Cargando…

Family's role in long‐term care—A qualitative study of Finnish family members' experiences on supporting the functional ability of an older relative

Family members are important providers of care for older people. In residential long‐term care, however, their role is not always simple and straightforward: responsibility for care provision rests officially with staff members, but in practice family members often contribute to providing care. The...

Descripción completa

Detalles Bibliográficos
Autores principales: Lehto‐Niskala, Vilhelmiina, Jolanki, Outi, Jylhä, Marja
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9545356/
https://www.ncbi.nlm.nih.gov/pubmed/34970804
http://dx.doi.org/10.1111/hsc.13700
_version_ 1784804802671149056
author Lehto‐Niskala, Vilhelmiina
Jolanki, Outi
Jylhä, Marja
author_facet Lehto‐Niskala, Vilhelmiina
Jolanki, Outi
Jylhä, Marja
author_sort Lehto‐Niskala, Vilhelmiina
collection PubMed
description Family members are important providers of care for older people. In residential long‐term care, however, their role is not always simple and straightforward: responsibility for care provision rests officially with staff members, but in practice family members often contribute to providing care. The main reason for admission to long‐term care is functional decline. At the same time, the maintenance of functional ability is a central goal in long‐term care. It is therefore reasonable to assume that functional ability is also an important factor in the relationship between family members and long‐term care residents. This study aims to explore how family members experience their role in supporting the functional ability of older relatives in residential long‐term care. With the approval of the local hospital district's ethics committee, we conducted semi‐structured interviews with family members (n = 16) in Finland in 2016. Thematic data analysis showed that family members supported the functional ability of their older parent or spouse by organising and monitoring care and by bringing forth their relative's personal needs and wishes. They often saw their role alongside staff members as ambiguous, and their understanding of the scope of support for functioning extended beyond physical everyday tasks. In their talk, family members broadened the concept of functional ability from daily chores and independence to meaningful social relations and acknowledgement of person's individual background and preferences. Family members’ views offer valuable insights into residents’ personal needs, values and preferences and in doing so help care workers to support their functional ability with a person‐centred care approach.
format Online
Article
Text
id pubmed-9545356
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher John Wiley and Sons Inc.
record_format MEDLINE/PubMed
spelling pubmed-95453562022-10-14 Family's role in long‐term care—A qualitative study of Finnish family members' experiences on supporting the functional ability of an older relative Lehto‐Niskala, Vilhelmiina Jolanki, Outi Jylhä, Marja Health Soc Care Community Original Articles Family members are important providers of care for older people. In residential long‐term care, however, their role is not always simple and straightforward: responsibility for care provision rests officially with staff members, but in practice family members often contribute to providing care. The main reason for admission to long‐term care is functional decline. At the same time, the maintenance of functional ability is a central goal in long‐term care. It is therefore reasonable to assume that functional ability is also an important factor in the relationship between family members and long‐term care residents. This study aims to explore how family members experience their role in supporting the functional ability of older relatives in residential long‐term care. With the approval of the local hospital district's ethics committee, we conducted semi‐structured interviews with family members (n = 16) in Finland in 2016. Thematic data analysis showed that family members supported the functional ability of their older parent or spouse by organising and monitoring care and by bringing forth their relative's personal needs and wishes. They often saw their role alongside staff members as ambiguous, and their understanding of the scope of support for functioning extended beyond physical everyday tasks. In their talk, family members broadened the concept of functional ability from daily chores and independence to meaningful social relations and acknowledgement of person's individual background and preferences. Family members’ views offer valuable insights into residents’ personal needs, values and preferences and in doing so help care workers to support their functional ability with a person‐centred care approach. John Wiley and Sons Inc. 2021-12-30 2022-09 /pmc/articles/PMC9545356/ /pubmed/34970804 http://dx.doi.org/10.1111/hsc.13700 Text en © 2021 The Authors. Health and Social Care in the Community published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Lehto‐Niskala, Vilhelmiina
Jolanki, Outi
Jylhä, Marja
Family's role in long‐term care—A qualitative study of Finnish family members' experiences on supporting the functional ability of an older relative
title Family's role in long‐term care—A qualitative study of Finnish family members' experiences on supporting the functional ability of an older relative
title_full Family's role in long‐term care—A qualitative study of Finnish family members' experiences on supporting the functional ability of an older relative
title_fullStr Family's role in long‐term care—A qualitative study of Finnish family members' experiences on supporting the functional ability of an older relative
title_full_unstemmed Family's role in long‐term care—A qualitative study of Finnish family members' experiences on supporting the functional ability of an older relative
title_short Family's role in long‐term care—A qualitative study of Finnish family members' experiences on supporting the functional ability of an older relative
title_sort family's role in long‐term care—a qualitative study of finnish family members' experiences on supporting the functional ability of an older relative
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9545356/
https://www.ncbi.nlm.nih.gov/pubmed/34970804
http://dx.doi.org/10.1111/hsc.13700
work_keys_str_mv AT lehtoniskalavilhelmiina familysroleinlongtermcareaqualitativestudyoffinnishfamilymembersexperiencesonsupportingthefunctionalabilityofanolderrelative
AT jolankiouti familysroleinlongtermcareaqualitativestudyoffinnishfamilymembersexperiencesonsupportingthefunctionalabilityofanolderrelative
AT jylhamarja familysroleinlongtermcareaqualitativestudyoffinnishfamilymembersexperiencesonsupportingthefunctionalabilityofanolderrelative