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The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research

INTRODUCTION: Clinical research focused on aging, Alzheimer’s disease and related dementias (ADRD), and caregiving often does not recruit Asian Americans and Pacific Islanders (AAPIs). METHODS: With funding from the National Institute on Aging, we designed and launched the Collaborative Approach for...

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Autores principales: Ta Park, Van M., Meyer, Oanh L., Tsoh, Janice Y., Kanaya, Alka M., Tzuang, Marian, Nam, Bora, Vuong, Quyen, Bang, Joon, Hinton, Ladson, Gallagher-Thompson, Dolores, Grill, Joshua D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9562598/
https://www.ncbi.nlm.nih.gov/pubmed/35420258
http://dx.doi.org/10.1002/alz.12667
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author Ta Park, Van M.
Meyer, Oanh L.
Tsoh, Janice Y.
Kanaya, Alka M.
Tzuang, Marian
Nam, Bora
Vuong, Quyen
Bang, Joon
Hinton, Ladson
Gallagher-Thompson, Dolores
Grill, Joshua D.
author_facet Ta Park, Van M.
Meyer, Oanh L.
Tsoh, Janice Y.
Kanaya, Alka M.
Tzuang, Marian
Nam, Bora
Vuong, Quyen
Bang, Joon
Hinton, Ladson
Gallagher-Thompson, Dolores
Grill, Joshua D.
author_sort Ta Park, Van M.
collection PubMed
description INTRODUCTION: Clinical research focused on aging, Alzheimer’s disease and related dementias (ADRD), and caregiving often does not recruit Asian Americans and Pacific Islanders (AAPIs). METHODS: With funding from the National Institute on Aging, we designed and launched the Collaborative Approach for AAPIs Research and Education (CARE), a research recruitment registry to increase AAPIs’ participation in ADRD, aging, and caregiving research. We present the design of this novel recruitment program. RESULTS: CARE uses community-based participatory research methods that are culturally and linguistically appropriate. Since CARE’s launch, it has enrolled >7000 AAPIs in a 1-year period. The majority enrolled in CARE via community organizations and reported never having participated in any kind of research before. CARE also engages researchers by establishing a recruitment referral request protocol. DISCUSSION: CARE provides a promising venue to foster meaningful inclusion of AAPIs who are under-represented in aging and dementia-related research.
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spelling pubmed-95625982023-02-16 The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research Ta Park, Van M. Meyer, Oanh L. Tsoh, Janice Y. Kanaya, Alka M. Tzuang, Marian Nam, Bora Vuong, Quyen Bang, Joon Hinton, Ladson Gallagher-Thompson, Dolores Grill, Joshua D. Alzheimers Dement Article INTRODUCTION: Clinical research focused on aging, Alzheimer’s disease and related dementias (ADRD), and caregiving often does not recruit Asian Americans and Pacific Islanders (AAPIs). METHODS: With funding from the National Institute on Aging, we designed and launched the Collaborative Approach for AAPIs Research and Education (CARE), a research recruitment registry to increase AAPIs’ participation in ADRD, aging, and caregiving research. We present the design of this novel recruitment program. RESULTS: CARE uses community-based participatory research methods that are culturally and linguistically appropriate. Since CARE’s launch, it has enrolled >7000 AAPIs in a 1-year period. The majority enrolled in CARE via community organizations and reported never having participated in any kind of research before. CARE also engages researchers by establishing a recruitment referral request protocol. DISCUSSION: CARE provides a promising venue to foster meaningful inclusion of AAPIs who are under-represented in aging and dementia-related research. 2023-02 2022-04-14 /pmc/articles/PMC9562598/ /pubmed/35420258 http://dx.doi.org/10.1002/alz.12667 Text en https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.
spellingShingle Article
Ta Park, Van M.
Meyer, Oanh L.
Tsoh, Janice Y.
Kanaya, Alka M.
Tzuang, Marian
Nam, Bora
Vuong, Quyen
Bang, Joon
Hinton, Ladson
Gallagher-Thompson, Dolores
Grill, Joshua D.
The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research
title The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research
title_full The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research
title_fullStr The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research
title_full_unstemmed The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research
title_short The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research
title_sort collaborative approach for asian americans and pacific islanders research and education (care): a recruitment registry for alzheimer’s disease and related dementias, aging, and caregiver-related research
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9562598/
https://www.ncbi.nlm.nih.gov/pubmed/35420258
http://dx.doi.org/10.1002/alz.12667
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