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Patient perspectives on advance euthanasia directives in Huntington’s disease. A qualitative interview study
BACKGROUND: Huntington’s disease (HD) has a poor prognosis. For HD patients in the Netherlands, one way of dealing with their poor prognosis is by drawing up an advance euthanasia directive (AED). Little is known about the perspectives of HD patients on their AED. AIM: To gain insight into patients’...
Autores principales: | Ekkel, Marina R., Depla, Marja F.I.A., Verschuur, Els M.L., Veenhuizen, Ruth B., Hertogh, Cees M.P.M., Onwuteaka-Philipsen, Bregje D. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9552411/ https://www.ncbi.nlm.nih.gov/pubmed/36217136 http://dx.doi.org/10.1186/s12910-022-00838-0 |
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