Cargando…

Development of an Application for Electronic Retrieval of Patient and Sample Information in Latin American Regions with a High Incidence of Gallbladder Cancer

The European–Latin American Consortium towards Eradication of Preventable Gallbladder Cancer, EULAT Eradicate GBC, is collecting high-quality data and samples in four Latin American countries with high gallbladder cancer incidence (Argentina, Bolivia, Chile, and Peru) to build a unique biorepository...

Descripción completa

Detalles Bibliográficos
Autores principales: Guinez-Molinos, Sergio, Gonzalez Diaz, Jaime, Barahona Ponce, Carol, Lorenzo Bermejo, Justo
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9502361/
https://www.ncbi.nlm.nih.gov/pubmed/36143261
http://dx.doi.org/10.3390/jpm12091476
_version_ 1784795685940363264
author Guinez-Molinos, Sergio
Gonzalez Diaz, Jaime
Barahona Ponce, Carol
Lorenzo Bermejo, Justo
author_facet Guinez-Molinos, Sergio
Gonzalez Diaz, Jaime
Barahona Ponce, Carol
Lorenzo Bermejo, Justo
author_sort Guinez-Molinos, Sergio
collection PubMed
description The European–Latin American Consortium towards Eradication of Preventable Gallbladder Cancer, EULAT Eradicate GBC, is collecting high-quality data and samples in four Latin American countries with high gallbladder cancer incidence (Argentina, Bolivia, Chile, and Peru) to build a unique biorepository integrated into a tailored IT platform, to identify, validate, and functionally characterize new risk biomarkers, and to develop prediction models that integrate epidemiological and genetic–molecular risk factors. We decided to develop an application for electronic data collection to facilitate the retrieval of sociodemographic, clinical, lifestyle, dietary, and sample-related information from 15,000 Latin American study participants. The application EULAT eCollect will facilitate the work of study nurses, reduce time spent by participants, limit the use of paper and ink, minimize costs and errors associated with filling out written forms and subsequent digitisation, and support the monitoring of local recruitment rates and data quality. We describe in this article the design and implementation of the EULAT eCollect application, which started with the specification of functional and non-functional requirements, and ended with the implementation and validation of four separate application modules: Socio-Demographic Interview, Sample Information, Case Report Form, and Food-Frequency Questionnaire. We present both general and technical results, and our experience with the free and open-source software, Open Data Kit (ODK), which may be of interest for future related research projects, especially those on personalised cancer prevention carried out in low- and middle-income regions.
format Online
Article
Text
id pubmed-9502361
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher MDPI
record_format MEDLINE/PubMed
spelling pubmed-95023612022-09-24 Development of an Application for Electronic Retrieval of Patient and Sample Information in Latin American Regions with a High Incidence of Gallbladder Cancer Guinez-Molinos, Sergio Gonzalez Diaz, Jaime Barahona Ponce, Carol Lorenzo Bermejo, Justo J Pers Med Article The European–Latin American Consortium towards Eradication of Preventable Gallbladder Cancer, EULAT Eradicate GBC, is collecting high-quality data and samples in four Latin American countries with high gallbladder cancer incidence (Argentina, Bolivia, Chile, and Peru) to build a unique biorepository integrated into a tailored IT platform, to identify, validate, and functionally characterize new risk biomarkers, and to develop prediction models that integrate epidemiological and genetic–molecular risk factors. We decided to develop an application for electronic data collection to facilitate the retrieval of sociodemographic, clinical, lifestyle, dietary, and sample-related information from 15,000 Latin American study participants. The application EULAT eCollect will facilitate the work of study nurses, reduce time spent by participants, limit the use of paper and ink, minimize costs and errors associated with filling out written forms and subsequent digitisation, and support the monitoring of local recruitment rates and data quality. We describe in this article the design and implementation of the EULAT eCollect application, which started with the specification of functional and non-functional requirements, and ended with the implementation and validation of four separate application modules: Socio-Demographic Interview, Sample Information, Case Report Form, and Food-Frequency Questionnaire. We present both general and technical results, and our experience with the free and open-source software, Open Data Kit (ODK), which may be of interest for future related research projects, especially those on personalised cancer prevention carried out in low- and middle-income regions. MDPI 2022-09-09 /pmc/articles/PMC9502361/ /pubmed/36143261 http://dx.doi.org/10.3390/jpm12091476 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Guinez-Molinos, Sergio
Gonzalez Diaz, Jaime
Barahona Ponce, Carol
Lorenzo Bermejo, Justo
Development of an Application for Electronic Retrieval of Patient and Sample Information in Latin American Regions with a High Incidence of Gallbladder Cancer
title Development of an Application for Electronic Retrieval of Patient and Sample Information in Latin American Regions with a High Incidence of Gallbladder Cancer
title_full Development of an Application for Electronic Retrieval of Patient and Sample Information in Latin American Regions with a High Incidence of Gallbladder Cancer
title_fullStr Development of an Application for Electronic Retrieval of Patient and Sample Information in Latin American Regions with a High Incidence of Gallbladder Cancer
title_full_unstemmed Development of an Application for Electronic Retrieval of Patient and Sample Information in Latin American Regions with a High Incidence of Gallbladder Cancer
title_short Development of an Application for Electronic Retrieval of Patient and Sample Information in Latin American Regions with a High Incidence of Gallbladder Cancer
title_sort development of an application for electronic retrieval of patient and sample information in latin american regions with a high incidence of gallbladder cancer
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9502361/
https://www.ncbi.nlm.nih.gov/pubmed/36143261
http://dx.doi.org/10.3390/jpm12091476
work_keys_str_mv AT guinezmolinossergio developmentofanapplicationforelectronicretrievalofpatientandsampleinformationinlatinamericanregionswithahighincidenceofgallbladdercancer
AT gonzalezdiazjaime developmentofanapplicationforelectronicretrievalofpatientandsampleinformationinlatinamericanregionswithahighincidenceofgallbladdercancer
AT barahonaponcecarol developmentofanapplicationforelectronicretrievalofpatientandsampleinformationinlatinamericanregionswithahighincidenceofgallbladdercancer
AT lorenzobermejojusto developmentofanapplicationforelectronicretrievalofpatientandsampleinformationinlatinamericanregionswithahighincidenceofgallbladdercancer