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Versorgernetzwerke für Menschen mit Seltenen Erkrankungen: Daten und Expertise bündeln
In the European Union (EU), rare diseases (RDs) are diseases that affect no more than 5 in 10,000 people. Due to their rarity, clinical expertise and quality-assured care structures are scarce, and research is more difficult compared to other diseases. However, these problems can be overcome by mean...
| Autores principales: | , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Springer Berlin Heidelberg
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9636292/ https://www.ncbi.nlm.nih.gov/pubmed/36167994 http://dx.doi.org/10.1007/s00103-022-03592-1 |