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The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research

INTRODUCTION: Clinical research focused on aging, Alzheimer’s disease and related dementias (ADRD), and caregiving often does not recruit Asian Americans and Pacific Islanders (AAPIs). METHODS: With funding from the National Institute on Aging, we designed and launched the Collaborative Approach for...

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Detalles Bibliográficos
Autores principales: Ta Park, Van M., Meyer, Oanh L., Tsoh, Janice Y., Kanaya, Alka M., Tzuang, Marian, Nam, Bora, Vuong, Quyen, Bang, Joon, Hinton, Ladson, Gallagher-Thompson, Dolores, Grill, Joshua D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9562598/
https://www.ncbi.nlm.nih.gov/pubmed/35420258
http://dx.doi.org/10.1002/alz.12667
Descripción
Sumario:INTRODUCTION: Clinical research focused on aging, Alzheimer’s disease and related dementias (ADRD), and caregiving often does not recruit Asian Americans and Pacific Islanders (AAPIs). METHODS: With funding from the National Institute on Aging, we designed and launched the Collaborative Approach for AAPIs Research and Education (CARE), a research recruitment registry to increase AAPIs’ participation in ADRD, aging, and caregiving research. We present the design of this novel recruitment program. RESULTS: CARE uses community-based participatory research methods that are culturally and linguistically appropriate. Since CARE’s launch, it has enrolled >7000 AAPIs in a 1-year period. The majority enrolled in CARE via community organizations and reported never having participated in any kind of research before. CARE also engages researchers by establishing a recruitment referral request protocol. DISCUSSION: CARE provides a promising venue to foster meaningful inclusion of AAPIs who are under-represented in aging and dementia-related research.