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The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health

The recent Supreme Court decision (ie, Dobbs v. Jackson Women’s Health Organization), revoking the constitutional right to abortion in the United States, has the potential to dramatically disrupt progress in women’s health research. The typical safeguards to ensure confidentiality and privacy of res...

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Detalles Bibliográficos
Autores principales: Goodday, Sarah, Karlin, Daniel, Suver, Christine, Friend, Stephen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9634512/
https://www.ncbi.nlm.nih.gov/pubmed/36264611
http://dx.doi.org/10.2196/41417
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author Goodday, Sarah
Karlin, Daniel
Suver, Christine
Friend, Stephen
author_facet Goodday, Sarah
Karlin, Daniel
Suver, Christine
Friend, Stephen
author_sort Goodday, Sarah
collection PubMed
description The recent Supreme Court decision (ie, Dobbs v. Jackson Women’s Health Organization), revoking the constitutional right to abortion in the United States, has the potential to dramatically disrupt progress in women’s health research. The typical safeguards to ensure confidentiality and privacy of research participants in studies that collect certain types of personal health information may not hold against criminal investigations surrounding suspected pregnancy terminations. There are additional risks to participants in digital health research studies involving the use of wearable devices capable of tracking physiological measures, such as body temperature and heart rate, as these have shown promise for tracking conception and could be used to identify pregnancy termination signatures. There are strategies researchers can use to protect the safety of participants in health research who could get pregnant, while also maintaining integrity of research methods. The objective of this viewpoint is to discuss potential strategies to protect research participants’ privacy that include the minimization of nonessential sensitive personal health information and anonymization protocols in the event of miscarriage or termination of pregnancy. We invite others to join this discussion so as to not let the current political landscape impede progress in women’s health and reproductive research, while also protecting research participants.
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spelling pubmed-96345122022-11-05 The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health Goodday, Sarah Karlin, Daniel Suver, Christine Friend, Stephen J Med Internet Res Viewpoint The recent Supreme Court decision (ie, Dobbs v. Jackson Women’s Health Organization), revoking the constitutional right to abortion in the United States, has the potential to dramatically disrupt progress in women’s health research. The typical safeguards to ensure confidentiality and privacy of research participants in studies that collect certain types of personal health information may not hold against criminal investigations surrounding suspected pregnancy terminations. There are additional risks to participants in digital health research studies involving the use of wearable devices capable of tracking physiological measures, such as body temperature and heart rate, as these have shown promise for tracking conception and could be used to identify pregnancy termination signatures. There are strategies researchers can use to protect the safety of participants in health research who could get pregnant, while also maintaining integrity of research methods. The objective of this viewpoint is to discuss potential strategies to protect research participants’ privacy that include the minimization of nonessential sensitive personal health information and anonymization protocols in the event of miscarriage or termination of pregnancy. We invite others to join this discussion so as to not let the current political landscape impede progress in women’s health and reproductive research, while also protecting research participants. JMIR Publications 2022-10-20 /pmc/articles/PMC9634512/ /pubmed/36264611 http://dx.doi.org/10.2196/41417 Text en ©Sarah Goodday, Daniel Karlin, Christine Suver, Stephen Friend. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 20.10.2022. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on https://www.jmir.org/, as well as this copyright and license information must be included.
spellingShingle Viewpoint
Goodday, Sarah
Karlin, Daniel
Suver, Christine
Friend, Stephen
The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health
title The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health
title_full The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health
title_fullStr The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health
title_full_unstemmed The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health
title_short The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health
title_sort post-roe political landscape demands a morality of caution for women’s health
topic Viewpoint
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9634512/
https://www.ncbi.nlm.nih.gov/pubmed/36264611
http://dx.doi.org/10.2196/41417
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