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Validation of patient‐reported vaso‐occlusive crisis day as an endpoint in sickle cell disease studies
Individuals with sickle cell disease (SCD) experience vaso‐occlusive crises (VOC). Historically, VOC episodes have been assessed through medical utilization, thereby excluding events managed at home. In order to validate a daily patient‐reported outcome for patients with SCD to accurately report the...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9542396/ https://www.ncbi.nlm.nih.gov/pubmed/35569114 http://dx.doi.org/10.1111/ejh.13790 |