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Narrative medicine to investigate the quality of life and emotional impact of inherited retinal disorders through the perspectives of patients, caregivers and clinicians: an Italian multicentre project

OBJECTIVES: Although inherited retinal disorders (IRDs) related to the gene encoding the retinal pigment epithelium 65kD protein (RPE65) significantly impact the vision-related quality of life (VRQoL), their emotional and social aspects remain poorly investigated in Italy. Narrative Medicine (NM) re...

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Detalles Bibliográficos
Autores principales:	Simonelli, Francesca, Sodi, Andrea, Falsini, Benedetto, Bacci, Giacomo, Iarossi, Giancarlo, Di Iorio, Valentina, Giorgio, Dario, Placidi, Giorgio, Andrao, Assia, Reale, Luigi, Fiorencis, Alessandra, Aoun, Manar
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2022
Materias:	Ophthalmology
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9486281/ https://www.ncbi.nlm.nih.gov/pubmed/36123082 http://dx.doi.org/10.1136/bmjopen-2022-061080

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