Cargando…

Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study

BACKGROUND: The COVID‐19 pandemic poses risks to the quality of life (QoL) of relatives of individuals with intellectual disabilities. This paper investigates relatives' QoL and associated risk and buffering factors before and during the pandemic. METHOD: Surveys were administered to three samp...

Descripción completa

Detalles Bibliográficos
Autores principales: Zonneveld, Ellen, van Schelven, Femke, Boeije, Hennie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Blackwell Publishing Ltd 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9539069/
https://www.ncbi.nlm.nih.gov/pubmed/36134473
http://dx.doi.org/10.1111/jar.13035
_version_ 1784803427991158784
author Zonneveld, Ellen
van Schelven, Femke
Boeije, Hennie
author_facet Zonneveld, Ellen
van Schelven, Femke
Boeije, Hennie
author_sort Zonneveld, Ellen
collection PubMed
description BACKGROUND: The COVID‐19 pandemic poses risks to the quality of life (QoL) of relatives of individuals with intellectual disabilities. This paper investigates relatives' QoL and associated risk and buffering factors before and during the pandemic. METHOD: Surveys were administered to three samples of relatives in the Netherlands in 2019 (N = 105) and during the first waves of COVID‐19 in June (N = 207) and October 2020 (N = 332). Associations between QoL and care burden, care competence, social support, and resilience, and changes over time were analysed using (logistic) regressions. RESULTS: No significant changes in overall QoL nor its domains were found. Care burden was negatively associated with QoL and increased during the pandemic. Care competence was lower than in 2019. Competence, social support, and resilience were positively associated with QoL. CONCLUSIONS: Although relatives' QoL remained stable, the pandemic poses non‐negligible risks to their wellbeing. It is, therefore, crucial to provide relatives with adequate support.
format Online
Article
Text
id pubmed-9539069
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher Blackwell Publishing Ltd
record_format MEDLINE/PubMed
spelling pubmed-95390692022-10-11 Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study Zonneveld, Ellen van Schelven, Femke Boeije, Hennie J Appl Res Intellect Disabil Original Articles BACKGROUND: The COVID‐19 pandemic poses risks to the quality of life (QoL) of relatives of individuals with intellectual disabilities. This paper investigates relatives' QoL and associated risk and buffering factors before and during the pandemic. METHOD: Surveys were administered to three samples of relatives in the Netherlands in 2019 (N = 105) and during the first waves of COVID‐19 in June (N = 207) and October 2020 (N = 332). Associations between QoL and care burden, care competence, social support, and resilience, and changes over time were analysed using (logistic) regressions. RESULTS: No significant changes in overall QoL nor its domains were found. Care burden was negatively associated with QoL and increased during the pandemic. Care competence was lower than in 2019. Competence, social support, and resilience were positively associated with QoL. CONCLUSIONS: Although relatives' QoL remained stable, the pandemic poses non‐negligible risks to their wellbeing. It is, therefore, crucial to provide relatives with adequate support. Blackwell Publishing Ltd 2022-09-22 /pmc/articles/PMC9539069/ /pubmed/36134473 http://dx.doi.org/10.1111/jar.13035 Text en © 2022 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Original Articles
Zonneveld, Ellen
van Schelven, Femke
Boeije, Hennie
Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study
title Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study
title_full Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study
title_fullStr Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study
title_full_unstemmed Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study
title_short Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study
title_sort effects of the covid‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: a longitudinal study
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9539069/
https://www.ncbi.nlm.nih.gov/pubmed/36134473
http://dx.doi.org/10.1111/jar.13035
work_keys_str_mv AT zonneveldellen effectsofthecovid19pandemiconqualityoflifeamongrelativesofindividualswithintellectualdisabilitiesalongitudinalstudy
AT vanschelvenfemke effectsofthecovid19pandemiconqualityoflifeamongrelativesofindividualswithintellectualdisabilitiesalongitudinalstudy
AT boeijehennie effectsofthecovid19pandemiconqualityoflifeamongrelativesofindividualswithintellectualdisabilitiesalongitudinalstudy