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Blogging with dementia: Writing about lived experience of dementia in the public domain

Public narratives around dementia have historically been negative, and have not been shaped by people with dementia themselves, but stories of living with dementia are becoming more common in the public domain. This qualitative study explored the motivations and experiences of bloggers by conducting...

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Detalles Bibliográficos
Autores principales: Brooks, Jenni, Savitch, Nada
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9583278/
https://www.ncbi.nlm.nih.gov/pubmed/35804488
http://dx.doi.org/10.1177/14713012221112384
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author Brooks, Jenni
Savitch, Nada
author_facet Brooks, Jenni
Savitch, Nada
author_sort Brooks, Jenni
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description Public narratives around dementia have historically been negative, and have not been shaped by people with dementia themselves, but stories of living with dementia are becoming more common in the public domain. This qualitative study explored the motivations and experiences of bloggers by conducting interviews with six bloggers with dementia in the UK. Thematic analysis suggested that the asynchronous nature of blogging offered a valuable, personalised space for people with dementia to tell their own stories in their own way. Blogging as a format posed some practical challenges, but bloggers developed strategies to overcome these. Motivations for blogging were on three levels: the personal (as a journal, and as a ‘room of one’s own’); community (as solidarity for other people with dementia, and as comfort for families and friends) and society (as an educational and campaigning tool). Whilst the study is small, and there are many voices of people with dementia missing from the blogging community, this research demonstrates the potential for blogging by people with dementia to change public narratives and perceptions of dementia.
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spelling pubmed-95832782022-10-21 Blogging with dementia: Writing about lived experience of dementia in the public domain Brooks, Jenni Savitch, Nada Dementia (London) Articles Public narratives around dementia have historically been negative, and have not been shaped by people with dementia themselves, but stories of living with dementia are becoming more common in the public domain. This qualitative study explored the motivations and experiences of bloggers by conducting interviews with six bloggers with dementia in the UK. Thematic analysis suggested that the asynchronous nature of blogging offered a valuable, personalised space for people with dementia to tell their own stories in their own way. Blogging as a format posed some practical challenges, but bloggers developed strategies to overcome these. Motivations for blogging were on three levels: the personal (as a journal, and as a ‘room of one’s own’); community (as solidarity for other people with dementia, and as comfort for families and friends) and society (as an educational and campaigning tool). Whilst the study is small, and there are many voices of people with dementia missing from the blogging community, this research demonstrates the potential for blogging by people with dementia to change public narratives and perceptions of dementia. SAGE Publications 2022-07-08 2022-11 /pmc/articles/PMC9583278/ /pubmed/35804488 http://dx.doi.org/10.1177/14713012221112384 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Articles
Brooks, Jenni
Savitch, Nada
Blogging with dementia: Writing about lived experience of dementia in the public domain
title Blogging with dementia: Writing about lived experience of dementia in the public domain
title_full Blogging with dementia: Writing about lived experience of dementia in the public domain
title_fullStr Blogging with dementia: Writing about lived experience of dementia in the public domain
title_full_unstemmed Blogging with dementia: Writing about lived experience of dementia in the public domain
title_short Blogging with dementia: Writing about lived experience of dementia in the public domain
title_sort blogging with dementia: writing about lived experience of dementia in the public domain
topic Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9583278/
https://www.ncbi.nlm.nih.gov/pubmed/35804488
http://dx.doi.org/10.1177/14713012221112384
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