Cargando…

Rethinking informed consent in the time of COVID-19: An exploratory survey

BACKGROUND: Owing to the infectious nature of COVID-19, alternative solutions, such as electronic informed consent (eIC), needed to be implemented to inform research participants about study-related information and to obtain their consent. This study aimed to investigate stakeholders’ experiences wi...

Descripción completa

Detalles Bibliográficos
Autores principales:	De Sutter, Evelien, Lalova-Spinks, Teodora, Borry, Pascal, Valcke, Peggy, Kindt, Els, Negrouk, Anastassia, Verhenneman, Griet, Derèze, Jean-Jacques, Storme, Ruth, Huys, Isabelle
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Frontiers Media S.A. 2022
Materias:	Medicine
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9552958/ https://www.ncbi.nlm.nih.gov/pubmed/36237540 http://dx.doi.org/10.3389/fmed.2022.995688

Ejemplares similares

Challenges related to data protection in clinical research before and during the COVID-19 pandemic: An exploratory study
por: Lalova-Spinks, Teodora, et al.
Publicado: (2022)

Cross-Border Access to Clinical Trials in the EU: Exploratory Study on Needs and Reality
por: Lalova, Teodora, et al.
Publicado: (2020)

Personalized and long-term electronic informed consent in clinical research: stakeholder views
por: De Sutter, Evelien, et al.
Publicado: (2021)

Digitizing the Informed Consent Process: A Review of the Regulatory Landscape in the European Union
por: De Sutter, Evelien, et al.
Publicado: (2022)

Informing a European guidance framework on electronic informed consent in clinical research: a qualitative study
por: De Sutter, Evelien, et al.
Publicado: (2023)

Co-creation with research participants to inform the design of electronic informed consent
por: De Sutter, Evelien, et al.
Publicado: (2022)

Clinical Research in Neonates: Redesigning the Informed Consent Process in the Digital Era
por: De Sutter, Evelien, et al.
Publicado: (2021)

The application of data altruism in clinical research through empirical and legal analysis lenses
por: Lalova-Spinks, Teodora, et al.
Publicado: (2023)

Implementation of Electronic Informed Consent in Biomedical Research and Stakeholders’ Perspectives: Systematic Review
por: De Sutter, Evelien, et al.
Publicado: (2020)

Using provocative design to foster electronic informed consent innovation
por: De Sutter, Evelien, et al.
Publicado: (2022)

Readability of informed consent forms for whole-exome and whole-genome sequencing
por: Niemiec, Emilia, et al.
Publicado: (2017)

How to balance valuable innovation with affordable access to medicines in Belgium?
por: Simoens, Steven, et al.
Publicado: (2022)

Making Change Happen in Health
por: Horgan, Denis, et al.
Publicado: (2017)

Old Challenges or New Issues? Genetic Health Professionals’ Experiences Obtaining Informed Consent in Diagnostic Genomic Sequencing
por: Vears, Danya F., et al.
Publicado: (2020)

Communicating genetic information to family members: analysis of consent forms for diagnostic genomic sequencing
por: Phillips, Amicia, et al.
Publicado: (2020)

International clinical trials setting for rare cancers: organisational and regulatory constraints—the EORTC perspective
por: Shash, Emad, et al.
Publicado: (2013)

Rethinking counselling in prenatal screening: An ethical analysis of informed consent in the context of non‐invasive prenatal testing (NIPT)
por: Kater‐Kuipers, Adriana, et al.
Publicado: (2020)

The REThink Online Therapeutic Game: A Usability Study
por: Iuga, Ioana Alexandra, et al.
Publicado: (2023)

Reflecting on Earlier Experiences with Unsolicited Findings: Points to Consider for Next-Generation Sequencing and Informed Consent in Diagnostics
por: Rigter, Tessel, et al.
Publicado: (2013)

Attitudes About Informed Consent: An Exploratory Qualitative Analysis of UK Psychotherapy Trainees
por: Blease, Charlotte R., et al.
Publicado: (2020)

Rethinking disability: The need to rethink representation
por: Procter, Jenna-Lee
Publicado: (2018)

Surrogate consent for critical care research: exploratory study on public perception and influences on recruitment
por: Lim, Daphne AFN, et al.
Publicado: (2013)

Clinical management, ethics and informed consent related to multi‐gene panel‐based high throughput sequencing testing for platelet disorders: Communication from the SSC of the ISTH
por: Downes, Kate, et al.
Publicado: (2020)

International Rare Cancers Initiative (IRCI)
por: Keat, Nicola, et al.
Publicado: (2013)

Erratum: Rethinking disability: The need to rethink representation
por: Procter, Jenna-Lee
Publicado: (2019)

To Consent or Not to Consent to Screening, That Is the Question
por: Hofmann, Bjørn
Publicado: (2023)

Current models, challenges and best practices for work conducted between European academic cooperative groups and industry
por: Stahel, Rolf A, et al.
Publicado: (2020)

Ethical challenges in consent procedures involving pediatric cancer patients in Saudi Arabia: An exploratory survey
por: Alahmad, Ghiath, et al.
Publicado: (2021)

Coming of age of personalized medicine: challenges ahead
por: Borry, Pascal
Publicado: (2009)

Liberalizing consent - Supreme Court's preference for ‘real consent’ over ‘informed consent’
por: Rangaramanujam, ATM
Publicado: (2008)

Rethinking borders /
Publicado: (1996)

Rethinking symbolism
por: Sperber, Dan
Publicado: (1975)

Rethinking archaeology
por: Chang, Kwang-chih
Publicado: (1967)

Rethinking anthropology
por: Leach, Edmund Ronald
Publicado: (1961)

Rethinking archaeology
por: Chang, Kwang-chih
Publicado: (1967)

Rethinking thalidomide.
Publicado: (1995)

Rethinking recycling.
por: Black, H
Publicado: (1995)

Rethinking Luxury
por: Albers, Markus
Publicado: (2015)

Rethinking Leadership
por: Bardy, Roland
Publicado: (2018)

Rethinking Leadership
por: Raelin, Joseph
Publicado: (2015)

Cannot write session to /tmp/vufind_sessions/sess_cee9uvk7tkm5diitalhvhojnij