Parental coping with uncertainties along the severe combined immunodeficiency journey

BACKGROUND: Severe combined immunodeficiency (SCID) is a group of rare genetic disorders that cause disruption in immune system functioning. Parents of children with SCID experience many uncertainties related to their child’s diagnosis, treatment, recovery, and quality of life. To fully understand p...

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Detalles Bibliográficos
Autores principales: Kutsa, Oksana, Andrews, Sara M., Mallonee, Erin, Gwaltney, Angela, Creamer, Alissa, Han, Paul K. J., Raspa, Melissa, Biesecker, Barbara B.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9615184/
https://www.ncbi.nlm.nih.gov/pubmed/36303152
http://dx.doi.org/10.1186/s13023-022-02554-9

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9615184/
https://www.ncbi.nlm.nih.gov/pubmed/36303152
http://dx.doi.org/10.1186/s13023-022-02554-9

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