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The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation
INTRODUCTION: Fibromyalgia guidelines recommend multi‐modal, non‐pharmacological interventions but there is limited evidence on the optimal programme. The Fibromyalgia Active Management and Exercise programme (FAME) aimed to improve function and quality of life. It consisted of 12 sessions delivered...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9545101/ https://www.ncbi.nlm.nih.gov/pubmed/35837789 http://dx.doi.org/10.1002/msc.1672 |
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author | McIlroy, Suzanne Vaughan, Bethany Crowe, Heather Bearne, Lindsay |
author_facet | McIlroy, Suzanne Vaughan, Bethany Crowe, Heather Bearne, Lindsay |
author_sort | McIlroy, Suzanne |
collection | PubMed |
description | INTRODUCTION: Fibromyalgia guidelines recommend multi‐modal, non‐pharmacological interventions but there is limited evidence on the optimal programme. The Fibromyalgia Active Management and Exercise programme (FAME) aimed to improve function and quality of life. It consisted of 12 sessions delivered by a multidisciplinary team and incorporated education, exercise, Cognitive Behavioural Therapy and mindfulness approaches. This qualitative service evaluation explored the experience and acceptability of FAME from the perspective of the patients' and healthcare practitioners' (HCP). METHODS: All patients and HCP involved in the first FAME programme were invited to attend either one audio‐recorded focus group or an individual semi‐structured interview. Topic guides were developed a priori. Data were transcribed verbatim and analysed thematically. RESULTS: Thirteen participants (six HCP (three physiotherapists, two nurses, one psychologist)) and seven patients (mean age 46 (7.5) years, all female,) were enroled. FAME was acceptable to HCP participants but not to all patient participants. Where patient participants understood and anticipated the aims of FAME, the programme was found to be acceptable. Whereas, patient participants who did not fully understand the aims of the programme reported lower acceptability. Three themes were generated: expectations and preparation for FAME, the value of social support, and FAME as a learning opportunity. The themes could be explained by five constructs of the Theoretical Framework of Acceptability. CONCLUSION: FAME was acceptable to HCPs but not to all patient participants. Patient and HCP participants valued social support and regarded this as central to their learning. Further adaptation of FAME is required to optimise acceptability. |
format | Online Article Text |
id | pubmed-9545101 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-95451012022-10-14 The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation McIlroy, Suzanne Vaughan, Bethany Crowe, Heather Bearne, Lindsay Musculoskeletal Care Service Evaluation INTRODUCTION: Fibromyalgia guidelines recommend multi‐modal, non‐pharmacological interventions but there is limited evidence on the optimal programme. The Fibromyalgia Active Management and Exercise programme (FAME) aimed to improve function and quality of life. It consisted of 12 sessions delivered by a multidisciplinary team and incorporated education, exercise, Cognitive Behavioural Therapy and mindfulness approaches. This qualitative service evaluation explored the experience and acceptability of FAME from the perspective of the patients' and healthcare practitioners' (HCP). METHODS: All patients and HCP involved in the first FAME programme were invited to attend either one audio‐recorded focus group or an individual semi‐structured interview. Topic guides were developed a priori. Data were transcribed verbatim and analysed thematically. RESULTS: Thirteen participants (six HCP (three physiotherapists, two nurses, one psychologist)) and seven patients (mean age 46 (7.5) years, all female,) were enroled. FAME was acceptable to HCP participants but not to all patient participants. Where patient participants understood and anticipated the aims of FAME, the programme was found to be acceptable. Whereas, patient participants who did not fully understand the aims of the programme reported lower acceptability. Three themes were generated: expectations and preparation for FAME, the value of social support, and FAME as a learning opportunity. The themes could be explained by five constructs of the Theoretical Framework of Acceptability. CONCLUSION: FAME was acceptable to HCPs but not to all patient participants. Patient and HCP participants valued social support and regarded this as central to their learning. Further adaptation of FAME is required to optimise acceptability. John Wiley and Sons Inc. 2022-07-15 2022-09 /pmc/articles/PMC9545101/ /pubmed/35837789 http://dx.doi.org/10.1002/msc.1672 Text en © 2022 The Authors. Musculoskeletal Care published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Service Evaluation McIlroy, Suzanne Vaughan, Bethany Crowe, Heather Bearne, Lindsay The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation |
title | The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation |
title_full | The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation |
title_fullStr | The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation |
title_full_unstemmed | The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation |
title_short | The experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: A qualitative service evaluation |
title_sort | experiences and acceptability of a novel multimodal programme for the management of fibromyalgia: a qualitative service evaluation |
topic | Service Evaluation |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9545101/ https://www.ncbi.nlm.nih.gov/pubmed/35837789 http://dx.doi.org/10.1002/msc.1672 |
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