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“Balancing within a closed family system”: a grounded theory study of how family life is affected by having a family member with an eating disorder
BACKGROUND: This qualitative study explores how having an adult daughter or sister with anorexia nervosa or bulimia nervosa affects the family’s daily life. Previous research has focused on the family’s role in the development of an eating disorder, while more recently the focus has been on the illn...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9551600/ https://www.ncbi.nlm.nih.gov/pubmed/36217195 http://dx.doi.org/10.1186/s40337-022-00669-9 |
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author | Karlstad, Jannike Moe, Cathrine F. Adelsten Stokland, Ragni Brinchmann, Berit S. |
author_facet | Karlstad, Jannike Moe, Cathrine F. Adelsten Stokland, Ragni Brinchmann, Berit S. |
author_sort | Karlstad, Jannike |
collection | PubMed |
description | BACKGROUND: This qualitative study explores how having an adult daughter or sister with anorexia nervosa or bulimia nervosa affects the family’s daily life. Previous research has focused on the family’s role in the development of an eating disorder, while more recently the focus has been on the illness’s impact on the family. Caring for an individual with an eating disorder can involve distress, guilt, extra burdens, and unmet needs. By interviewing the family members of adults with eating disorders this study aims to gain insights into how the family members experience the impact of the eating disorder over time. METHODS: A constructivist grounded theory approach was comprised to gather and analyse data to develop a theory on how families experience life with an adult daughter or sister with an eating disorder. Semi-structured individual interviews were conducted with 21 parents and siblings from across Norway. RESULTS: The participants reported a lack of professional help and the families had to handle the challenges related to the illness themselves, hence being left to themselves as a family was identified as the participants’ main concern. To manage this concern the families had to balance a pattern of care within the closed family system, and this comprises the core category of the study. Families balanced a pattern of care by shifting roles, adapting meal routines, and maintaining openness within the family. CONCLUSIONS: The findings implicate that families need clarification of roles and responsibilities in relation to the health services in caring for the individual with an eating disorder. More research on taking a family perspective concerning adults with eating disorders is needed. |
format | Online Article Text |
id | pubmed-9551600 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-95516002022-10-11 “Balancing within a closed family system”: a grounded theory study of how family life is affected by having a family member with an eating disorder Karlstad, Jannike Moe, Cathrine F. Adelsten Stokland, Ragni Brinchmann, Berit S. J Eat Disord Research BACKGROUND: This qualitative study explores how having an adult daughter or sister with anorexia nervosa or bulimia nervosa affects the family’s daily life. Previous research has focused on the family’s role in the development of an eating disorder, while more recently the focus has been on the illness’s impact on the family. Caring for an individual with an eating disorder can involve distress, guilt, extra burdens, and unmet needs. By interviewing the family members of adults with eating disorders this study aims to gain insights into how the family members experience the impact of the eating disorder over time. METHODS: A constructivist grounded theory approach was comprised to gather and analyse data to develop a theory on how families experience life with an adult daughter or sister with an eating disorder. Semi-structured individual interviews were conducted with 21 parents and siblings from across Norway. RESULTS: The participants reported a lack of professional help and the families had to handle the challenges related to the illness themselves, hence being left to themselves as a family was identified as the participants’ main concern. To manage this concern the families had to balance a pattern of care within the closed family system, and this comprises the core category of the study. Families balanced a pattern of care by shifting roles, adapting meal routines, and maintaining openness within the family. CONCLUSIONS: The findings implicate that families need clarification of roles and responsibilities in relation to the health services in caring for the individual with an eating disorder. More research on taking a family perspective concerning adults with eating disorders is needed. BioMed Central 2022-10-10 /pmc/articles/PMC9551600/ /pubmed/36217195 http://dx.doi.org/10.1186/s40337-022-00669-9 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Research Karlstad, Jannike Moe, Cathrine F. Adelsten Stokland, Ragni Brinchmann, Berit S. “Balancing within a closed family system”: a grounded theory study of how family life is affected by having a family member with an eating disorder |
title | “Balancing within a closed family system”: a grounded theory study of how family life is affected by having a family member with an eating disorder |
title_full | “Balancing within a closed family system”: a grounded theory study of how family life is affected by having a family member with an eating disorder |
title_fullStr | “Balancing within a closed family system”: a grounded theory study of how family life is affected by having a family member with an eating disorder |
title_full_unstemmed | “Balancing within a closed family system”: a grounded theory study of how family life is affected by having a family member with an eating disorder |
title_short | “Balancing within a closed family system”: a grounded theory study of how family life is affected by having a family member with an eating disorder |
title_sort | “balancing within a closed family system”: a grounded theory study of how family life is affected by having a family member with an eating disorder |
topic | Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9551600/ https://www.ncbi.nlm.nih.gov/pubmed/36217195 http://dx.doi.org/10.1186/s40337-022-00669-9 |
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