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Adolescents’ and young people’s needs and preferences for support when living with a parent with life-threatening cancer: a grounded theory study

BACKGROUND: Living with a parent facing life-threatening illness and losing a mom or dad at a young age can cause both short- and long-term health problems. Without satisfactory support, adolescents’ and young people are at risk of developing low self-esteem, behavioural difficulties (e.g., anger an...

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Autores principales: Bergersen, Emily, Larsson, Maria, Lövgren, Malin, Olsson, Cecilia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9502590/
https://www.ncbi.nlm.nih.gov/pubmed/36138453
http://dx.doi.org/10.1186/s12904-022-01055-7
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author Bergersen, Emily
Larsson, Maria
Lövgren, Malin
Olsson, Cecilia
author_facet Bergersen, Emily
Larsson, Maria
Lövgren, Malin
Olsson, Cecilia
author_sort Bergersen, Emily
collection PubMed
description BACKGROUND: Living with a parent facing life-threatening illness and losing a mom or dad at a young age can cause both short- and long-term health problems. Without satisfactory support, adolescents’ and young people are at risk of developing low self-esteem, behavioural difficulties (e.g., anger and aggression), long-term illness or premature death caused by severe mental illness, substance abuse, self-harm and suicide attempts. The aim of this study was to explore adolescents’ and young people’s needs and preferences for support as they live with a parent with life-threatening cancer. METHODS: Qualitative interviews were conducted with 10 respondents (17–24 years) in Norway and Sweden. Data were analysed through grounded theory according to Charmaz. RESULTS: Adolescents’ and young peoples’ needs and preferences for support were described through the main category ‘To feel safe and secure and to be prepared’ and further broken down into five subcategories ‘Relationships in the immediate family—balancing support and protection’; ‘The social network—support and normalcy in a carefully selected group’; ‘Maintaining everyday life—challenges in school and working life’; ‘The right support at the right time—competence, trust and continuity in meeting health care professionals’; and ‘Support outside the home—an opportunity for full transparency’. CONCLUSION: Adolescents’ and young peoples’ preferences for support when living with a parent facing life-threatening illness are individual and unique, but they share a common need to feel safe and secure and to be prepared. Adolescents and young people express that they primarily want support from parents and friends, but they also want support from health care professionals, especially in situations when the ill parent becomes worse. Therefore, it is of the utmost importance for health care professionals to identify the most vulnerable adolescents and young people by mapping their social networks and paying extra attention to their needs for support when there is deterioration in the parent’s illness state. This study also highlights the importance for health care professionals to establish a good relationship with adolescents and young people to meet their needs and preferences for support. In addition, information and support are needed in a timely manner and adapted to the life-threatening ill parent’s illness state and individual’s needs and preferences to optimise preparedness.
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spelling pubmed-95025902022-09-24 Adolescents’ and young people’s needs and preferences for support when living with a parent with life-threatening cancer: a grounded theory study Bergersen, Emily Larsson, Maria Lövgren, Malin Olsson, Cecilia BMC Palliat Care Research BACKGROUND: Living with a parent facing life-threatening illness and losing a mom or dad at a young age can cause both short- and long-term health problems. Without satisfactory support, adolescents’ and young people are at risk of developing low self-esteem, behavioural difficulties (e.g., anger and aggression), long-term illness or premature death caused by severe mental illness, substance abuse, self-harm and suicide attempts. The aim of this study was to explore adolescents’ and young people’s needs and preferences for support as they live with a parent with life-threatening cancer. METHODS: Qualitative interviews were conducted with 10 respondents (17–24 years) in Norway and Sweden. Data were analysed through grounded theory according to Charmaz. RESULTS: Adolescents’ and young peoples’ needs and preferences for support were described through the main category ‘To feel safe and secure and to be prepared’ and further broken down into five subcategories ‘Relationships in the immediate family—balancing support and protection’; ‘The social network—support and normalcy in a carefully selected group’; ‘Maintaining everyday life—challenges in school and working life’; ‘The right support at the right time—competence, trust and continuity in meeting health care professionals’; and ‘Support outside the home—an opportunity for full transparency’. CONCLUSION: Adolescents’ and young peoples’ preferences for support when living with a parent facing life-threatening illness are individual and unique, but they share a common need to feel safe and secure and to be prepared. Adolescents and young people express that they primarily want support from parents and friends, but they also want support from health care professionals, especially in situations when the ill parent becomes worse. Therefore, it is of the utmost importance for health care professionals to identify the most vulnerable adolescents and young people by mapping their social networks and paying extra attention to their needs for support when there is deterioration in the parent’s illness state. This study also highlights the importance for health care professionals to establish a good relationship with adolescents and young people to meet their needs and preferences for support. In addition, information and support are needed in a timely manner and adapted to the life-threatening ill parent’s illness state and individual’s needs and preferences to optimise preparedness. BioMed Central 2022-09-22 /pmc/articles/PMC9502590/ /pubmed/36138453 http://dx.doi.org/10.1186/s12904-022-01055-7 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
Bergersen, Emily
Larsson, Maria
Lövgren, Malin
Olsson, Cecilia
Adolescents’ and young people’s needs and preferences for support when living with a parent with life-threatening cancer: a grounded theory study
title Adolescents’ and young people’s needs and preferences for support when living with a parent with life-threatening cancer: a grounded theory study
title_full Adolescents’ and young people’s needs and preferences for support when living with a parent with life-threatening cancer: a grounded theory study
title_fullStr Adolescents’ and young people’s needs and preferences for support when living with a parent with life-threatening cancer: a grounded theory study
title_full_unstemmed Adolescents’ and young people’s needs and preferences for support when living with a parent with life-threatening cancer: a grounded theory study
title_short Adolescents’ and young people’s needs and preferences for support when living with a parent with life-threatening cancer: a grounded theory study
title_sort adolescents’ and young people’s needs and preferences for support when living with a parent with life-threatening cancer: a grounded theory study
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9502590/
https://www.ncbi.nlm.nih.gov/pubmed/36138453
http://dx.doi.org/10.1186/s12904-022-01055-7
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