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“You are not alone”: Connecting through a bereaved parent mentor program for parents whose child died of cancer

BACKGROUND: Bereavement after the death of a child is devastating and associated with worse physical and psychosocial well‐being in parents. Evidence suggests that parents desire and benefit from support provided by other bereaved parents. To foster this peer support, an institutional peer‐to‐peer m...

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Autores principales: McNeil, Michael J., Kiefer, Ashley, Woods, Cameka, Barnett, Brittany, Berry‐Carter, Kathryn, Clark, Lisa, Mandrell, Belinda N., Snaman, Jennifer, Kaye, Erica C., Baker, Justin N.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9468435/
https://www.ncbi.nlm.nih.gov/pubmed/35362669
http://dx.doi.org/10.1002/cam4.4696
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author McNeil, Michael J.
Kiefer, Ashley
Woods, Cameka
Barnett, Brittany
Berry‐Carter, Kathryn
Clark, Lisa
Mandrell, Belinda N.
Snaman, Jennifer
Kaye, Erica C.
Baker, Justin N.
author_facet McNeil, Michael J.
Kiefer, Ashley
Woods, Cameka
Barnett, Brittany
Berry‐Carter, Kathryn
Clark, Lisa
Mandrell, Belinda N.
Snaman, Jennifer
Kaye, Erica C.
Baker, Justin N.
author_sort McNeil, Michael J.
collection PubMed
description BACKGROUND: Bereavement after the death of a child is devastating and associated with worse physical and psychosocial well‐being in parents. Evidence suggests that parents desire and benefit from support provided by other bereaved parents. To foster this peer support, an institutional peer‐to‐peer mentorship program for bereaved parents was established, through which trained bereaved parent mentors offer support for newly bereaved parents. METHODS: Using a retrospective cohort design, we describe the characteristics of participants of the Bereaved Parent Mentorship program. Trained bereaved parent mentors documented encounters with newly bereaved parent mentees using a secure internet‐based form. Mentors summarized each encounter including any concerns or need for professional psychosocial support. Descriptive statistics were used to describe mentor and mentee characteristics; free text from encounter summaries was qualitatively analyzed using content analysis. RESULTS: A total of 1368 documented encounters occurred between 150 mentees and 39 mentors from January 1, 2014 to February 29, 2020. Only seven encounters (0.5%) were flagged as serious concern necessitating professional psychosocial support. Four key themes in the encounters between mentors and mentees emerged, including: descriptions of the grief experience, ways in which a mentor supported their mentee, challenges the mentor experienced in supporting the mentee, and personal benefit gained by the mentor from supporting their mentee. CONCLUSION: This structured Bereaved Parent Mentorship program fostered rich interactions between bereaved parent participants, with very few encounters requiring professional assistance. Future research will assess the impact of bereaved mentor programs on resilience and psychosocial, physical, and functional well‐being of parents.
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spelling pubmed-94684352022-09-27 “You are not alone”: Connecting through a bereaved parent mentor program for parents whose child died of cancer McNeil, Michael J. Kiefer, Ashley Woods, Cameka Barnett, Brittany Berry‐Carter, Kathryn Clark, Lisa Mandrell, Belinda N. Snaman, Jennifer Kaye, Erica C. Baker, Justin N. Cancer Med RESEARCH ARTICLES BACKGROUND: Bereavement after the death of a child is devastating and associated with worse physical and psychosocial well‐being in parents. Evidence suggests that parents desire and benefit from support provided by other bereaved parents. To foster this peer support, an institutional peer‐to‐peer mentorship program for bereaved parents was established, through which trained bereaved parent mentors offer support for newly bereaved parents. METHODS: Using a retrospective cohort design, we describe the characteristics of participants of the Bereaved Parent Mentorship program. Trained bereaved parent mentors documented encounters with newly bereaved parent mentees using a secure internet‐based form. Mentors summarized each encounter including any concerns or need for professional psychosocial support. Descriptive statistics were used to describe mentor and mentee characteristics; free text from encounter summaries was qualitatively analyzed using content analysis. RESULTS: A total of 1368 documented encounters occurred between 150 mentees and 39 mentors from January 1, 2014 to February 29, 2020. Only seven encounters (0.5%) were flagged as serious concern necessitating professional psychosocial support. Four key themes in the encounters between mentors and mentees emerged, including: descriptions of the grief experience, ways in which a mentor supported their mentee, challenges the mentor experienced in supporting the mentee, and personal benefit gained by the mentor from supporting their mentee. CONCLUSION: This structured Bereaved Parent Mentorship program fostered rich interactions between bereaved parent participants, with very few encounters requiring professional assistance. Future research will assess the impact of bereaved mentor programs on resilience and psychosocial, physical, and functional well‐being of parents. John Wiley and Sons Inc. 2022-04-01 /pmc/articles/PMC9468435/ /pubmed/35362669 http://dx.doi.org/10.1002/cam4.4696 Text en © 2022 The Authors. Cancer Medicine published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle RESEARCH ARTICLES
McNeil, Michael J.
Kiefer, Ashley
Woods, Cameka
Barnett, Brittany
Berry‐Carter, Kathryn
Clark, Lisa
Mandrell, Belinda N.
Snaman, Jennifer
Kaye, Erica C.
Baker, Justin N.
“You are not alone”: Connecting through a bereaved parent mentor program for parents whose child died of cancer
title “You are not alone”: Connecting through a bereaved parent mentor program for parents whose child died of cancer
title_full “You are not alone”: Connecting through a bereaved parent mentor program for parents whose child died of cancer
title_fullStr “You are not alone”: Connecting through a bereaved parent mentor program for parents whose child died of cancer
title_full_unstemmed “You are not alone”: Connecting through a bereaved parent mentor program for parents whose child died of cancer
title_short “You are not alone”: Connecting through a bereaved parent mentor program for parents whose child died of cancer
title_sort “you are not alone”: connecting through a bereaved parent mentor program for parents whose child died of cancer
topic RESEARCH ARTICLES
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9468435/
https://www.ncbi.nlm.nih.gov/pubmed/35362669
http://dx.doi.org/10.1002/cam4.4696
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