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A Delphi‐based approach to developing the contents of an online resource, Care Assist, for male caregivers of women with breast cancer

OBJECTIVE: Informal male caregivers of women with breast cancer (BC) have significant psychological, emotional, and social burdens that are inadequately addressed by current face‐to‐face interventions. Online interventions overcome barriers that limit engagement with face‐to‐face interventions. This...

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Autores principales: Goria, Sandra, Girgis, Afaf, Shaw, Joanne, Przezdziecki, Astrid, Levesque, Janelle, Bamgboje‐Ayodele, Adeola
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9543824/
https://www.ncbi.nlm.nih.gov/pubmed/35575006
http://dx.doi.org/10.1002/pon.5962
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author Goria, Sandra
Girgis, Afaf
Shaw, Joanne
Przezdziecki, Astrid
Levesque, Janelle
Bamgboje‐Ayodele, Adeola
author_facet Goria, Sandra
Girgis, Afaf
Shaw, Joanne
Przezdziecki, Astrid
Levesque, Janelle
Bamgboje‐Ayodele, Adeola
author_sort Goria, Sandra
collection PubMed
description OBJECTIVE: Informal male caregivers of women with breast cancer (BC) have significant psychological, emotional, and social burdens that are inadequately addressed by current face‐to‐face interventions. Online interventions overcome barriers that limit engagement with face‐to‐face interventions. This study aimed to develop the contents of Care Assist, an online supportive care resource for male caregivers of BC patients, through expert consensus. METHODS: A Delphi study comprising two survey rounds and an expert consultation was conducted. In Round 1, experts in BC care rated the importance of 25 content items. In Round 2, they re‐rated content items that failed to reach consensus (i.e. 80% agreement) in Round 1 or were newly developed. Free‐text responses were also collected. During expert consultation, the resource was reviewed and revised for clarity. Iterative refinement followed all rounds. Quantitative data was analysed descriptively, and qualitative data was analysed using content analysis. RESULTS: Twenty‐two experts participated and reached consensus on 96% of items, with 217 comments provided on: (a) the perceived benefits of Care Assist to caregivers and care recipients, (b) recommendations of newly suggested content items, wording, and use of external links, and (c) concerns regarding information overload and need for tailoring. The expert consultation comments focused on clarifying scope, wording, and information tailoring. CONCLUSION: The rigorous Delphi process resulted in the content for a comprehensive online supportive care intervention for male caregivers. Information overload can be minimised through self‐identification of needs and utilisation of eHealth to personalise the resource for the heterogeneous male caregiver population.
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spelling pubmed-95438242022-10-14 A Delphi‐based approach to developing the contents of an online resource, Care Assist, for male caregivers of women with breast cancer Goria, Sandra Girgis, Afaf Shaw, Joanne Przezdziecki, Astrid Levesque, Janelle Bamgboje‐Ayodele, Adeola Psychooncology Original Articles OBJECTIVE: Informal male caregivers of women with breast cancer (BC) have significant psychological, emotional, and social burdens that are inadequately addressed by current face‐to‐face interventions. Online interventions overcome barriers that limit engagement with face‐to‐face interventions. This study aimed to develop the contents of Care Assist, an online supportive care resource for male caregivers of BC patients, through expert consensus. METHODS: A Delphi study comprising two survey rounds and an expert consultation was conducted. In Round 1, experts in BC care rated the importance of 25 content items. In Round 2, they re‐rated content items that failed to reach consensus (i.e. 80% agreement) in Round 1 or were newly developed. Free‐text responses were also collected. During expert consultation, the resource was reviewed and revised for clarity. Iterative refinement followed all rounds. Quantitative data was analysed descriptively, and qualitative data was analysed using content analysis. RESULTS: Twenty‐two experts participated and reached consensus on 96% of items, with 217 comments provided on: (a) the perceived benefits of Care Assist to caregivers and care recipients, (b) recommendations of newly suggested content items, wording, and use of external links, and (c) concerns regarding information overload and need for tailoring. The expert consultation comments focused on clarifying scope, wording, and information tailoring. CONCLUSION: The rigorous Delphi process resulted in the content for a comprehensive online supportive care intervention for male caregivers. Information overload can be minimised through self‐identification of needs and utilisation of eHealth to personalise the resource for the heterogeneous male caregiver population. John Wiley and Sons Inc. 2022-05-23 2022-09 /pmc/articles/PMC9543824/ /pubmed/35575006 http://dx.doi.org/10.1002/pon.5962 Text en © 2022 The Authors. Psycho-Oncology published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
spellingShingle Original Articles
Goria, Sandra
Girgis, Afaf
Shaw, Joanne
Przezdziecki, Astrid
Levesque, Janelle
Bamgboje‐Ayodele, Adeola
A Delphi‐based approach to developing the contents of an online resource, Care Assist, for male caregivers of women with breast cancer
title A Delphi‐based approach to developing the contents of an online resource, Care Assist, for male caregivers of women with breast cancer
title_full A Delphi‐based approach to developing the contents of an online resource, Care Assist, for male caregivers of women with breast cancer
title_fullStr A Delphi‐based approach to developing the contents of an online resource, Care Assist, for male caregivers of women with breast cancer
title_full_unstemmed A Delphi‐based approach to developing the contents of an online resource, Care Assist, for male caregivers of women with breast cancer
title_short A Delphi‐based approach to developing the contents of an online resource, Care Assist, for male caregivers of women with breast cancer
title_sort delphi‐based approach to developing the contents of an online resource, care assist, for male caregivers of women with breast cancer
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9543824/
https://www.ncbi.nlm.nih.gov/pubmed/35575006
http://dx.doi.org/10.1002/pon.5962
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