The Australian and New Zealand Fontan Registry Quality of Life Study: Protocol for a population-based assessment of quality of life among people with a Fontan circulation, their parents, and siblings

INTRODUCTION: Advances in the care of patients with single-ventricle congenital heart disease have led to a new generation of individuals living with a Fontan circulation. For people with Fontan physiology, physical, psychological and neurodevelopmental challenges are common. The objective of this s...

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Detalles Bibliográficos
Autores principales: Marshall, Kate H, d’Udekem, Yves, Winlaw, David S, Dalziel, Kim, Woolfenden, Susan R, Zannino, Diana, Costa, Daniel S J, Bishop, Rachel, Celermajer, David S, Sholler, Gary F, Kasparian, Nadine A
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2022
Materias:
Paediatrics
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9490616/
https://www.ncbi.nlm.nih.gov/pubmed/36127092
http://dx.doi.org/10.1136/bmjopen-2022-065726

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