the diseases can be treated with medicines, showing that it’s important to improve patient access to orphan drugs. Recently, China has actively worked to set up a national system for rare diseases to improve the diagnosis...

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Detalles Bibliográficos
Autores principales: Qiao, Luyao, Liu, Xin, Shang, Junmei, Zuo, Wei, Xu, Tingting, Qu, Jinghan, Jiang, Jiandong, Zhang, Bo, Zhang, Shuyang
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9463840/
https://www.ncbi.nlm.nih.gov/pubmed/36088349
http://dx.doi.org/10.1186/s13023-022-02507-2

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