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Patients’ and Publics’ Preferences for Data-Intensive Health Research Governance: Survey Study
BACKGROUND: Patients and publics are generally positive about data-intensive health research. However, conditions need to be fulfilled for their support. Ensuring confidentiality, security, and privacy of patients’ health data is pivotal. Patients and publics have concerns about secondary use of dat...
Autores principales: | Muller, Sam H A, van Thiel, Ghislaine J M W, Vrana, Marilena, Mostert, Menno, van Delden, Johannes J M |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9494211/ https://www.ncbi.nlm.nih.gov/pubmed/36069794 http://dx.doi.org/10.2196/36797 |
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