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The Ecology of Engagement: Fostering cooperative efforts in health with patients and communities

CONTEXT: Patients and community members are engaged in nearly every aspect of health systems. However, the engagement literature remains siloed and fragmented, which makes it difficult to connect engagement efforts with broader goals of health, equity and sustainability. Integrated and inclusive mod...

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Autores principales: Boivin, Antoine, Dumez, Vincent, Castonguay, Geneviève, Berkesse, Alexandre
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9615077/
https://www.ncbi.nlm.nih.gov/pubmed/35923116
http://dx.doi.org/10.1111/hex.13571
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author Boivin, Antoine
Dumez, Vincent
Castonguay, Geneviève
Berkesse, Alexandre
author_facet Boivin, Antoine
Dumez, Vincent
Castonguay, Geneviève
Berkesse, Alexandre
author_sort Boivin, Antoine
collection PubMed
description CONTEXT: Patients and community members are engaged in nearly every aspect of health systems. However, the engagement literature remains siloed and fragmented, which makes it difficult to connect engagement efforts with broader goals of health, equity and sustainability. Integrated and inclusive models of engagement are needed to support further transformative efforts. METHODS: This article describes the Ecology of Engagement, an integrated model of engagement. The model posits that: (1) Health ecosystems include all members of society engaged in health; (2) Engagement is the ‘together’ piece of health and healthcare (e.g., caring for each other, preventing, researching, teaching and building policies together); (3) Health ecosystems and engagement are interdependent from each other, both influencing health, equity, resilience and sustainability. CONCLUSION: The Ecology of Engagement offers a common sketch to foster dialogue on engagement across health ecosystems. The model can drive cooperative efforts with patients and communities on health, equity, resilience and sustainability. PATIENTS AND PUBLIC CONTRIBUTION: Three of the authors have lived experiences as patients. One has a socially disclosed identity as a patient partner leader with extensive experience in engagement (individual care, education, research, management and policy). Two authors have significant experience as patients and informal caregivers, which were mobilized in descriptive illustrations. A fourth author has experience as an engaged citizen in health policy debates. All authors have professional lived experience in health (manager, researcher, health professional, consultant and educator). Six patient and caregiver partners with lived experience of engagement (other than the authors) contributed important revisions and intellectual content.
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spelling pubmed-96150772022-10-31 The Ecology of Engagement: Fostering cooperative efforts in health with patients and communities Boivin, Antoine Dumez, Vincent Castonguay, Geneviève Berkesse, Alexandre Health Expect Regular Articles CONTEXT: Patients and community members are engaged in nearly every aspect of health systems. However, the engagement literature remains siloed and fragmented, which makes it difficult to connect engagement efforts with broader goals of health, equity and sustainability. Integrated and inclusive models of engagement are needed to support further transformative efforts. METHODS: This article describes the Ecology of Engagement, an integrated model of engagement. The model posits that: (1) Health ecosystems include all members of society engaged in health; (2) Engagement is the ‘together’ piece of health and healthcare (e.g., caring for each other, preventing, researching, teaching and building policies together); (3) Health ecosystems and engagement are interdependent from each other, both influencing health, equity, resilience and sustainability. CONCLUSION: The Ecology of Engagement offers a common sketch to foster dialogue on engagement across health ecosystems. The model can drive cooperative efforts with patients and communities on health, equity, resilience and sustainability. PATIENTS AND PUBLIC CONTRIBUTION: Three of the authors have lived experiences as patients. One has a socially disclosed identity as a patient partner leader with extensive experience in engagement (individual care, education, research, management and policy). Two authors have significant experience as patients and informal caregivers, which were mobilized in descriptive illustrations. A fourth author has experience as an engaged citizen in health policy debates. All authors have professional lived experience in health (manager, researcher, health professional, consultant and educator). Six patient and caregiver partners with lived experience of engagement (other than the authors) contributed important revisions and intellectual content. John Wiley and Sons Inc. 2022-08-03 2022-10 /pmc/articles/PMC9615077/ /pubmed/35923116 http://dx.doi.org/10.1111/hex.13571 Text en © 2022 The Authors. Health Expectations published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Regular Articles
Boivin, Antoine
Dumez, Vincent
Castonguay, Geneviève
Berkesse, Alexandre
The Ecology of Engagement: Fostering cooperative efforts in health with patients and communities
title The Ecology of Engagement: Fostering cooperative efforts in health with patients and communities
title_full The Ecology of Engagement: Fostering cooperative efforts in health with patients and communities
title_fullStr The Ecology of Engagement: Fostering cooperative efforts in health with patients and communities
title_full_unstemmed The Ecology of Engagement: Fostering cooperative efforts in health with patients and communities
title_short The Ecology of Engagement: Fostering cooperative efforts in health with patients and communities
title_sort ecology of engagement: fostering cooperative efforts in health with patients and communities
topic Regular Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9615077/
https://www.ncbi.nlm.nih.gov/pubmed/35923116
http://dx.doi.org/10.1111/hex.13571
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