Reducing global health inequalities for a rare disorder: evaluating the international Prader–Willi Syndrome Organisation’s Echo(®) programme

BACKGROUND: People with rare disorders face significant global health inequalities; the challenge is how to raise awareness and develop a nucleus of experts in a country who are then able to provide guidance to others in that country. The International Prader–Willi Syndrome Organisation (IPWSO) esta...

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Detalles Bibliográficos
Autores principales: Rujeedawa, Tanzil, McNairney, Nora, Cordner, Shelly, O’Brien, James, Loughnan, Georgina, Holland, Anthony
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9587665/
https://www.ncbi.nlm.nih.gov/pubmed/36271403
http://dx.doi.org/10.1186/s13023-022-02504-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9587665/
https://www.ncbi.nlm.nih.gov/pubmed/36271403
http://dx.doi.org/10.1186/s13023-022-02504-5

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