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Being affiliated to a cystic fibrosis centre is important for parents' everyday life

AIM: Newborn screening represents a paradigm shift in the treatment of children with cystic fibrosis. This study aimed to explore parents' everyday life experiences from the time of diagnosis and in the following months. METHODS: Narrative interviews were conducted at Aarhus University Hospital...

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Detalles Bibliográficos
Autores principales:	Nielsen, Pia Bonde, Olesen, Hanne Vebert, Jensen, Claus Sixtus
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2022
Materias:	Original Articles & Brief Reports
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9541786/ https://www.ncbi.nlm.nih.gov/pubmed/35748537 http://dx.doi.org/10.1111/apa.16466

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