Cargando…

The GOAL‐Hēm journey: Shared decision making and patient‐centred outcomes

INTRODUCTION: GOAL‐Hēm is a novel, haemophilia‐specific, patient‐centred outcome measure (PCOM) based on goal attainment scaling, allowing people with haemophilia (PwH) to set and monitor the attainment of individualized goals for treatment. AIM: To provide a thorough overview of the creation, valid...

Descripción completa

Detalles Bibliográficos
Autores principales:	Roberts, Jonathan C., Richardson, Sharon, Miles, Moses E., Stanley, Justin, Chapman, Chere A. T., Denne, Michael, Caicedo, Jorge, Rockwood, Kenneth, Recht, Michael
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2022
Materias:	Original Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9546188/ https://www.ncbi.nlm.nih.gov/pubmed/35728103 http://dx.doi.org/10.1111/hae.14608

Ejemplares similares

Incorporating the patient voice and patient engagement in GOAL‐Hēm: Advancing patient‐centric hemophilia care
por: Roberts, Jonathan C., et al.
Publicado: (2022)

Exploring the responsiveness of goal attainment scaling in relation to number of goals set in a sample of hemophilia-A patients
por: McGarrigle, Lisa, et al.
Publicado: (2019)

Green HEMS: how to make it happen
por: ter Avest, E., et al.
Publicado: (2023)

The Hemophilia Gene Therapy Patient Journey: Questions and Answers for Shared Decision-Making
por: Wang, Michael, et al.
Publicado: (2022)

Goal-Based Shared Decision-Making: Developing an Integrated Model
por: Elwyn, Glyn, et al.
Publicado: (2019)

Journey to the centre of the Earth
Publicado: (2003)

Chemistry and Molecular Dynamics Simulations of Heme b-HemQ and Coproheme-HemQ
por: Hofbauer, Stefan, et al.
Publicado: (2016)

The HEMS Medical Crew Survey
por: Rasmussen, Kristen, et al.
Publicado: (2015)

Oslo HEMS Conference 2023
Publicado: (2023)

Involvement of the hemP-hemA-smlt0796-smlt0797 Operon in Hemin Acquisition by Stenotrophomonas maltophilia
por: Shih, Yung-Luen, et al.
Publicado: (2022)

It’s Time for Shared Decision Making and Person-Centred Care
por: Härter, Martin
Publicado: (2020)

Isolation of a Complex Formed Between Acinetobacter baumannii HemA and HemL, Key Enzymes of Tetrapyrroles Biosynthesis
por: Nardella, Caterina, et al.
Publicado: (2019)

Measuring a Journey without Goal: Meditation, Spirituality, and Physiology
por: Buttle, Heather
Publicado: (2015)

P1690: SHARED DECISION-MAKING IN MULTIPLE MYELOMA: DO PATIENTS, CAREGIVERS, AND PHYSICIANS SHARE THE SAME GOALS AND PREFERENCES?
por: Dwyer, Lisa, et al.
Publicado: (2023)

Helicopter Emergency Medical Services (HEMS) over-triage and the financial implications for major trauma centres in NSW, Australia
por: Taylor, Colman B, et al.
Publicado: (2013)

Experience Sharing: Final Year MBBS Journey
por: Maharjan, Sujata, et al.
Publicado: (2021)

HemI: A Toolkit for Illustrating Heatmaps
por: Deng, Wankun, et al.
Publicado: (2014)

Silent invasion of Hem-O-Lok clip
por: Park, Dong Jin, et al.
Publicado: (2018)

Functional Diversity of HemN-like Proteins
por: Cheng, Jinduo, et al.
Publicado: (2022)

The responsiveness of goal attainment scaling using just one goal in controlled clinical trials: an exploratory analysis
por: McGarrigle, Lisa, et al.
Publicado: (2020)

Function Coupling Mechanism of PhuS and HemO in Heme Degradation
por: Lee, Michael J. Y., et al.
Publicado: (2017)

HEM1 Actin Immunodysregulatory Disorder: Genotypes, Phenotypes, and Future Directions
por: Cook, Sarah, et al.
Publicado: (2022)

Shared goals, shared knowledge, and mutual respect = a shared mission
por: Parker, James F, et al.
Publicado: (2010)

The Symptoms Targeted for Monitoring in a Web-Based Tracking Tool by Caregivers of People With Dementia and Agitation: Cross-Sectional Study
por: Rockwood, Kenneth, et al.
Publicado: (2019)

Characteristics of helicopter emergency medical services (HEMS) dispatch cancellations during a six-year period in a Dutch HEMS region
por: Berkeveld, E., et al.
Publicado: (2021)

Rescue Operations Lead to Increased Cardiovascular Stress in HEMS Crew Members: A Prospective Pilot Study of a German HEMS Cohort
por: Strauss, Markus, et al.
Publicado: (2021)

Impact of Point-of-Care Ultrasound on Prehospital Decision Making by HEMS Physicians in Critically Ill and Injured Patients: A Prospective Cohort Study
por: Vianen, Niek J., et al.
Publicado: (2023)

Lhx2 Regulates the Development of the Forebrain Hem System
por: Roy, Achira, et al.
Publicado: (2014)

Are physicians required during HEMS winch rescue missions?
por: Sherren, PB, et al.
Publicado: (2013)

Ventilation of intubated patients during HEMS hoisting operations
por: Hollott, John
Publicado: (2018)

Role of Endogenous Regulators of Hem- And Lymphangiogenesis in Corneal Transplantation
por: Clahsen, Thomas, et al.
Publicado: (2020)

Hem25p is a mitochondrial IPP transporter
por: Tai, Jonathan, et al.
Publicado: (2023)

Values, preferences and goals identified during shared decision making between critically ill patients and their doctors
por: Milnes, Sharyn L., et al.
Publicado: (2023)

Impact of an interprofessional shared decision-making and goal-setting decision aid for patients with diabetes on decisional conflict – study protocol for a randomized controlled trial
por: Yu, Catherine H., et al.
Publicado: (2015)

Deconstructing patient centred communication and uncovering shared decision making: an observational study
por: Wensing, Michel, et al.
Publicado: (2002)

Journey to lean: making operational change stick
por: Drew, John, et al.
Publicado: (2004)

Vision, mission and formulation of newer approaches and goals at IJA: The scientific journey will continue
por: Mehdiratta, Lalit, et al.
Publicado: (2020)

Data Sharing Goals for Nonprofit Funders of Clinical Trials
por: Coetzee, Timothy, et al.
Publicado: (2021)

The Centre Cannot Hold (My Journey Through Madness)
por: O'Neill, Francis Anthony
Publicado: (2008)

15 million degrees: a journey to the centre of the Sun
por: Green, Lucie
Publicado: (2016)

Cannot write session to /tmp/vufind_sessions/sess_3mvsa6icb43nfr7h3uso5gvmlu