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Emergency department care transition barriers: A qualitative study of care partners of older adults with cognitive impairment

INTRODUCTION: After emergency department (ED) discharge, persons living with cognitive impairment (PLWCI) and their care partners are particularly at risk for adverse outcomes. We sought to identify the barriers experienced by care partners of PLWCI during ED discharge care transitions. METHODS: We...

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Autores principales: Gettel, Cameron J., Serina, Peter T., Uzamere, Ivie, Hernandez‐Bigos, Kizzy, Venkatesh, Arjun K., Cohen, Andrew B., Monin, Joan K., Feder, Shelli L., Fried, Terri R., Hwang, Ula
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9518973/
https://www.ncbi.nlm.nih.gov/pubmed/36204349
http://dx.doi.org/10.1002/trc2.12355
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author Gettel, Cameron J.
Serina, Peter T.
Uzamere, Ivie
Hernandez‐Bigos, Kizzy
Venkatesh, Arjun K.
Cohen, Andrew B.
Monin, Joan K.
Feder, Shelli L.
Fried, Terri R.
Hwang, Ula
author_facet Gettel, Cameron J.
Serina, Peter T.
Uzamere, Ivie
Hernandez‐Bigos, Kizzy
Venkatesh, Arjun K.
Cohen, Andrew B.
Monin, Joan K.
Feder, Shelli L.
Fried, Terri R.
Hwang, Ula
author_sort Gettel, Cameron J.
collection PubMed
description INTRODUCTION: After emergency department (ED) discharge, persons living with cognitive impairment (PLWCI) and their care partners are particularly at risk for adverse outcomes. We sought to identify the barriers experienced by care partners of PLWCI during ED discharge care transitions. METHODS: We conducted a qualitative study of 25 care partners of PLWCI discharged from four EDs. We used the validated 4AT and care partner‐completed AD8 screening tools, respectively, to exclude care partners of older adults with concern for delirium and include care partners of older adults with cognitive impairment. We conducted recorded, semi‐structured interviews using a standardized guide, and two team members coded and analyzed all professional transcriptions to identify emerging themes and representative quotations. RESULTS: Care partners’ mean age was 56.7 years, 80% were female, and 24% identified as African American. We identified four major barriers regarding ED discharge care transitions among care partners of PLWCI: (1) unique care considerations while in the ED setting impact the perceived success of the care transition, (2) poor communication and lack of care partner engagement was a commonplace during the ED discharge process, (3) care partners experienced challenges and additional responsibilities when aiding during acute illness and recovery phases, and (4) navigating the health care system after an ED encounter was perceived as difficult by care partners. DISCUSSION: Our findings demonstrate critical barriers faced during ED discharge care transitions among care partners of PLWCI. Findings from this work may inform the development of novel care partner‐reported outcome measures as well as ED discharge care transition interventions targeting care partners.
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spelling pubmed-95189732022-10-05 Emergency department care transition barriers: A qualitative study of care partners of older adults with cognitive impairment Gettel, Cameron J. Serina, Peter T. Uzamere, Ivie Hernandez‐Bigos, Kizzy Venkatesh, Arjun K. Cohen, Andrew B. Monin, Joan K. Feder, Shelli L. Fried, Terri R. Hwang, Ula Alzheimers Dement (N Y) Research Articles INTRODUCTION: After emergency department (ED) discharge, persons living with cognitive impairment (PLWCI) and their care partners are particularly at risk for adverse outcomes. We sought to identify the barriers experienced by care partners of PLWCI during ED discharge care transitions. METHODS: We conducted a qualitative study of 25 care partners of PLWCI discharged from four EDs. We used the validated 4AT and care partner‐completed AD8 screening tools, respectively, to exclude care partners of older adults with concern for delirium and include care partners of older adults with cognitive impairment. We conducted recorded, semi‐structured interviews using a standardized guide, and two team members coded and analyzed all professional transcriptions to identify emerging themes and representative quotations. RESULTS: Care partners’ mean age was 56.7 years, 80% were female, and 24% identified as African American. We identified four major barriers regarding ED discharge care transitions among care partners of PLWCI: (1) unique care considerations while in the ED setting impact the perceived success of the care transition, (2) poor communication and lack of care partner engagement was a commonplace during the ED discharge process, (3) care partners experienced challenges and additional responsibilities when aiding during acute illness and recovery phases, and (4) navigating the health care system after an ED encounter was perceived as difficult by care partners. DISCUSSION: Our findings demonstrate critical barriers faced during ED discharge care transitions among care partners of PLWCI. Findings from this work may inform the development of novel care partner‐reported outcome measures as well as ED discharge care transition interventions targeting care partners. John Wiley and Sons Inc. 2022-09-28 /pmc/articles/PMC9518973/ /pubmed/36204349 http://dx.doi.org/10.1002/trc2.12355 Text en © 2022 The Authors. Alzheimer's & Dementia: Translational Research & Clinical Interventions published by Wiley Periodicals LLC on behalf of Alzheimer's Association. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Articles
Gettel, Cameron J.
Serina, Peter T.
Uzamere, Ivie
Hernandez‐Bigos, Kizzy
Venkatesh, Arjun K.
Cohen, Andrew B.
Monin, Joan K.
Feder, Shelli L.
Fried, Terri R.
Hwang, Ula
Emergency department care transition barriers: A qualitative study of care partners of older adults with cognitive impairment
title Emergency department care transition barriers: A qualitative study of care partners of older adults with cognitive impairment
title_full Emergency department care transition barriers: A qualitative study of care partners of older adults with cognitive impairment
title_fullStr Emergency department care transition barriers: A qualitative study of care partners of older adults with cognitive impairment
title_full_unstemmed Emergency department care transition barriers: A qualitative study of care partners of older adults with cognitive impairment
title_short Emergency department care transition barriers: A qualitative study of care partners of older adults with cognitive impairment
title_sort emergency department care transition barriers: a qualitative study of care partners of older adults with cognitive impairment
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9518973/
https://www.ncbi.nlm.nih.gov/pubmed/36204349
http://dx.doi.org/10.1002/trc2.12355
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