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The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation

INTRODUCTION: Fibromyalgia guidelines recommend multi‐modal, non‐pharmacological interventions but there is limited evidence on the optimal programme. The Fibromyalgia Active Management and Exercise programme (FAME) aimed to improve function and quality of life. It consisted of 12 sessions delivered...

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Autores principales: McIlroy, Suzanne, Vaughan, Bethany, Crowe, Heather, Bearne, Lindsay
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9545101/
https://www.ncbi.nlm.nih.gov/pubmed/35837789
http://dx.doi.org/10.1002/msc.1672
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author McIlroy, Suzanne
Vaughan, Bethany
Crowe, Heather
Bearne, Lindsay
author_facet McIlroy, Suzanne
Vaughan, Bethany
Crowe, Heather
Bearne, Lindsay
author_sort McIlroy, Suzanne
collection PubMed
description INTRODUCTION: Fibromyalgia guidelines recommend multi‐modal, non‐pharmacological interventions but there is limited evidence on the optimal programme. The Fibromyalgia Active Management and Exercise programme (FAME) aimed to improve function and quality of life. It consisted of 12 sessions delivered by a multidisciplinary team and incorporated education, exercise, Cognitive Behavioural Therapy and mindfulness approaches. This qualitative service evaluation explored the experience and acceptability of FAME from the perspective of the patients' and healthcare practitioners' (HCP). METHODS: All patients and HCP involved in the first FAME programme were invited to attend either one audio‐recorded focus group or an individual semi‐structured interview. Topic guides were developed a priori. Data were transcribed verbatim and analysed thematically. RESULTS: Thirteen participants (six HCP (three physiotherapists, two nurses, one psychologist)) and seven patients (mean age 46 (7.5) years, all female,) were enroled. FAME was acceptable to HCP participants but not to all patient participants. Where patient participants understood and anticipated the aims of FAME, the programme was found to be acceptable. Whereas, patient participants who did not fully understand the aims of the programme reported lower acceptability. Three themes were generated: expectations and preparation for FAME, the value of social support, and FAME as a learning opportunity. The themes could be explained by five constructs of the Theoretical Framework of Acceptability. CONCLUSION: FAME was acceptable to HCPs but not to all patient participants. Patient and HCP participants valued social support and regarded this as central to their learning. Further adaptation of FAME is required to optimise acceptability.
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spelling pubmed-95451012022-10-14 The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation McIlroy, Suzanne Vaughan, Bethany Crowe, Heather Bearne, Lindsay Musculoskeletal Care Service Evaluation INTRODUCTION: Fibromyalgia guidelines recommend multi‐modal, non‐pharmacological interventions but there is limited evidence on the optimal programme. The Fibromyalgia Active Management and Exercise programme (FAME) aimed to improve function and quality of life. It consisted of 12 sessions delivered by a multidisciplinary team and incorporated education, exercise, Cognitive Behavioural Therapy and mindfulness approaches. This qualitative service evaluation explored the experience and acceptability of FAME from the perspective of the patients' and healthcare practitioners' (HCP). METHODS: All patients and HCP involved in the first FAME programme were invited to attend either one audio‐recorded focus group or an individual semi‐structured interview. Topic guides were developed a priori. Data were transcribed verbatim and analysed thematically. RESULTS: Thirteen participants (six HCP (three physiotherapists, two nurses, one psychologist)) and seven patients (mean age 46 (7.5) years, all female,) were enroled. FAME was acceptable to HCP participants but not to all patient participants. Where patient participants understood and anticipated the aims of FAME, the programme was found to be acceptable. Whereas, patient participants who did not fully understand the aims of the programme reported lower acceptability. Three themes were generated: expectations and preparation for FAME, the value of social support, and FAME as a learning opportunity. The themes could be explained by five constructs of the Theoretical Framework of Acceptability. CONCLUSION: FAME was acceptable to HCPs but not to all patient participants. Patient and HCP participants valued social support and regarded this as central to their learning. Further adaptation of FAME is required to optimise acceptability. John Wiley and Sons Inc. 2022-07-15 2022-09 /pmc/articles/PMC9545101/ /pubmed/35837789 http://dx.doi.org/10.1002/msc.1672 Text en © 2022 The Authors. Musculoskeletal Care published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Service Evaluation
McIlroy, Suzanne
Vaughan, Bethany
Crowe, Heather
Bearne, Lindsay
The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation
title The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation
title_full The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation
title_fullStr The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation
title_full_unstemmed The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation
title_short The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation
title_sort experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: a qualitative service evaluation
topic Service Evaluation
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9545101/
https://www.ncbi.nlm.nih.gov/pubmed/35837789
http://dx.doi.org/10.1002/msc.1672
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