Cargando…
The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research
INTRODUCTION: Clinical research focused on aging, Alzheimer’s disease and related dementias (ADRD), and caregiving often does not recruit Asian Americans and Pacific Islanders (AAPIs). METHODS: With funding from the National Institute on Aging, we designed and launched the Collaborative Approach for...
Autores principales: | , , , , , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
2023
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9562598/ https://www.ncbi.nlm.nih.gov/pubmed/35420258 http://dx.doi.org/10.1002/alz.12667 |
_version_ | 1784808209771397120 |
---|---|
author | Ta Park, Van M. Meyer, Oanh L. Tsoh, Janice Y. Kanaya, Alka M. Tzuang, Marian Nam, Bora Vuong, Quyen Bang, Joon Hinton, Ladson Gallagher-Thompson, Dolores Grill, Joshua D. |
author_facet | Ta Park, Van M. Meyer, Oanh L. Tsoh, Janice Y. Kanaya, Alka M. Tzuang, Marian Nam, Bora Vuong, Quyen Bang, Joon Hinton, Ladson Gallagher-Thompson, Dolores Grill, Joshua D. |
author_sort | Ta Park, Van M. |
collection | PubMed |
description | INTRODUCTION: Clinical research focused on aging, Alzheimer’s disease and related dementias (ADRD), and caregiving often does not recruit Asian Americans and Pacific Islanders (AAPIs). METHODS: With funding from the National Institute on Aging, we designed and launched the Collaborative Approach for AAPIs Research and Education (CARE), a research recruitment registry to increase AAPIs’ participation in ADRD, aging, and caregiving research. We present the design of this novel recruitment program. RESULTS: CARE uses community-based participatory research methods that are culturally and linguistically appropriate. Since CARE’s launch, it has enrolled >7000 AAPIs in a 1-year period. The majority enrolled in CARE via community organizations and reported never having participated in any kind of research before. CARE also engages researchers by establishing a recruitment referral request protocol. DISCUSSION: CARE provides a promising venue to foster meaningful inclusion of AAPIs who are under-represented in aging and dementia-related research. |
format | Online Article Text |
id | pubmed-9562598 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
record_format | MEDLINE/PubMed |
spelling | pubmed-95625982023-02-16 The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research Ta Park, Van M. Meyer, Oanh L. Tsoh, Janice Y. Kanaya, Alka M. Tzuang, Marian Nam, Bora Vuong, Quyen Bang, Joon Hinton, Ladson Gallagher-Thompson, Dolores Grill, Joshua D. Alzheimers Dement Article INTRODUCTION: Clinical research focused on aging, Alzheimer’s disease and related dementias (ADRD), and caregiving often does not recruit Asian Americans and Pacific Islanders (AAPIs). METHODS: With funding from the National Institute on Aging, we designed and launched the Collaborative Approach for AAPIs Research and Education (CARE), a research recruitment registry to increase AAPIs’ participation in ADRD, aging, and caregiving research. We present the design of this novel recruitment program. RESULTS: CARE uses community-based participatory research methods that are culturally and linguistically appropriate. Since CARE’s launch, it has enrolled >7000 AAPIs in a 1-year period. The majority enrolled in CARE via community organizations and reported never having participated in any kind of research before. CARE also engages researchers by establishing a recruitment referral request protocol. DISCUSSION: CARE provides a promising venue to foster meaningful inclusion of AAPIs who are under-represented in aging and dementia-related research. 2023-02 2022-04-14 /pmc/articles/PMC9562598/ /pubmed/35420258 http://dx.doi.org/10.1002/alz.12667 Text en https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made. |
spellingShingle | Article Ta Park, Van M. Meyer, Oanh L. Tsoh, Janice Y. Kanaya, Alka M. Tzuang, Marian Nam, Bora Vuong, Quyen Bang, Joon Hinton, Ladson Gallagher-Thompson, Dolores Grill, Joshua D. The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research |
title | The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research |
title_full | The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research |
title_fullStr | The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research |
title_full_unstemmed | The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research |
title_short | The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer’s disease and related dementias, aging, and caregiver-related research |
title_sort | collaborative approach for asian americans and pacific islanders research and education (care): a recruitment registry for alzheimer’s disease and related dementias, aging, and caregiver-related research |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9562598/ https://www.ncbi.nlm.nih.gov/pubmed/35420258 http://dx.doi.org/10.1002/alz.12667 |
work_keys_str_mv | AT taparkvanm thecollaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT meyeroanhl thecollaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT tsohjanicey thecollaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT kanayaalkam thecollaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT tzuangmarian thecollaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT nambora thecollaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT vuongquyen thecollaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT bangjoon thecollaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT hintonladson thecollaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT gallagherthompsondolores thecollaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT grilljoshuad thecollaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT taparkvanm collaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT meyeroanhl collaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT tsohjanicey collaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT kanayaalkam collaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT tzuangmarian collaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT nambora collaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT vuongquyen collaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT bangjoon collaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT hintonladson collaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT gallagherthompsondolores collaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch AT grilljoshuad collaborativeapproachforasianamericansandpacificislandersresearchandeducationcarearecruitmentregistryforalzheimersdiseaseandrelateddementiasagingandcaregiverrelatedresearch |