Ultra-rare disease: an European perspective

Too little attention is still paid to ultra-rare diseases. It is important to disseminate the best information on less common diseases in order to improve the clinical managment and improve care. https://bit.ly/2NougE5

Detalles Bibliográficos
Autores principales: Harari, Sergio, Humbert, Marc
Formato: Online Artículo Texto
Lenguaje:English
Publicado: European Respiratory Society 2020
Materias:
Editorials
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9488651/
https://www.ncbi.nlm.nih.gov/pubmed/32620589
http://dx.doi.org/10.1183/16000617.0195-2020
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author Harari, Sergio
Humbert, Marc
author_facet Harari, Sergio
Humbert, Marc
author_sort Harari, Sergio
collection PubMed
description Too little attention is still paid to ultra-rare diseases. It is important to disseminate the best information on less common diseases in order to improve the clinical managment and improve care. https://bit.ly/2NougE5
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spelling pubmed-94886512022-11-14 Ultra-rare disease: an European perspective Harari, Sergio Humbert, Marc Eur Respir Rev Editorials Too little attention is still paid to ultra-rare diseases. It is important to disseminate the best information on less common diseases in order to improve the clinical managment and improve care. https://bit.ly/2NougE5 European Respiratory Society 2020-07-03 /pmc/articles/PMC9488651/ /pubmed/32620589 http://dx.doi.org/10.1183/16000617.0195-2020 Text en Copyright ©ERS 2020. https://creativecommons.org/licenses/by-nc/4.0/This article is open access and distributed under the terms of the Creative Commons Attribution Non-Commercial Licence 4.0.
spellingShingle Editorials
Harari, Sergio
Humbert, Marc
Ultra-rare disease: an European perspective
title Ultra-rare disease: an European perspective
title_full Ultra-rare disease: an European perspective
title_fullStr Ultra-rare disease: an European perspective
title_full_unstemmed Ultra-rare disease: an European perspective
title_short Ultra-rare disease: an European perspective
title_sort ultra-rare disease: an european perspective
topic Editorials
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9488651/
https://www.ncbi.nlm.nih.gov/pubmed/32620589
http://dx.doi.org/10.1183/16000617.0195-2020
work_keys_str_mv AT hararisergio ultrararediseaseaneuropeanperspective
AT humbertmarc ultrararediseaseaneuropeanperspective

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