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Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of Diagnosis

Childhood cancer has a great impact on children and their environment. To minimize this, countries such as Canada and the USA have protocols in the field of social work, although these are scarce in Europe and especially in Spain. This paper aims to develop a pilot protocol in Aragon (Spain) for the...

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Autores principales: Mira-Aladrén, Marta, Martín-Peña, Javier, Sevillano Cintora, Gemma, Celma Juste, Antonio, Gil-Lacruz, Marta
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9498655/
https://www.ncbi.nlm.nih.gov/pubmed/36141402
http://dx.doi.org/10.3390/healthcare10091790
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author Mira-Aladrén, Marta
Martín-Peña, Javier
Sevillano Cintora, Gemma
Celma Juste, Antonio
Gil-Lacruz, Marta
author_facet Mira-Aladrén, Marta
Martín-Peña, Javier
Sevillano Cintora, Gemma
Celma Juste, Antonio
Gil-Lacruz, Marta
author_sort Mira-Aladrén, Marta
collection PubMed
description Childhood cancer has a great impact on children and their environment. To minimize this, countries such as Canada and the USA have protocols in the field of social work, although these are scarce in Europe and especially in Spain. This paper aims to develop a pilot protocol in Aragon (Spain) for the practice of onco-pediatric social work in one of the hardest moments: the diagnosis. For its elaboration, a previous study was carried out in three phases, which provided data on the disease and its impact on the family and children and a methodological basis for the intervention from social work, all considering the participation of the agents involved as a fundamental element. Variables have been identified that influence the impact on the family support network and its quality of life at the time of diagnosis of childhood cancer. In addition, different indicators have been explored, based on the reality of these families. Finally, a pilot proposal for a comprehensive family intervention protocol in the diagnosis of childhood cancer has been elaborated. This work is intended to be a guide for intervention and delimitation of quality standards to be considered when dealing with the diagnosis of childhood cancer.
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spelling pubmed-94986552022-09-23 Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of Diagnosis Mira-Aladrén, Marta Martín-Peña, Javier Sevillano Cintora, Gemma Celma Juste, Antonio Gil-Lacruz, Marta Healthcare (Basel) Article Childhood cancer has a great impact on children and their environment. To minimize this, countries such as Canada and the USA have protocols in the field of social work, although these are scarce in Europe and especially in Spain. This paper aims to develop a pilot protocol in Aragon (Spain) for the practice of onco-pediatric social work in one of the hardest moments: the diagnosis. For its elaboration, a previous study was carried out in three phases, which provided data on the disease and its impact on the family and children and a methodological basis for the intervention from social work, all considering the participation of the agents involved as a fundamental element. Variables have been identified that influence the impact on the family support network and its quality of life at the time of diagnosis of childhood cancer. In addition, different indicators have been explored, based on the reality of these families. Finally, a pilot proposal for a comprehensive family intervention protocol in the diagnosis of childhood cancer has been elaborated. This work is intended to be a guide for intervention and delimitation of quality standards to be considered when dealing with the diagnosis of childhood cancer. MDPI 2022-09-16 /pmc/articles/PMC9498655/ /pubmed/36141402 http://dx.doi.org/10.3390/healthcare10091790 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Mira-Aladrén, Marta
Martín-Peña, Javier
Sevillano Cintora, Gemma
Celma Juste, Antonio
Gil-Lacruz, Marta
Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of Diagnosis
title Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of Diagnosis
title_full Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of Diagnosis
title_fullStr Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of Diagnosis
title_full_unstemmed Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of Diagnosis
title_short Childhood Cancer and the Family: A Pilot Proposal for Comprehensive Intervention at the Time of Diagnosis
title_sort childhood cancer and the family: a pilot proposal for comprehensive intervention at the time of diagnosis
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9498655/
https://www.ncbi.nlm.nih.gov/pubmed/36141402
http://dx.doi.org/10.3390/healthcare10091790
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