Cargando…
The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health
The recent Supreme Court decision (ie, Dobbs v. Jackson Women’s Health Organization), revoking the constitutional right to abortion in the United States, has the potential to dramatically disrupt progress in women’s health research. The typical safeguards to ensure confidentiality and privacy of res...
Autores principales: | , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2022
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9634512/ https://www.ncbi.nlm.nih.gov/pubmed/36264611 http://dx.doi.org/10.2196/41417 |
_version_ | 1784824508893364224 |
---|---|
author | Goodday, Sarah Karlin, Daniel Suver, Christine Friend, Stephen |
author_facet | Goodday, Sarah Karlin, Daniel Suver, Christine Friend, Stephen |
author_sort | Goodday, Sarah |
collection | PubMed |
description | The recent Supreme Court decision (ie, Dobbs v. Jackson Women’s Health Organization), revoking the constitutional right to abortion in the United States, has the potential to dramatically disrupt progress in women’s health research. The typical safeguards to ensure confidentiality and privacy of research participants in studies that collect certain types of personal health information may not hold against criminal investigations surrounding suspected pregnancy terminations. There are additional risks to participants in digital health research studies involving the use of wearable devices capable of tracking physiological measures, such as body temperature and heart rate, as these have shown promise for tracking conception and could be used to identify pregnancy termination signatures. There are strategies researchers can use to protect the safety of participants in health research who could get pregnant, while also maintaining integrity of research methods. The objective of this viewpoint is to discuss potential strategies to protect research participants’ privacy that include the minimization of nonessential sensitive personal health information and anonymization protocols in the event of miscarriage or termination of pregnancy. We invite others to join this discussion so as to not let the current political landscape impede progress in women’s health and reproductive research, while also protecting research participants. |
format | Online Article Text |
id | pubmed-9634512 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | JMIR Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-96345122022-11-05 The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health Goodday, Sarah Karlin, Daniel Suver, Christine Friend, Stephen J Med Internet Res Viewpoint The recent Supreme Court decision (ie, Dobbs v. Jackson Women’s Health Organization), revoking the constitutional right to abortion in the United States, has the potential to dramatically disrupt progress in women’s health research. The typical safeguards to ensure confidentiality and privacy of research participants in studies that collect certain types of personal health information may not hold against criminal investigations surrounding suspected pregnancy terminations. There are additional risks to participants in digital health research studies involving the use of wearable devices capable of tracking physiological measures, such as body temperature and heart rate, as these have shown promise for tracking conception and could be used to identify pregnancy termination signatures. There are strategies researchers can use to protect the safety of participants in health research who could get pregnant, while also maintaining integrity of research methods. The objective of this viewpoint is to discuss potential strategies to protect research participants’ privacy that include the minimization of nonessential sensitive personal health information and anonymization protocols in the event of miscarriage or termination of pregnancy. We invite others to join this discussion so as to not let the current political landscape impede progress in women’s health and reproductive research, while also protecting research participants. JMIR Publications 2022-10-20 /pmc/articles/PMC9634512/ /pubmed/36264611 http://dx.doi.org/10.2196/41417 Text en ©Sarah Goodday, Daniel Karlin, Christine Suver, Stephen Friend. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 20.10.2022. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on https://www.jmir.org/, as well as this copyright and license information must be included. |
spellingShingle | Viewpoint Goodday, Sarah Karlin, Daniel Suver, Christine Friend, Stephen The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health |
title | The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health |
title_full | The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health |
title_fullStr | The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health |
title_full_unstemmed | The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health |
title_short | The Post-Roe Political Landscape Demands a Morality of Caution for Women’s Health |
title_sort | post-roe political landscape demands a morality of caution for women’s health |
topic | Viewpoint |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9634512/ https://www.ncbi.nlm.nih.gov/pubmed/36264611 http://dx.doi.org/10.2196/41417 |
work_keys_str_mv | AT gooddaysarah thepostroepoliticallandscapedemandsamoralityofcautionforwomenshealth AT karlindaniel thepostroepoliticallandscapedemandsamoralityofcautionforwomenshealth AT suverchristine thepostroepoliticallandscapedemandsamoralityofcautionforwomenshealth AT friendstephen thepostroepoliticallandscapedemandsamoralityofcautionforwomenshealth AT gooddaysarah postroepoliticallandscapedemandsamoralityofcautionforwomenshealth AT karlindaniel postroepoliticallandscapedemandsamoralityofcautionforwomenshealth AT suverchristine postroepoliticallandscapedemandsamoralityofcautionforwomenshealth AT friendstephen postroepoliticallandscapedemandsamoralityofcautionforwomenshealth |