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A window into pain: American Indian cancer survivors’ drawings

In order to explore the cultural constructs of pain, a series of focus groups were held among adult American Indian (AI) cancer survivors and their caregivers in the Southwest USA. Thirteen focus groups held at four sites (reservation, urban setting, hospital and clinic) elicited information on the...

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Autores principales: Hodge, Felicia S., Line Itty, Tracy, Arbing, Rachel H.A., Samuel-Nakamura, Christine
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9634249/
https://www.ncbi.nlm.nih.gov/pubmed/36341151
http://dx.doi.org/10.3389/fpain.2022.1031347
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author Hodge, Felicia S.
Line Itty, Tracy
Arbing, Rachel H.A.
Samuel-Nakamura, Christine
author_facet Hodge, Felicia S.
Line Itty, Tracy
Arbing, Rachel H.A.
Samuel-Nakamura, Christine
author_sort Hodge, Felicia S.
collection PubMed
description In order to explore the cultural constructs of pain, a series of focus groups were held among adult American Indian (AI) cancer survivors and their caregivers in the Southwest USA. Thirteen focus groups held at four sites (reservation, urban setting, hospital and clinic) elicited information on the barriers to cancer pain management. In response to facilitator questions about cancer pain and existing measurement scales, participants drew pictures to better explain their pain type (i.e., “pounding”), intensity (i.e., “spider web-like”), and other more abstract aspects of their pain episodes. Noting this novel outlet, subsequent groups were prompted for illustrations of pain. A total of 17 drawings were collected from focus group participants. We discuss seven of the drawings that best opened a window into the lived experience of pain, reflected through the eyes of cancer survivors. This study provides evidence that self-expression through color, imagery and written personal accounts provides more accurate depictions of pain for Southwest AI cancer survivors than pain scales alone. It is hypothesized that cultural modes of communication (i.e., storytelling) and intergenerational influences of artwork led to the depiction of pain in drawings. Suggestions for further exploration of the use of the pain drawings for pain assessment in healthcare settings are included.
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spelling pubmed-96342492022-11-05 A window into pain: American Indian cancer survivors’ drawings Hodge, Felicia S. Line Itty, Tracy Arbing, Rachel H.A. Samuel-Nakamura, Christine Front Pain Res (Lausanne) Pain Research In order to explore the cultural constructs of pain, a series of focus groups were held among adult American Indian (AI) cancer survivors and their caregivers in the Southwest USA. Thirteen focus groups held at four sites (reservation, urban setting, hospital and clinic) elicited information on the barriers to cancer pain management. In response to facilitator questions about cancer pain and existing measurement scales, participants drew pictures to better explain their pain type (i.e., “pounding”), intensity (i.e., “spider web-like”), and other more abstract aspects of their pain episodes. Noting this novel outlet, subsequent groups were prompted for illustrations of pain. A total of 17 drawings were collected from focus group participants. We discuss seven of the drawings that best opened a window into the lived experience of pain, reflected through the eyes of cancer survivors. This study provides evidence that self-expression through color, imagery and written personal accounts provides more accurate depictions of pain for Southwest AI cancer survivors than pain scales alone. It is hypothesized that cultural modes of communication (i.e., storytelling) and intergenerational influences of artwork led to the depiction of pain in drawings. Suggestions for further exploration of the use of the pain drawings for pain assessment in healthcare settings are included. Frontiers Media S.A. 2022-10-21 /pmc/articles/PMC9634249/ /pubmed/36341151 http://dx.doi.org/10.3389/fpain.2022.1031347 Text en © 2022 Hodge, Line Itty, Arbing and Samuel-Nakamura. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY) (https://creativecommons.org/licenses/by/4.0/) . The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Pain Research
Hodge, Felicia S.
Line Itty, Tracy
Arbing, Rachel H.A.
Samuel-Nakamura, Christine
A window into pain: American Indian cancer survivors’ drawings
title A window into pain: American Indian cancer survivors’ drawings
title_full A window into pain: American Indian cancer survivors’ drawings
title_fullStr A window into pain: American Indian cancer survivors’ drawings
title_full_unstemmed A window into pain: American Indian cancer survivors’ drawings
title_short A window into pain: American Indian cancer survivors’ drawings
title_sort window into pain: american indian cancer survivors’ drawings
topic Pain Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9634249/
https://www.ncbi.nlm.nih.gov/pubmed/36341151
http://dx.doi.org/10.3389/fpain.2022.1031347
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