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How do family carers and care-home staff manage refusals when assisting a person with advanced dementia with their personal care?
BACKGROUND AND OBJECTIVES: Caregivers may encounter, or inadvertently cause, refusals of care by a care recipient. Managing refusals of care can be challenging and have potential negative consequences. We aimed to examine caregivers’ (care-home staff and family carers) experiences of managing refusa...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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SAGE Publications
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9583289/ https://www.ncbi.nlm.nih.gov/pubmed/36053711 http://dx.doi.org/10.1177/14713012221123578 |
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author | Backhouse, Tamara Jeon, Yun-Hee Killett, Anne Mioshi, Eneida |
author_facet | Backhouse, Tamara Jeon, Yun-Hee Killett, Anne Mioshi, Eneida |
author_sort | Backhouse, Tamara |
collection | PubMed |
description | BACKGROUND AND OBJECTIVES: Caregivers may encounter, or inadvertently cause, refusals of care by a care recipient. Managing refusals of care can be challenging and have potential negative consequences. We aimed to examine caregivers’ (care-home staff and family carers) experiences of managing refusals of personal care in advanced dementia. RESEARCH DESIGN AND METHODS: One-to-one semi-structured interviews with 12 care assistants from six care homes and 20 family carers who were physically assisting a person with advanced dementia with their personal care in the UK. Interviews were audio recorded and transcribed verbatim, with data analysed using qualitative content analysis. FINDINGS: Core to the caregiver experience of refusals of care was knowing the person. This underpinned five key themes identified as caregivers’ strategies used in preventing or managing refusals of care: (1) finding the right moment to care; (2) using specific communication strategies; (3) being tactful: simplifying, leaving, or adapting care; (4) having confidence in care; and (5) seeking support from others when safety is at risk. DISCUSSION AND IMPLICATIONS: Different caregiver relationships with the person with dementia influenced how they managed refusals of care. Refusals of care can place caregivers in tough situations with tensions between providing care when it is seemingly not wanted and leaving care incomplete. Both caregiver groups require support such as coaching, mentoring and/or advice from other health and social care practitioners to manage difficult personal care interactions before crisis points occur. |
format | Online Article Text |
id | pubmed-9583289 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-95832892022-10-21 How do family carers and care-home staff manage refusals when assisting a person with advanced dementia with their personal care? Backhouse, Tamara Jeon, Yun-Hee Killett, Anne Mioshi, Eneida Dementia (London) Articles BACKGROUND AND OBJECTIVES: Caregivers may encounter, or inadvertently cause, refusals of care by a care recipient. Managing refusals of care can be challenging and have potential negative consequences. We aimed to examine caregivers’ (care-home staff and family carers) experiences of managing refusals of personal care in advanced dementia. RESEARCH DESIGN AND METHODS: One-to-one semi-structured interviews with 12 care assistants from six care homes and 20 family carers who were physically assisting a person with advanced dementia with their personal care in the UK. Interviews were audio recorded and transcribed verbatim, with data analysed using qualitative content analysis. FINDINGS: Core to the caregiver experience of refusals of care was knowing the person. This underpinned five key themes identified as caregivers’ strategies used in preventing or managing refusals of care: (1) finding the right moment to care; (2) using specific communication strategies; (3) being tactful: simplifying, leaving, or adapting care; (4) having confidence in care; and (5) seeking support from others when safety is at risk. DISCUSSION AND IMPLICATIONS: Different caregiver relationships with the person with dementia influenced how they managed refusals of care. Refusals of care can place caregivers in tough situations with tensions between providing care when it is seemingly not wanted and leaving care incomplete. Both caregiver groups require support such as coaching, mentoring and/or advice from other health and social care practitioners to manage difficult personal care interactions before crisis points occur. SAGE Publications 2022-09-02 2022-11 /pmc/articles/PMC9583289/ /pubmed/36053711 http://dx.doi.org/10.1177/14713012221123578 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Articles Backhouse, Tamara Jeon, Yun-Hee Killett, Anne Mioshi, Eneida How do family carers and care-home staff manage refusals when assisting a person with advanced dementia with their personal care? |
title | How do family carers and care-home staff manage refusals when
assisting a person with advanced dementia with their personal
care? |
title_full | How do family carers and care-home staff manage refusals when
assisting a person with advanced dementia with their personal
care? |
title_fullStr | How do family carers and care-home staff manage refusals when
assisting a person with advanced dementia with their personal
care? |
title_full_unstemmed | How do family carers and care-home staff manage refusals when
assisting a person with advanced dementia with their personal
care? |
title_short | How do family carers and care-home staff manage refusals when
assisting a person with advanced dementia with their personal
care? |
title_sort | how do family carers and care-home staff manage refusals when
assisting a person with advanced dementia with their personal
care? |
topic | Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9583289/ https://www.ncbi.nlm.nih.gov/pubmed/36053711 http://dx.doi.org/10.1177/14713012221123578 |
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