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Patients and doctors group meetings: an innovative way to explore severe asthma backstage

Severe asthma patients’ life is heavily influenced by the disease, which has impact on personal and professional choices or general lifestyle. Despite the available tools to help physicians investigating the patient-reported outcomes there is a need for a more standardised and structured approach to...

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Autores principales: Caminati, Marco, Camiciottoli, Gianna, Baiardini, Ilaria, Antonicelli, Leonardo, Beghè, Bianca, Crimi, Nunzio, Favero, Elisabetta, Stanziola, Anna Agnese, Valenti, Giuseppe, Visca, Dina, Del Giacco, Stefano
Formato: Online Artículo Texto
Lenguaje:English
Publicado: PAGEPress Publications, Pavia, Italy 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9491102/
https://www.ncbi.nlm.nih.gov/pubmed/36158780
http://dx.doi.org/10.4081/mrm.2022.854
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author Caminati, Marco
Camiciottoli, Gianna
Baiardini, Ilaria
Antonicelli, Leonardo
Beghè, Bianca
Crimi, Nunzio
Favero, Elisabetta
Stanziola, Anna Agnese
Valenti, Giuseppe
Visca, Dina
Del Giacco, Stefano
author_facet Caminati, Marco
Camiciottoli, Gianna
Baiardini, Ilaria
Antonicelli, Leonardo
Beghè, Bianca
Crimi, Nunzio
Favero, Elisabetta
Stanziola, Anna Agnese
Valenti, Giuseppe
Visca, Dina
Del Giacco, Stefano
author_sort Caminati, Marco
collection PubMed
description Severe asthma patients’ life is heavily influenced by the disease, which has impact on personal and professional choices or general lifestyle. Despite the available tools to help physicians investigating the patient-reported outcomes there is a need for a more standardised and structured approach to include the evaluation of quality of life together with the emotions of patients into the routine clinical interaction. We hereby report the use of an active listening and insight approach to understand the emotions of patients with severe asthma through dedicated in-person meetings involving a group of patients with their doctors, caregivers and an external moderator. The initiative “Patients insight meeting” was organized within 17 specialist referral centres for severe asthma in Italy in 2019 and involved 149 patients. Insights related to 4 different items were collected and a task force composed by the external moderators produced a general report including the suggestions from the participating centres. This experience of group-meetings involving both patients and doctors together represents an innovative way to investigate real life experience and the emotions of asthmatic patients, highlighting unmet needs related to patient’s experience of his/her disease that need to be included in severe asthmatics’ management strategy.
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spelling pubmed-94911022022-09-22 Patients and doctors group meetings: an innovative way to explore severe asthma backstage Caminati, Marco Camiciottoli, Gianna Baiardini, Ilaria Antonicelli, Leonardo Beghè, Bianca Crimi, Nunzio Favero, Elisabetta Stanziola, Anna Agnese Valenti, Giuseppe Visca, Dina Del Giacco, Stefano Multidiscip Respir Med Short Report Severe asthma patients’ life is heavily influenced by the disease, which has impact on personal and professional choices or general lifestyle. Despite the available tools to help physicians investigating the patient-reported outcomes there is a need for a more standardised and structured approach to include the evaluation of quality of life together with the emotions of patients into the routine clinical interaction. We hereby report the use of an active listening and insight approach to understand the emotions of patients with severe asthma through dedicated in-person meetings involving a group of patients with their doctors, caregivers and an external moderator. The initiative “Patients insight meeting” was organized within 17 specialist referral centres for severe asthma in Italy in 2019 and involved 149 patients. Insights related to 4 different items were collected and a task force composed by the external moderators produced a general report including the suggestions from the participating centres. This experience of group-meetings involving both patients and doctors together represents an innovative way to investigate real life experience and the emotions of asthmatic patients, highlighting unmet needs related to patient’s experience of his/her disease that need to be included in severe asthmatics’ management strategy. PAGEPress Publications, Pavia, Italy 2022-09-05 /pmc/articles/PMC9491102/ /pubmed/36158780 http://dx.doi.org/10.4081/mrm.2022.854 Text en ©Copyright: the Author(s) https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution Noncommercial License (by-nc 4.0) which permits any noncommercial use, distribution, and reproduction in any medium, provided the original author(s) and source are credited.
spellingShingle Short Report
Caminati, Marco
Camiciottoli, Gianna
Baiardini, Ilaria
Antonicelli, Leonardo
Beghè, Bianca
Crimi, Nunzio
Favero, Elisabetta
Stanziola, Anna Agnese
Valenti, Giuseppe
Visca, Dina
Del Giacco, Stefano
Patients and doctors group meetings: an innovative way to explore severe asthma backstage
title Patients and doctors group meetings: an innovative way to explore severe asthma backstage
title_full Patients and doctors group meetings: an innovative way to explore severe asthma backstage
title_fullStr Patients and doctors group meetings: an innovative way to explore severe asthma backstage
title_full_unstemmed Patients and doctors group meetings: an innovative way to explore severe asthma backstage
title_short Patients and doctors group meetings: an innovative way to explore severe asthma backstage
title_sort patients and doctors group meetings: an innovative way to explore severe asthma backstage
topic Short Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9491102/
https://www.ncbi.nlm.nih.gov/pubmed/36158780
http://dx.doi.org/10.4081/mrm.2022.854
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