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Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study
BACKGROUND: The COVID‐19 pandemic poses risks to the quality of life (QoL) of relatives of individuals with intellectual disabilities. This paper investigates relatives' QoL and associated risk and buffering factors before and during the pandemic. METHOD: Surveys were administered to three samp...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Blackwell Publishing Ltd
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9539069/ https://www.ncbi.nlm.nih.gov/pubmed/36134473 http://dx.doi.org/10.1111/jar.13035 |
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author | Zonneveld, Ellen van Schelven, Femke Boeije, Hennie |
author_facet | Zonneveld, Ellen van Schelven, Femke Boeije, Hennie |
author_sort | Zonneveld, Ellen |
collection | PubMed |
description | BACKGROUND: The COVID‐19 pandemic poses risks to the quality of life (QoL) of relatives of individuals with intellectual disabilities. This paper investigates relatives' QoL and associated risk and buffering factors before and during the pandemic. METHOD: Surveys were administered to three samples of relatives in the Netherlands in 2019 (N = 105) and during the first waves of COVID‐19 in June (N = 207) and October 2020 (N = 332). Associations between QoL and care burden, care competence, social support, and resilience, and changes over time were analysed using (logistic) regressions. RESULTS: No significant changes in overall QoL nor its domains were found. Care burden was negatively associated with QoL and increased during the pandemic. Care competence was lower than in 2019. Competence, social support, and resilience were positively associated with QoL. CONCLUSIONS: Although relatives' QoL remained stable, the pandemic poses non‐negligible risks to their wellbeing. It is, therefore, crucial to provide relatives with adequate support. |
format | Online Article Text |
id | pubmed-9539069 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Blackwell Publishing Ltd |
record_format | MEDLINE/PubMed |
spelling | pubmed-95390692022-10-11 Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study Zonneveld, Ellen van Schelven, Femke Boeije, Hennie J Appl Res Intellect Disabil Original Articles BACKGROUND: The COVID‐19 pandemic poses risks to the quality of life (QoL) of relatives of individuals with intellectual disabilities. This paper investigates relatives' QoL and associated risk and buffering factors before and during the pandemic. METHOD: Surveys were administered to three samples of relatives in the Netherlands in 2019 (N = 105) and during the first waves of COVID‐19 in June (N = 207) and October 2020 (N = 332). Associations between QoL and care burden, care competence, social support, and resilience, and changes over time were analysed using (logistic) regressions. RESULTS: No significant changes in overall QoL nor its domains were found. Care burden was negatively associated with QoL and increased during the pandemic. Care competence was lower than in 2019. Competence, social support, and resilience were positively associated with QoL. CONCLUSIONS: Although relatives' QoL remained stable, the pandemic poses non‐negligible risks to their wellbeing. It is, therefore, crucial to provide relatives with adequate support. Blackwell Publishing Ltd 2022-09-22 /pmc/articles/PMC9539069/ /pubmed/36134473 http://dx.doi.org/10.1111/jar.13035 Text en © 2022 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made. |
spellingShingle | Original Articles Zonneveld, Ellen van Schelven, Femke Boeije, Hennie Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study |
title | Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study |
title_full | Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study |
title_fullStr | Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study |
title_full_unstemmed | Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study |
title_short | Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study |
title_sort | effects of the covid‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: a longitudinal study |
topic | Original Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9539069/ https://www.ncbi.nlm.nih.gov/pubmed/36134473 http://dx.doi.org/10.1111/jar.13035 |
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