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Validation of patient‐reported vaso‐occlusive crisis day as an endpoint in sickle cell disease studies

Individuals with sickle cell disease (SCD) experience vaso‐occlusive crises (VOC). Historically, VOC episodes have been assessed through medical utilization, thereby excluding events managed at home. In order to validate a daily patient‐reported outcome for patients with SCD to accurately report the...

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Detalles Bibliográficos
Autores principales: Coyne, Karin S., Currie, Brooke M., Callaghan, Michael, Wyrwich, Kathleen W., Pease, Sheryl, Baker, Christine L., Arkin, Steven, Pittman, Debra D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9542396/
https://www.ncbi.nlm.nih.gov/pubmed/35569114
http://dx.doi.org/10.1111/ejh.13790