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Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face of Uncertainty
Perinatal medicine is confronted by a growing number of complex fetal conditions that can be diagnosed prenatally. The evolution of potentially life-prolonging interventions for the baby before and after birth contributes to prognostic uncertainty. For clinicians who counsel families in these circum...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9465549/ https://www.ncbi.nlm.nih.gov/pubmed/35657323 http://dx.doi.org/10.1177/08258597221098496 |
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author | Lord, Sarah Williams, Rebecca Pollard, Lindsay Ives-Baine, Lori Wilson, Carolyn Goodman, Kira Rapoport, Adam |
author_facet | Lord, Sarah Williams, Rebecca Pollard, Lindsay Ives-Baine, Lori Wilson, Carolyn Goodman, Kira Rapoport, Adam |
author_sort | Lord, Sarah |
collection | PubMed |
description | Perinatal medicine is confronted by a growing number of complex fetal conditions that can be diagnosed prenatally. The evolution of potentially life-prolonging interventions for the baby before and after birth contributes to prognostic uncertainty. For clinicians who counsel families in these circumstances, determining which ones might benefit from early palliative care referral can be challenging. We assert that all women carrying a fetus diagnosed with a life-threatening condition for which comfort-focused care at birth is one ethically reasonable option ought to be offered palliative care support prenatally, regardless of the chosen plan of care. Early palliative care support can contribute to informed decision making, enhance psychological and grief support, and provide opportunities for care planning that includes ways to respect and honor the life of the fetus or baby, however long it may be. |
format | Online Article Text |
id | pubmed-9465549 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-94655492022-09-13 Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face of Uncertainty Lord, Sarah Williams, Rebecca Pollard, Lindsay Ives-Baine, Lori Wilson, Carolyn Goodman, Kira Rapoport, Adam J Palliat Care Perinatal Palliative Care Perinatal medicine is confronted by a growing number of complex fetal conditions that can be diagnosed prenatally. The evolution of potentially life-prolonging interventions for the baby before and after birth contributes to prognostic uncertainty. For clinicians who counsel families in these circumstances, determining which ones might benefit from early palliative care referral can be challenging. We assert that all women carrying a fetus diagnosed with a life-threatening condition for which comfort-focused care at birth is one ethically reasonable option ought to be offered palliative care support prenatally, regardless of the chosen plan of care. Early palliative care support can contribute to informed decision making, enhance psychological and grief support, and provide opportunities for care planning that includes ways to respect and honor the life of the fetus or baby, however long it may be. SAGE Publications 2022-06-03 2022-10 /pmc/articles/PMC9465549/ /pubmed/35657323 http://dx.doi.org/10.1177/08258597221098496 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Perinatal Palliative Care Lord, Sarah Williams, Rebecca Pollard, Lindsay Ives-Baine, Lori Wilson, Carolyn Goodman, Kira Rapoport, Adam Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face of Uncertainty |
title | Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face
of Uncertainty |
title_full | Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face
of Uncertainty |
title_fullStr | Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face
of Uncertainty |
title_full_unstemmed | Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face
of Uncertainty |
title_short | Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face
of Uncertainty |
title_sort | reimagining perinatal palliative care: a broader role for support in the face
of uncertainty |
topic | Perinatal Palliative Care |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9465549/ https://www.ncbi.nlm.nih.gov/pubmed/35657323 http://dx.doi.org/10.1177/08258597221098496 |
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