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Profiles of French young carers taking part in an arts and respite care program

Young carers (YCs) are children and adolescents who provide meaningful, regular support to a relative with a health problem. In France, only one programme exists to support them: the arts and respite care programme of the national association JADE. The aim of this study is to describe the profiles o...

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Autores principales: Dorard, Géraldine, Vioulac, Christel, Mathieu, Sasha, Ellien, Françoise, Bourgeois, Amarantha, Untas, Aurélie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9539863/
https://www.ncbi.nlm.nih.gov/pubmed/35199897
http://dx.doi.org/10.1111/hsc.13769
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author Dorard, Géraldine
Vioulac, Christel
Mathieu, Sasha
Ellien, Françoise
Bourgeois, Amarantha
Untas, Aurélie
author_facet Dorard, Géraldine
Vioulac, Christel
Mathieu, Sasha
Ellien, Françoise
Bourgeois, Amarantha
Untas, Aurélie
author_sort Dorard, Géraldine
collection PubMed
description Young carers (YCs) are children and adolescents who provide meaningful, regular support to a relative with a health problem. In France, only one programme exists to support them: the arts and respite care programme of the national association JADE. The aim of this study is to describe the profiles of YCs who had participated in this programme and to evaluate their expectations, opinions, and the evolution of their quality of life over the course of the programme. All YCs enrolled in the programme between 2017 and 2020 were invited to participate in the study. Upon arrival, the youths completed a self‐report questionnaire addressing their sociodemographic and family situations, their caregiving activities, their quality of life, and their expectations for the programme. At the end of each week, a questionnaire evaluating their opinion of the programme and their quality of life was completed. A hundred and seventeen children participated (average age: 12; 71.8% girls). Most YCs provided support to a parent or sibling with a chronic somatic disease. The support mainly concerned doing domestic tasks and providing emotional support for the relative and was significantly higher among adolescents. Their expectations were mainly about getting respite and meeting other young people. Their levels of satisfaction were high and aligned with their expectations. Their quality of life increased significantly. French YCs in this programme had characteristics comparable to those observed internationally. The results underline the importance of respite and the benefits such a programme can bring to YCs.
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spelling pubmed-95398632022-10-14 Profiles of French young carers taking part in an arts and respite care program Dorard, Géraldine Vioulac, Christel Mathieu, Sasha Ellien, Françoise Bourgeois, Amarantha Untas, Aurélie Health Soc Care Community Original Articles Young carers (YCs) are children and adolescents who provide meaningful, regular support to a relative with a health problem. In France, only one programme exists to support them: the arts and respite care programme of the national association JADE. The aim of this study is to describe the profiles of YCs who had participated in this programme and to evaluate their expectations, opinions, and the evolution of their quality of life over the course of the programme. All YCs enrolled in the programme between 2017 and 2020 were invited to participate in the study. Upon arrival, the youths completed a self‐report questionnaire addressing their sociodemographic and family situations, their caregiving activities, their quality of life, and their expectations for the programme. At the end of each week, a questionnaire evaluating their opinion of the programme and their quality of life was completed. A hundred and seventeen children participated (average age: 12; 71.8% girls). Most YCs provided support to a parent or sibling with a chronic somatic disease. The support mainly concerned doing domestic tasks and providing emotional support for the relative and was significantly higher among adolescents. Their expectations were mainly about getting respite and meeting other young people. Their levels of satisfaction were high and aligned with their expectations. Their quality of life increased significantly. French YCs in this programme had characteristics comparable to those observed internationally. The results underline the importance of respite and the benefits such a programme can bring to YCs. John Wiley and Sons Inc. 2022-02-24 2022-09 /pmc/articles/PMC9539863/ /pubmed/35199897 http://dx.doi.org/10.1111/hsc.13769 Text en © 2022 The Authors. Health and Social Care in the Community published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Original Articles
Dorard, Géraldine
Vioulac, Christel
Mathieu, Sasha
Ellien, Françoise
Bourgeois, Amarantha
Untas, Aurélie
Profiles of French young carers taking part in an arts and respite care program
title Profiles of French young carers taking part in an arts and respite care program
title_full Profiles of French young carers taking part in an arts and respite care program
title_fullStr Profiles of French young carers taking part in an arts and respite care program
title_full_unstemmed Profiles of French young carers taking part in an arts and respite care program
title_short Profiles of French young carers taking part in an arts and respite care program
title_sort profiles of french young carers taking part in an arts and respite care program
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9539863/
https://www.ncbi.nlm.nih.gov/pubmed/35199897
http://dx.doi.org/10.1111/hsc.13769
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