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Administrative Data in Cardiovascular Research—A Comparison of Polish National Health Fund and CRAFT Registry Data

(1) Background: Administrative data allows for time- and cost-efficient acquisition of large volumes of individual patient data invaluable for evaluation of the prevalence of diseases and clinical outcomes. The aim of the study was to evaluate the accuracy of data collected from the Polish National...

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Autores principales: Maciejewski, Cezary, Ozierański, Krzysztof, Basza, Mikołaj, Lodziński, Piotr, Śliwczyński, Andrzej, Kraj, Leszek, Krajsman, Maciej Janusz, Prado Paulino, Jefte, Tymińska, Agata, Opolski, Grzegorz, Cacko, Andrzej, Grabowski, Marcin, Balsam, Paweł
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9565600/
https://www.ncbi.nlm.nih.gov/pubmed/36231265
http://dx.doi.org/10.3390/ijerph191911964
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author Maciejewski, Cezary
Ozierański, Krzysztof
Basza, Mikołaj
Lodziński, Piotr
Śliwczyński, Andrzej
Kraj, Leszek
Krajsman, Maciej Janusz
Prado Paulino, Jefte
Tymińska, Agata
Opolski, Grzegorz
Cacko, Andrzej
Grabowski, Marcin
Balsam, Paweł
author_facet Maciejewski, Cezary
Ozierański, Krzysztof
Basza, Mikołaj
Lodziński, Piotr
Śliwczyński, Andrzej
Kraj, Leszek
Krajsman, Maciej Janusz
Prado Paulino, Jefte
Tymińska, Agata
Opolski, Grzegorz
Cacko, Andrzej
Grabowski, Marcin
Balsam, Paweł
author_sort Maciejewski, Cezary
collection PubMed
description (1) Background: Administrative data allows for time- and cost-efficient acquisition of large volumes of individual patient data invaluable for evaluation of the prevalence of diseases and clinical outcomes. The aim of the study was to evaluate the accuracy of data collected from the Polish National Health Fund (NHF), from a researcher’s perspective, in regard to a cohort of atrial fibrillation patients. (2) Methods: NHF data regarding atrial fibrillation and common cardiovascular comorbidities was compared with the data collected manually from the individual patients’ health records (IHR) collected in the retrospective CRAFT registry (NCT02987062). (3) Results: Data from the NHF underestimated the proportion of patients with AF (NHF = 83% vs. IHR = 100%) while overestimating the proportion of patients with other cardiovascular comorbidities in the cohort. Significantly higher CHA2DS2VASc (Median, [Q1–Q3]) (NHF: 1, [0–2]; vs. IHR: 1, [0–1]; p < 0.001) and HAS-BLED (Median, [Q1–Q3]) (NHF: 4, [2–6] vs. IHR: 3, [2–5]; p < 0.001) scores were calculated according to NHF in comparison to IHR data, respectively. (4) Conclusions: Clinical researchers should be aware that significant differences between IHR and billing data in cardiovascular research can be observed which should be acknowledged while drawing conclusions from administrative data-based cohorts. Natural Language Processing of IHR could further increase administrative data quality in the future.
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spelling pubmed-95656002022-10-15 Administrative Data in Cardiovascular Research—A Comparison of Polish National Health Fund and CRAFT Registry Data Maciejewski, Cezary Ozierański, Krzysztof Basza, Mikołaj Lodziński, Piotr Śliwczyński, Andrzej Kraj, Leszek Krajsman, Maciej Janusz Prado Paulino, Jefte Tymińska, Agata Opolski, Grzegorz Cacko, Andrzej Grabowski, Marcin Balsam, Paweł Int J Environ Res Public Health Article (1) Background: Administrative data allows for time- and cost-efficient acquisition of large volumes of individual patient data invaluable for evaluation of the prevalence of diseases and clinical outcomes. The aim of the study was to evaluate the accuracy of data collected from the Polish National Health Fund (NHF), from a researcher’s perspective, in regard to a cohort of atrial fibrillation patients. (2) Methods: NHF data regarding atrial fibrillation and common cardiovascular comorbidities was compared with the data collected manually from the individual patients’ health records (IHR) collected in the retrospective CRAFT registry (NCT02987062). (3) Results: Data from the NHF underestimated the proportion of patients with AF (NHF = 83% vs. IHR = 100%) while overestimating the proportion of patients with other cardiovascular comorbidities in the cohort. Significantly higher CHA2DS2VASc (Median, [Q1–Q3]) (NHF: 1, [0–2]; vs. IHR: 1, [0–1]; p < 0.001) and HAS-BLED (Median, [Q1–Q3]) (NHF: 4, [2–6] vs. IHR: 3, [2–5]; p < 0.001) scores were calculated according to NHF in comparison to IHR data, respectively. (4) Conclusions: Clinical researchers should be aware that significant differences between IHR and billing data in cardiovascular research can be observed which should be acknowledged while drawing conclusions from administrative data-based cohorts. Natural Language Processing of IHR could further increase administrative data quality in the future. MDPI 2022-09-22 /pmc/articles/PMC9565600/ /pubmed/36231265 http://dx.doi.org/10.3390/ijerph191911964 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Maciejewski, Cezary
Ozierański, Krzysztof
Basza, Mikołaj
Lodziński, Piotr
Śliwczyński, Andrzej
Kraj, Leszek
Krajsman, Maciej Janusz
Prado Paulino, Jefte
Tymińska, Agata
Opolski, Grzegorz
Cacko, Andrzej
Grabowski, Marcin
Balsam, Paweł
Administrative Data in Cardiovascular Research—A Comparison of Polish National Health Fund and CRAFT Registry Data
title Administrative Data in Cardiovascular Research—A Comparison of Polish National Health Fund and CRAFT Registry Data
title_full Administrative Data in Cardiovascular Research—A Comparison of Polish National Health Fund and CRAFT Registry Data
title_fullStr Administrative Data in Cardiovascular Research—A Comparison of Polish National Health Fund and CRAFT Registry Data
title_full_unstemmed Administrative Data in Cardiovascular Research—A Comparison of Polish National Health Fund and CRAFT Registry Data
title_short Administrative Data in Cardiovascular Research—A Comparison of Polish National Health Fund and CRAFT Registry Data
title_sort administrative data in cardiovascular research—a comparison of polish national health fund and craft registry data
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9565600/
https://www.ncbi.nlm.nih.gov/pubmed/36231265
http://dx.doi.org/10.3390/ijerph191911964
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