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Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face of Uncertainty

Perinatal medicine is confronted by a growing number of complex fetal conditions that can be diagnosed prenatally. The evolution of potentially life-prolonging interventions for the baby before and after birth contributes to prognostic uncertainty. For clinicians who counsel families in these circum...

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Autores principales: Lord, Sarah, Williams, Rebecca, Pollard, Lindsay, Ives-Baine, Lori, Wilson, Carolyn, Goodman, Kira, Rapoport, Adam
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9465549/
https://www.ncbi.nlm.nih.gov/pubmed/35657323
http://dx.doi.org/10.1177/08258597221098496
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author Lord, Sarah
Williams, Rebecca
Pollard, Lindsay
Ives-Baine, Lori
Wilson, Carolyn
Goodman, Kira
Rapoport, Adam
author_facet Lord, Sarah
Williams, Rebecca
Pollard, Lindsay
Ives-Baine, Lori
Wilson, Carolyn
Goodman, Kira
Rapoport, Adam
author_sort Lord, Sarah
collection PubMed
description Perinatal medicine is confronted by a growing number of complex fetal conditions that can be diagnosed prenatally. The evolution of potentially life-prolonging interventions for the baby before and after birth contributes to prognostic uncertainty. For clinicians who counsel families in these circumstances, determining which ones might benefit from early palliative care referral can be challenging. We assert that all women carrying a fetus diagnosed with a life-threatening condition for which comfort-focused care at birth is one ethically reasonable option ought to be offered palliative care support prenatally, regardless of the chosen plan of care. Early palliative care support can contribute to informed decision making, enhance psychological and grief support, and provide opportunities for care planning that includes ways to respect and honor the life of the fetus or baby, however long it may be.
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spelling pubmed-94655492022-09-13 Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face of Uncertainty Lord, Sarah Williams, Rebecca Pollard, Lindsay Ives-Baine, Lori Wilson, Carolyn Goodman, Kira Rapoport, Adam J Palliat Care Perinatal Palliative Care Perinatal medicine is confronted by a growing number of complex fetal conditions that can be diagnosed prenatally. The evolution of potentially life-prolonging interventions for the baby before and after birth contributes to prognostic uncertainty. For clinicians who counsel families in these circumstances, determining which ones might benefit from early palliative care referral can be challenging. We assert that all women carrying a fetus diagnosed with a life-threatening condition for which comfort-focused care at birth is one ethically reasonable option ought to be offered palliative care support prenatally, regardless of the chosen plan of care. Early palliative care support can contribute to informed decision making, enhance psychological and grief support, and provide opportunities for care planning that includes ways to respect and honor the life of the fetus or baby, however long it may be. SAGE Publications 2022-06-03 2022-10 /pmc/articles/PMC9465549/ /pubmed/35657323 http://dx.doi.org/10.1177/08258597221098496 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Perinatal Palliative Care
Lord, Sarah
Williams, Rebecca
Pollard, Lindsay
Ives-Baine, Lori
Wilson, Carolyn
Goodman, Kira
Rapoport, Adam
Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face of Uncertainty
title Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face of Uncertainty
title_full Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face of Uncertainty
title_fullStr Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face of Uncertainty
title_full_unstemmed Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face of Uncertainty
title_short Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face of Uncertainty
title_sort reimagining perinatal palliative care: a broader role for support in the face of uncertainty
topic Perinatal Palliative Care
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9465549/
https://www.ncbi.nlm.nih.gov/pubmed/35657323
http://dx.doi.org/10.1177/08258597221098496
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