Cargando…

Palliative care in pulmonary arterial hypertension: an underutilised treatment

Pulmonary arterial hypertension (PAH) is a condition characterised by increased pulmonary vascular resistance which can lead to right heart failure and premature death. It imposes a significant burden on patients' lives, affecting their physical, emotional and social wellbeing. Pharmacological...

Descripción completa

Detalles Bibliográficos
Autores principales: Khirfan, Ghaleb, Tonelli, Adriano R., Ramsey, Jennifer, Sahay, Sandeep
Formato: Online Artículo Texto
Lenguaje:English
Publicado: European Respiratory Society 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9488853/
https://www.ncbi.nlm.nih.gov/pubmed/30567933
http://dx.doi.org/10.1183/16000617.0069-2018
_version_ 1784792753069096960
author Khirfan, Ghaleb
Tonelli, Adriano R.
Ramsey, Jennifer
Sahay, Sandeep
author_facet Khirfan, Ghaleb
Tonelli, Adriano R.
Ramsey, Jennifer
Sahay, Sandeep
author_sort Khirfan, Ghaleb
collection PubMed
description Pulmonary arterial hypertension (PAH) is a condition characterised by increased pulmonary vascular resistance which can lead to right heart failure and premature death. It imposes a significant burden on patients' lives, affecting their physical, emotional and social wellbeing. Pharmacological therapies are the mainstay of treatment; while they are not curative, they can alleviate patient suffering, improve quality of life and delay disease progression. Despite these therapies, disease progresses in a significant number of patients, who are faced with the debilitating symptoms of PAH and treatment adverse effects. Palliative care is focused on providing relief from symptoms caused by a chronic illness. Palliative care aims to improve the health-related quality of life for patients and families, and although it is deemed appropriate at any stage of disease, it is most helpful when explored early in the course of disease. Importantly, palliative care can be provided in concert with pharmacological treatment. Despite its potential benefits, palliative care is frequently underutilised. There is a paucity of clinical studies testing the impact of palliative care in PAH which prompted us to summarise the available evidence, recognise obstacles in its utilisation and identify areas for future research.
format Online
Article
Text
id pubmed-9488853
institution National Center for Biotechnology Information
language English
publishDate 2018
publisher European Respiratory Society
record_format MEDLINE/PubMed
spelling pubmed-94888532022-11-14 Palliative care in pulmonary arterial hypertension: an underutilised treatment Khirfan, Ghaleb Tonelli, Adriano R. Ramsey, Jennifer Sahay, Sandeep Eur Respir Rev Review Pulmonary arterial hypertension (PAH) is a condition characterised by increased pulmonary vascular resistance which can lead to right heart failure and premature death. It imposes a significant burden on patients' lives, affecting their physical, emotional and social wellbeing. Pharmacological therapies are the mainstay of treatment; while they are not curative, they can alleviate patient suffering, improve quality of life and delay disease progression. Despite these therapies, disease progresses in a significant number of patients, who are faced with the debilitating symptoms of PAH and treatment adverse effects. Palliative care is focused on providing relief from symptoms caused by a chronic illness. Palliative care aims to improve the health-related quality of life for patients and families, and although it is deemed appropriate at any stage of disease, it is most helpful when explored early in the course of disease. Importantly, palliative care can be provided in concert with pharmacological treatment. Despite its potential benefits, palliative care is frequently underutilised. There is a paucity of clinical studies testing the impact of palliative care in PAH which prompted us to summarise the available evidence, recognise obstacles in its utilisation and identify areas for future research. European Respiratory Society 2018-12-19 /pmc/articles/PMC9488853/ /pubmed/30567933 http://dx.doi.org/10.1183/16000617.0069-2018 Text en Copyright ©ERS 2018. https://creativecommons.org/licenses/by-nc/4.0/ERR articles are open access and distributed under the terms of the Creative Commons Attribution Non-Commercial Licence 4.0.
spellingShingle Review
Khirfan, Ghaleb
Tonelli, Adriano R.
Ramsey, Jennifer
Sahay, Sandeep
Palliative care in pulmonary arterial hypertension: an underutilised treatment
title Palliative care in pulmonary arterial hypertension: an underutilised treatment
title_full Palliative care in pulmonary arterial hypertension: an underutilised treatment
title_fullStr Palliative care in pulmonary arterial hypertension: an underutilised treatment
title_full_unstemmed Palliative care in pulmonary arterial hypertension: an underutilised treatment
title_short Palliative care in pulmonary arterial hypertension: an underutilised treatment
title_sort palliative care in pulmonary arterial hypertension: an underutilised treatment
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9488853/
https://www.ncbi.nlm.nih.gov/pubmed/30567933
http://dx.doi.org/10.1183/16000617.0069-2018
work_keys_str_mv AT khirfanghaleb palliativecareinpulmonaryarterialhypertensionanunderutilisedtreatment
AT tonelliadrianor palliativecareinpulmonaryarterialhypertensionanunderutilisedtreatment
AT ramseyjennifer palliativecareinpulmonaryarterialhypertensionanunderutilisedtreatment
AT sahaysandeep palliativecareinpulmonaryarterialhypertensionanunderutilisedtreatment