Cargando…

“It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission

BACKGROUND: Individuals living with a rheumatic pain condition can face delays in accessing pain clinics, which prevents them from receiving timely treatment. Little is known regarding their specific healthcare utilization in order to alleviate pain while waiting to obtain services in pain clinics....

Descripción completa

Detalles Bibliográficos
Autores principales: Blanchard, Nathan, Deslauriers, Simon, Gervais-Hupé, Jonathan, Hudon, Anne, Roy, Jean-Sébastien, Bernatsky, Sasha, Feldman, Debbie E., Pinard, Anne Marie, Fitzcharles, Mary-Ann, Desmeules, François, Perreault, Kadija
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9492464/
https://www.ncbi.nlm.nih.gov/pubmed/36131335
http://dx.doi.org/10.1186/s12891-022-05808-6
_version_ 1784793487536816128
author Blanchard, Nathan
Deslauriers, Simon
Gervais-Hupé, Jonathan
Hudon, Anne
Roy, Jean-Sébastien
Bernatsky, Sasha
Feldman, Debbie E.
Pinard, Anne Marie
Fitzcharles, Mary-Ann
Desmeules, François
Perreault, Kadija
author_facet Blanchard, Nathan
Deslauriers, Simon
Gervais-Hupé, Jonathan
Hudon, Anne
Roy, Jean-Sébastien
Bernatsky, Sasha
Feldman, Debbie E.
Pinard, Anne Marie
Fitzcharles, Mary-Ann
Desmeules, François
Perreault, Kadija
author_sort Blanchard, Nathan
collection PubMed
description BACKGROUND: Individuals living with a rheumatic pain condition can face delays in accessing pain clinics, which prevents them from receiving timely treatment. Little is known regarding their specific healthcare utilization in order to alleviate pain while waiting to obtain services in pain clinics. Hence, the aim of this study was to explore the perceptions and experiences of persons living with rheumatic conditions regarding healthcare utilization while waiting to access a pain clinic. METHODS: In this qualitative descriptive study, semi-structured interviews were conducted with adults living with a painful rheumatic condition that reported either being waiting for admission in a pain clinic, having been referred but then denied pain clinic services, or having received services during the previous six months, in the province of Quebec, Canada. The interviews were transcribed verbatim, and an inductive thematic analysis was performed. RESULTS: Twenty-six individuals were interviewed (22 women and 4 men; mean age 54 ± 10 years). Three themes were identified: 1) lacking guidance in identifying solutions to their complex and multidimensional needs, 2) struggling to obtain and maintain services due to systemic access barriers, and 3) displaying resilience through a search for accessible and sustainable self-management strategies. CONCLUSIONS: The current approaches and structures of health services fail to adequately answer the service needs of individuals experiencing painful rheumatic conditions. Important shifts are required in pain education, in increasing access to multidisciplinary approaches at the primary care level and in breaking down barriers individuals with chronic pain face to receive appropriate and timely care.
format Online
Article
Text
id pubmed-9492464
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher BioMed Central
record_format MEDLINE/PubMed
spelling pubmed-94924642022-09-22 “It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission Blanchard, Nathan Deslauriers, Simon Gervais-Hupé, Jonathan Hudon, Anne Roy, Jean-Sébastien Bernatsky, Sasha Feldman, Debbie E. Pinard, Anne Marie Fitzcharles, Mary-Ann Desmeules, François Perreault, Kadija BMC Musculoskelet Disord Research BACKGROUND: Individuals living with a rheumatic pain condition can face delays in accessing pain clinics, which prevents them from receiving timely treatment. Little is known regarding their specific healthcare utilization in order to alleviate pain while waiting to obtain services in pain clinics. Hence, the aim of this study was to explore the perceptions and experiences of persons living with rheumatic conditions regarding healthcare utilization while waiting to access a pain clinic. METHODS: In this qualitative descriptive study, semi-structured interviews were conducted with adults living with a painful rheumatic condition that reported either being waiting for admission in a pain clinic, having been referred but then denied pain clinic services, or having received services during the previous six months, in the province of Quebec, Canada. The interviews were transcribed verbatim, and an inductive thematic analysis was performed. RESULTS: Twenty-six individuals were interviewed (22 women and 4 men; mean age 54 ± 10 years). Three themes were identified: 1) lacking guidance in identifying solutions to their complex and multidimensional needs, 2) struggling to obtain and maintain services due to systemic access barriers, and 3) displaying resilience through a search for accessible and sustainable self-management strategies. CONCLUSIONS: The current approaches and structures of health services fail to adequately answer the service needs of individuals experiencing painful rheumatic conditions. Important shifts are required in pain education, in increasing access to multidisciplinary approaches at the primary care level and in breaking down barriers individuals with chronic pain face to receive appropriate and timely care. BioMed Central 2022-09-22 /pmc/articles/PMC9492464/ /pubmed/36131335 http://dx.doi.org/10.1186/s12891-022-05808-6 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
Blanchard, Nathan
Deslauriers, Simon
Gervais-Hupé, Jonathan
Hudon, Anne
Roy, Jean-Sébastien
Bernatsky, Sasha
Feldman, Debbie E.
Pinard, Anne Marie
Fitzcharles, Mary-Ann
Desmeules, François
Perreault, Kadija
“It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission
title “It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission
title_full “It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission
title_fullStr “It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission
title_full_unstemmed “It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission
title_short “It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission
title_sort “it feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9492464/
https://www.ncbi.nlm.nih.gov/pubmed/36131335
http://dx.doi.org/10.1186/s12891-022-05808-6
work_keys_str_mv AT blanchardnathan itfeelslikeanendlessfightaqualitativestudyexploringhealthcareutilizationofpersonswithrheumaticconditionswaitingforpainclinicadmission
AT deslaurierssimon itfeelslikeanendlessfightaqualitativestudyexploringhealthcareutilizationofpersonswithrheumaticconditionswaitingforpainclinicadmission
AT gervaishupejonathan itfeelslikeanendlessfightaqualitativestudyexploringhealthcareutilizationofpersonswithrheumaticconditionswaitingforpainclinicadmission
AT hudonanne itfeelslikeanendlessfightaqualitativestudyexploringhealthcareutilizationofpersonswithrheumaticconditionswaitingforpainclinicadmission
AT royjeansebastien itfeelslikeanendlessfightaqualitativestudyexploringhealthcareutilizationofpersonswithrheumaticconditionswaitingforpainclinicadmission
AT bernatskysasha itfeelslikeanendlessfightaqualitativestudyexploringhealthcareutilizationofpersonswithrheumaticconditionswaitingforpainclinicadmission
AT feldmandebbiee itfeelslikeanendlessfightaqualitativestudyexploringhealthcareutilizationofpersonswithrheumaticconditionswaitingforpainclinicadmission
AT pinardannemarie itfeelslikeanendlessfightaqualitativestudyexploringhealthcareutilizationofpersonswithrheumaticconditionswaitingforpainclinicadmission
AT fitzcharlesmaryann itfeelslikeanendlessfightaqualitativestudyexploringhealthcareutilizationofpersonswithrheumaticconditionswaitingforpainclinicadmission
AT desmeulesfrancois itfeelslikeanendlessfightaqualitativestudyexploringhealthcareutilizationofpersonswithrheumaticconditionswaitingforpainclinicadmission
AT perreaultkadija itfeelslikeanendlessfightaqualitativestudyexploringhealthcareutilizationofpersonswithrheumaticconditionswaitingforpainclinicadmission