Feasibility of electronic patient-reported outcome monitoring and self-management program in aplastic anemia and paroxysmal nocturnal hemoglobinuria—a pilot study (ePRO-AA-PNH)

INTRODUCTION: Electronic patient-reported outcomes (ePRO) are increasingly recognized in health care, as they have been demonstrated to improve patient outcomes in cancer, but have been less studied in rare hematological diseases. The aim of this study was to develop and test the feasibility of an e...

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Detalles Bibliográficos
Autores principales: Bänziger, Silas, Weisshaar, Kimmo, Arokoski, Reetta, Gerull, Sabine, Halter, Jörg, Rovó, Alicia, Bargetzi, Mario, Goede, Jeroen S., Senft, Yuliya, Valenta, Sabine, Passweg, Jakob R., Drexler, Beatrice
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2022
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9631592/
https://www.ncbi.nlm.nih.gov/pubmed/36326854
http://dx.doi.org/10.1007/s00277-022-05012-5

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