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Telehealth Training in Naturalistic Communication Intervention for Mothers of Children with Angelman Syndrome

OBJECTIVES : Young children with Angelman syndrome have significant delays in expressive communication. Parents of children with Angelman syndrome require training to support their child’s communication development. Unfortunately, parent training focused on the needs of families of children with rar...

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Autores principales: Rispoli, Mandy, Shannon, Eric, Voorhis, Charissa, Lang, Russell, Mason, Rose, Kelleher, Bridgette
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9483349/
https://www.ncbi.nlm.nih.gov/pubmed/36160311
http://dx.doi.org/10.1007/s41252-022-00284-4
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author Rispoli, Mandy
Shannon, Eric
Voorhis, Charissa
Lang, Russell
Mason, Rose
Kelleher, Bridgette
author_facet Rispoli, Mandy
Shannon, Eric
Voorhis, Charissa
Lang, Russell
Mason, Rose
Kelleher, Bridgette
author_sort Rispoli, Mandy
collection PubMed
description OBJECTIVES : Young children with Angelman syndrome have significant delays in expressive communication. Parents of children with Angelman syndrome require training to support their child’s communication development. Unfortunately, parent training focused on the needs of families of children with rare genetic syndromes is unavailable to many families. The purpose of this study was to evaluate a telehealth parent training program on naturalistic communication intervention for young children with Angelman syndrome. METHODS: Using two single-case multiple baseline designs across a total of six parent–child dyads, we evaluated the effects of a telehealth parent training program on parent implementation fidelity of a naturalistic communication intervention, child communication, and child engagement. RESULTS: With the telehealth parent training program, parent implementation fidelity of naturalistic communication intervention improved, maintained and generalized to untrained home routines. Small effects on child communication and engagement were observed during the program. CONCLUSIONS: Parents of children with Angelman syndrome were successfully taught via telehealth to implement a naturalistic communication intervention with their child at home. Additional research is needed to promote positive child communication outcomes through parent-mediated intervention.
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spelling pubmed-94833492022-09-19 Telehealth Training in Naturalistic Communication Intervention for Mothers of Children with Angelman Syndrome Rispoli, Mandy Shannon, Eric Voorhis, Charissa Lang, Russell Mason, Rose Kelleher, Bridgette Adv Neurodev Disord Original Paper OBJECTIVES : Young children with Angelman syndrome have significant delays in expressive communication. Parents of children with Angelman syndrome require training to support their child’s communication development. Unfortunately, parent training focused on the needs of families of children with rare genetic syndromes is unavailable to many families. The purpose of this study was to evaluate a telehealth parent training program on naturalistic communication intervention for young children with Angelman syndrome. METHODS: Using two single-case multiple baseline designs across a total of six parent–child dyads, we evaluated the effects of a telehealth parent training program on parent implementation fidelity of a naturalistic communication intervention, child communication, and child engagement. RESULTS: With the telehealth parent training program, parent implementation fidelity of naturalistic communication intervention improved, maintained and generalized to untrained home routines. Small effects on child communication and engagement were observed during the program. CONCLUSIONS: Parents of children with Angelman syndrome were successfully taught via telehealth to implement a naturalistic communication intervention with their child at home. Additional research is needed to promote positive child communication outcomes through parent-mediated intervention. Springer International Publishing 2022-09-19 2022 /pmc/articles/PMC9483349/ /pubmed/36160311 http://dx.doi.org/10.1007/s41252-022-00284-4 Text en © The Author(s), under exclusive licence to Springer Nature Switzerland AG 2022, Springer Nature or its licensor holds exclusive rights to this article under a publishing agreement with the author(s) or other rightsholder(s); author self-archiving of the accepted manuscript version of this article is solely governed by the terms of such publishing agreement and applicable law. This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Original Paper
Rispoli, Mandy
Shannon, Eric
Voorhis, Charissa
Lang, Russell
Mason, Rose
Kelleher, Bridgette
Telehealth Training in Naturalistic Communication Intervention for Mothers of Children with Angelman Syndrome
title Telehealth Training in Naturalistic Communication Intervention for Mothers of Children with Angelman Syndrome
title_full Telehealth Training in Naturalistic Communication Intervention for Mothers of Children with Angelman Syndrome
title_fullStr Telehealth Training in Naturalistic Communication Intervention for Mothers of Children with Angelman Syndrome
title_full_unstemmed Telehealth Training in Naturalistic Communication Intervention for Mothers of Children with Angelman Syndrome
title_short Telehealth Training in Naturalistic Communication Intervention for Mothers of Children with Angelman Syndrome
title_sort telehealth training in naturalistic communication intervention for mothers of children with angelman syndrome
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9483349/
https://www.ncbi.nlm.nih.gov/pubmed/36160311
http://dx.doi.org/10.1007/s41252-022-00284-4
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