Cargando…
Ownership of individual-level health data, data sharing, and data governance
BACKGROUND: The ownership status of individual-level health data affects the manner in which it is used. In this paper we analyze two competing models of the ownership status of the data discussed in the literature recently: private ownership and public ownership. MAIN BODY: In this paper we describ...
Autores principales: | Piasecki, Jan, Cheah, Phaik Yeong |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9617739/ https://www.ncbi.nlm.nih.gov/pubmed/36309719 http://dx.doi.org/10.1186/s12910-022-00848-y |
Ejemplares similares
-
Data Access Committees
por: Cheah, Phaik Yeong, et al.
Publicado: (2020) -
Sharing Individual-Level Health Research Data: Experiences, Challenges and a Research Agenda
por: Cheah, Phaik Yeong, et al.
Publicado: (2017) -
Data management and sharing policy: the first step towards promoting data sharing
por: Waithira, Naomi, et al.
Publicado: (2019) -
Consent and assent in paediatric research in low-income settings
por: Cheah, Phaik Yeong, et al.
Publicado: (2014) -
Solutions to COVID-19 data sharing
por: Fegan, Greg, et al.
Publicado: (2021)