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Integrating specialist palliative care to improve care and reduce suffering: cystic fibrosis (InSPIRe:CF) – study protocol for a multicentre randomised clinical trial

INTRODUCTION: Cystic fibrosis (CF) is a life-limiting genetic disorder estimated to affect more than 160 000 individuals and their families worldwide. People living with CF commonly experience significant physical and emotional symptom burdens, disruptions to social roles and complex treatment decis...

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Detalles Bibliográficos
Autores principales:	Lowers, Jane, Dellon, Elisabeth P, Stephenson, Anne, Arnold, Robert, Althouse, Andrew, Jeong, Kwonho, Dubin, Ethan, Soodalter, Jesse, Hovater, Cade, Bakitas, Marie, Goggin, Jessica, Hunt, William, Ladores, Sigrid, Curseen, Kimberly, Winter, Gretchen, Solomon, George, Ailon, Jonathan, Conrad, Douglas, Kavalieratos, Dio
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2022
Materias:	Cystic Fibrosis
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9490626/ https://www.ncbi.nlm.nih.gov/pubmed/36126995 http://dx.doi.org/10.1136/bmjresp-2022-001381

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