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HIV-related challenges and women’s self-response: A qualitative study with women living with HIV in Indonesia

HIV infection is a major public health concern, with a range of negative impacts on People Living with HIV (PLHIV). A qualitative study in Yogyakarta, Indonesia, using in-depth interviews with 26 Women Living with HIV (WLHIV) was conducted to understand HIV risk factors and impact and their access t...

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Autores principales: Fauk, Nelsensius Klau, Gesesew, Hailay Abrha, Mwanri, Lillian, Hawke, Karen, Ward, Paul Russell
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9550025/
https://www.ncbi.nlm.nih.gov/pubmed/36215264
http://dx.doi.org/10.1371/journal.pone.0275390
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author Fauk, Nelsensius Klau
Gesesew, Hailay Abrha
Mwanri, Lillian
Hawke, Karen
Ward, Paul Russell
author_facet Fauk, Nelsensius Klau
Gesesew, Hailay Abrha
Mwanri, Lillian
Hawke, Karen
Ward, Paul Russell
author_sort Fauk, Nelsensius Klau
collection PubMed
description HIV infection is a major public health concern, with a range of negative impacts on People Living with HIV (PLHIV). A qualitative study in Yogyakarta, Indonesia, using in-depth interviews with 26 Women Living with HIV (WLHIV) was conducted to understand HIV risk factors and impact and their access to HIV care services. This paper describes the self-response of WLHIV towards negative HIV-related experiences facing them and adds to the existing literature which tends to focus on HIV impact only, as opposed to strategies that many WLHIV have used to empower and educate themselves and their family/community. Participants were recruited using the snowball sampling technique. Data analysis was guided by a qualitative data analysis framework. Our study highlighted that WLHIV experienced psychological challenges, stigma and discrimination. However, they demonstrated remarkable self-response and capacity in pursuing effective strategies and support to protect themselves, and educating themselves and others around them to rebuild trust and regain respect and acceptance. Our findings indicate that the needs of WLHIV should be addressed through policy and practice to help them cope with HIV-related psychological and social challenges effectively. Family and community members seem to play an important role in those negative challenges against WLHIV, thus there is also a need for HIV education programs for family and community members to enhance their HIV-health literacy and acceptance of PLHIV.
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spelling pubmed-95500252022-10-11 HIV-related challenges and women’s self-response: A qualitative study with women living with HIV in Indonesia Fauk, Nelsensius Klau Gesesew, Hailay Abrha Mwanri, Lillian Hawke, Karen Ward, Paul Russell PLoS One Research Article HIV infection is a major public health concern, with a range of negative impacts on People Living with HIV (PLHIV). A qualitative study in Yogyakarta, Indonesia, using in-depth interviews with 26 Women Living with HIV (WLHIV) was conducted to understand HIV risk factors and impact and their access to HIV care services. This paper describes the self-response of WLHIV towards negative HIV-related experiences facing them and adds to the existing literature which tends to focus on HIV impact only, as opposed to strategies that many WLHIV have used to empower and educate themselves and their family/community. Participants were recruited using the snowball sampling technique. Data analysis was guided by a qualitative data analysis framework. Our study highlighted that WLHIV experienced psychological challenges, stigma and discrimination. However, they demonstrated remarkable self-response and capacity in pursuing effective strategies and support to protect themselves, and educating themselves and others around them to rebuild trust and regain respect and acceptance. Our findings indicate that the needs of WLHIV should be addressed through policy and practice to help them cope with HIV-related psychological and social challenges effectively. Family and community members seem to play an important role in those negative challenges against WLHIV, thus there is also a need for HIV education programs for family and community members to enhance their HIV-health literacy and acceptance of PLHIV. Public Library of Science 2022-10-10 /pmc/articles/PMC9550025/ /pubmed/36215264 http://dx.doi.org/10.1371/journal.pone.0275390 Text en © 2022 Fauk et al https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
spellingShingle Research Article
Fauk, Nelsensius Klau
Gesesew, Hailay Abrha
Mwanri, Lillian
Hawke, Karen
Ward, Paul Russell
HIV-related challenges and women’s self-response: A qualitative study with women living with HIV in Indonesia
title HIV-related challenges and women’s self-response: A qualitative study with women living with HIV in Indonesia
title_full HIV-related challenges and women’s self-response: A qualitative study with women living with HIV in Indonesia
title_fullStr HIV-related challenges and women’s self-response: A qualitative study with women living with HIV in Indonesia
title_full_unstemmed HIV-related challenges and women’s self-response: A qualitative study with women living with HIV in Indonesia
title_short HIV-related challenges and women’s self-response: A qualitative study with women living with HIV in Indonesia
title_sort hiv-related challenges and women’s self-response: a qualitative study with women living with hiv in indonesia
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9550025/
https://www.ncbi.nlm.nih.gov/pubmed/36215264
http://dx.doi.org/10.1371/journal.pone.0275390
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