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Adolescents With Congenital Heart Disease: What Do They Know About Reproductive Health and Risks?

Studies show that adolescents with congenital heart disease (CHD) lack knowledge about reproductive health in relation to their CHD. OBJECTIVE: The aims were to investigate (i) the proportion of adolescents with CHD receiving information about reproductive health, (ii) the level of reproductive heal...

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Autores principales: Burström, Åsa, Acuña Mora, Mariela, Sparud-Lundin, Carina, Moons, Philip, Bratt, Ewa-Lena
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Lippincott Williams & Wilkins 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9561236/
https://www.ncbi.nlm.nih.gov/pubmed/34238841
http://dx.doi.org/10.1097/JCN.0000000000000838
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author Burström, Åsa
Acuña Mora, Mariela
Sparud-Lundin, Carina
Moons, Philip
Bratt, Ewa-Lena
author_facet Burström, Åsa
Acuña Mora, Mariela
Sparud-Lundin, Carina
Moons, Philip
Bratt, Ewa-Lena
author_sort Burström, Åsa
collection PubMed
description Studies show that adolescents with congenital heart disease (CHD) lack knowledge about reproductive health in relation to their CHD. OBJECTIVE: The aims were to investigate (i) the proportion of adolescents with CHD receiving information about reproductive health, (ii) the level of reproductive health knowledge in adolescents with CHD, and (iii) potential correlates for receiving information about reproductive health. METHODS: A total of 202 adolescents aged 14 to 18 years (mean age 15.7 ± 1.1 years) with CHD completed the Knowledge Scale for Adults with Congenitally Malformed Hearts and were asked if they had received information about contraception and pregnancies or if this would be of interest. RESULTS: Few adolescents could recall receiving information about contraceptives (5%) and pregnancies (15%). Furthermore, only 24% adolescents wanted information about contraceptives, and 42% of the female adolescents wanted information about pregnancies. There was a higher probability of male adolescents wanting information about contraceptives. Knowledge about reproductive health varied regarding knowledge about why they had been born with CHD (68%), knowledge about the hereditary nature of the CHD (48%), and if sexual activity could worsen their CHD (70%). However, few (11%) had knowledge about the elevated risk of having a child with CHD. Age was associated with a higher probability of having knowledge about the risks of having a child with CHD. CONCLUSIONS: The low number of adolescents receiving information about contraceptives and pregnancies may have implications for future health and family planning. Future research is needed to identify and evaluate successful communication strategies that help to identify adolescents' preferences on how to approach this sensitive topic.
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spelling pubmed-95612362022-10-19 Adolescents With Congenital Heart Disease: What Do They Know About Reproductive Health and Risks? Burström, Åsa Acuña Mora, Mariela Sparud-Lundin, Carina Moons, Philip Bratt, Ewa-Lena J Cardiovasc Nurs Articles Available Online Only Studies show that adolescents with congenital heart disease (CHD) lack knowledge about reproductive health in relation to their CHD. OBJECTIVE: The aims were to investigate (i) the proportion of adolescents with CHD receiving information about reproductive health, (ii) the level of reproductive health knowledge in adolescents with CHD, and (iii) potential correlates for receiving information about reproductive health. METHODS: A total of 202 adolescents aged 14 to 18 years (mean age 15.7 ± 1.1 years) with CHD completed the Knowledge Scale for Adults with Congenitally Malformed Hearts and were asked if they had received information about contraception and pregnancies or if this would be of interest. RESULTS: Few adolescents could recall receiving information about contraceptives (5%) and pregnancies (15%). Furthermore, only 24% adolescents wanted information about contraceptives, and 42% of the female adolescents wanted information about pregnancies. There was a higher probability of male adolescents wanting information about contraceptives. Knowledge about reproductive health varied regarding knowledge about why they had been born with CHD (68%), knowledge about the hereditary nature of the CHD (48%), and if sexual activity could worsen their CHD (70%). However, few (11%) had knowledge about the elevated risk of having a child with CHD. Age was associated with a higher probability of having knowledge about the risks of having a child with CHD. CONCLUSIONS: The low number of adolescents receiving information about contraceptives and pregnancies may have implications for future health and family planning. Future research is needed to identify and evaluate successful communication strategies that help to identify adolescents' preferences on how to approach this sensitive topic. Lippincott Williams & Wilkins 2022 2021-07-06 /pmc/articles/PMC9561236/ /pubmed/34238841 http://dx.doi.org/10.1097/JCN.0000000000000838 Text en Copyright © 2021 The Authors. Published by Wolters Kluwer Health, Inc. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the Creative Commons Attribution License 4.0 (CCBY) (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Articles Available Online Only
Burström, Åsa
Acuña Mora, Mariela
Sparud-Lundin, Carina
Moons, Philip
Bratt, Ewa-Lena
Adolescents With Congenital Heart Disease: What Do They Know About Reproductive Health and Risks?
title Adolescents With Congenital Heart Disease: What Do They Know About Reproductive Health and Risks?
title_full Adolescents With Congenital Heart Disease: What Do They Know About Reproductive Health and Risks?
title_fullStr Adolescents With Congenital Heart Disease: What Do They Know About Reproductive Health and Risks?
title_full_unstemmed Adolescents With Congenital Heart Disease: What Do They Know About Reproductive Health and Risks?
title_short Adolescents With Congenital Heart Disease: What Do They Know About Reproductive Health and Risks?
title_sort adolescents with congenital heart disease: what do they know about reproductive health and risks?
topic Articles Available Online Only
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9561236/
https://www.ncbi.nlm.nih.gov/pubmed/34238841
http://dx.doi.org/10.1097/JCN.0000000000000838
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