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The GOAL‐Hēm journey: Shared decision making and patient‐centred outcomes

INTRODUCTION: GOAL‐Hēm is a novel, haemophilia‐specific, patient‐centred outcome measure (PCOM) based on goal attainment scaling, allowing people with haemophilia (PwH) to set and monitor the attainment of individualized goals for treatment. AIM: To provide a thorough overview of the creation, valid...

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Detalles Bibliográficos
Autores principales:	Roberts, Jonathan C., Richardson, Sharon, Miles, Moses E., Stanley, Justin, Chapman, Chere A. T., Denne, Michael, Caicedo, Jorge, Rockwood, Kenneth, Recht, Michael
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2022
Materias:	Original Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9546188/ https://www.ncbi.nlm.nih.gov/pubmed/35728103 http://dx.doi.org/10.1111/hae.14608

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