Non‐attendance at outpatient clinic appointments by children with cerebral palsy

AIM: To determine factors that influence non‐attendance at outpatient clinics by children with cerebral palsy (CP). METHOD: This was a retrospective cohort study of 1395 children with CP (59.6% male; born 2005 to 2017) identified from the New South Wales (NSW)/Australian Capital Territory CP Register, who had scheduled appointments at outpatient clinics at two NSW tertiary paediatric hospitals between 2012 and 2019. Associations between sociodemographic, clinical, and process‐of‐care factors and non‐attendance were examined using multivariate logistic regression with generalized estimating equations. RESULTS: A total of 5773 (12%) of 50 121 scheduled outpatient days were not attended. Non‐attendance increased over time (average increase 5.6% per year, 95% confidence interval [CI]: 3.7–7.3). Older children aged 5 to 9 years (adjusted odds ratio [aOR] 1.11; 95% CI: 1.02–1.22) and 10 to 14 years (aOR 1.17; 95% CI: 1.03–1.34), socioeconomic disadvantage (aOR 1.29; 95% CI: 1.11–1.50), previous non‐attendance (aOR 1.38; 95% CI: 1.23–1.53), and recent rescheduled or cancelled appointments (aOR 1.08; 95% CI: 1.01–1.16) were associated with increased likelihood of non‐attendance. INTERPRETATION: One in eight outpatient appointments for children with CP were not attended. Non‐attendance was associated with increasing age, socioeconomic disadvantage, previous non‐attendance, and recent rescheduled or cancelled appointments. Identifying specific barriers and interventions to improve access to outpatient services for these groups is needed. WHAT THIS PAPER ADDS: Twelve per cent of scheduled appointments for children with cerebral palsy are not attended. Proportions of appointments not attended has increased over the last decade. Increasing age and socioeconomic disadvantage increase the likelihood of non‐attendance. Previous non‐attendance and recent cancelled or rescheduled appointments increase the likelihood of further non‐attendance.