Cargando…

“Walking a tightrope”: A grounded theory approach to informal caregiving for amyotrophic lateral sclerosis

Informal caregivers, mainly family members and friends, provide supportive and palliative care for people with amyotrophic lateral sclerosis (ALS) during their terminal disease course. Informal caregiving for people with ALS continues towards palliative care and end‐of‐life care with the progression...

Descripción completa

Detalles Bibliográficos
Autores principales:	Poppe, Christopher, Verwey, Martine, Wangmo, Tenzin
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2021
Materias:	Original Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9545073/ https://www.ncbi.nlm.nih.gov/pubmed/34719073 http://dx.doi.org/10.1111/hsc.13625

Ejemplares similares

Supportive needs of informal caregivers of people with amyotrophic lateral sclerosis in Switzerland: a qualitative study
por: Poppe, Christopher, et al.
Publicado: (2022)

Walking the tightrope
por: Orloff, Erica, et al.
Publicado: (2004)

Needs of informal caregivers across the caregiving course in amyotrophic lateral sclerosis: a qualitative analysis
por: Galvin, Miriam, et al.
Publicado: (2018)

Informal Caregiving in Amyotrophic Lateral Sclerosis (ALS): A High Caregiver Burden and Drastic Consequences on Caregivers’ Lives
por: Schischlevskij, Pavel, et al.
Publicado: (2021)

Lessons from Walking the Medical Distancing Tightrope
por: Jenkins, Ian, et al.
Publicado: (2020)

Negotiating the Beginning of Care: A Grounded Theory Study of Health Services for Amyotrophic Lateral Sclerosis
por: Alquati, Sara, et al.
Publicado: (2022)

Informal Caregivers in Amyotrophic Lateral Sclerosis: A Multi-Centre, Exploratory Study of Burden and Difficulties
por: Conroy, Éilís, et al.
Publicado: (2021)

Caregiver burden in amyotrophic lateral sclerosis: A systematic review
por: de Wit, Jessica, et al.
Publicado: (2017)

Tightrope walking: A new technique in ankle syndesmosis fixation
por: Petscavage, Jonelle M., et al.
Publicado: (2015)

Walking the Tightrope: Counterproductive Work Behavior as Compensation for Citizenship Demands
por: Spanouli, Andromachi, et al.
Publicado: (2016)

Walking the Tightrope: A Proposed Model of Chronic Pain and Stress
por: Lunde, Claire E., et al.
Publicado: (2020)

Older patients with Hodgkin Lymphoma: Walking the tightrope of efficacy and toxicity
por: Barrett, Aisling, et al.
Publicado: (2023)

Burden and benefit—A mixed methods study of informal Amyotrophic Lateral Sclerosis caregivers in Ireland and the Netherlands
por: Kennedy, Polly, et al.
Publicado: (2022)

Death Anxiety and Depression in Amyotrophic Lateral Sclerosis Patients and Their Primary Caregivers
por: Grabler, Marvin R., et al.
Publicado: (2018)

Family Caregiver Suffering in Caring for Patients with Amyotrophic Lateral Sclerosis in Korea
por: Oh, Juyeon, et al.
Publicado: (2021)

Preventive measures for accompanying caregivers of children in paediatric health care during the COVID-19 pandemic—walking an ethical tightrope
por: Schmid, Hanna, et al.
Publicado: (2021)

Amyotrophic lateral sclerosis
por: Wijesekera, Lokesh C, et al.
Publicado: (2009)

RNA-binding proteins as a common ground for neurodegeneration and inflammation in amyotrophic lateral sclerosis and multiple sclerosis
por: Acosta-Galeana, Isabel, et al.
Publicado: (2023)

Monitoring of approved studies: A difficult tightrope walk by Ethics Committees
por: Davis, Sanish
Publicado: (2018)

COVID-19 herd immunity strategies: walking an elusive and dangerous tightrope
por: Brett, Tobias S, et al.
Publicado: (2020)

Walking the tightrope: how rebels “do” quality of care in healthcare organizations
por: Wallenburg, Iris, et al.
Publicado: (2019)

Walking the Tightrope: Reevaluating science communication in the era of COVID-19 vaccines
por: Dudley, Matthew Z., et al.
Publicado: (2021)

Optimizing raffinose family oligosaccharides content in plants: A tightrope walk
por: Sanyal, Rajarshi, et al.
Publicado: (2023)

Laryngeal dysfunction in Amyotrophic Lateral Sclerosis: a review and case report
por: Watts, Christopher R, et al.
Publicado: (2001)

Ecosystem approach to harvesting in the Arctic: Walking the tightrope between exploitation and conservation in the Barents Sea
por: Heath, Michael R., et al.
Publicado: (2021)

The tightrope dancer /
por: Layton, Irving, 1912-2006
Publicado: (1978)

The 6-min walk test as a new outcome measure in Amyotrophic lateral sclerosis
por: Russo, Massimo, et al.
Publicado: (2020)

Evaluation of decision-making capacity in patients with dementia: challenges and recommendations from a secondary analysis of qualitative interviews
por: Poppe, Christopher, et al.
Publicado: (2020)

Walking the Tightrope of Job Demands and Resources: Leveraging Work Engagement to Counter Turnover Intentions of Information Technology Professionals
por: Van Heerden, Jana, et al.
Publicado: (2022)

From first symptoms to diagnosis of amyotrophic lateral sclerosis: perspectives of an Irish informal caregiver cohort—a thematic analysis
por: Galvin, Miriam, et al.
Publicado: (2017)

Walking the tightrope of bioavailability: growth dynamics of PAH degraders on vapour‐phase PAH
por: Hanzel, Joanna, et al.
Publicado: (2012)

Amyotrophic lateral sclerosis and neuroregeneration
Publicado: (2012)

Mimickers of Amyotrophic Lateral Sclerosis
por: Dubey, Ayush, et al.
Publicado: (2019)

Destination Amyotrophic Lateral Sclerosis
por: Keon, Matt, et al.
Publicado: (2021)

Prionoids in amyotrophic lateral sclerosis
por: Gosset, Philippe, et al.
Publicado: (2022)

Amyotrophic lateral sclerosis and cerebellum
por: Kabiljo, Renata, et al.
Publicado: (2022)

Dysautonomia in Amyotrophic Lateral Sclerosis
por: Oprisan, Alexandra L., et al.
Publicado: (2023)

Amyotrophic lateral sclerosis patients’ and caregivers' distress and loneliness during COVID-19 lockdown
por: Consonni, Monica, et al.
Publicado: (2020)

Prediction of caregiver quality of life in amyotrophic lateral sclerosis using explainable machine learning
por: Antoniadi, Anna Markella, et al.
Publicado: (2021)

Juvenile Amyotrophic Lateral Sclerosis: A Review
por: Lehky, Tanya, et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_2j47s2mjd2v75lcvich23lh2vh