Cargando…
Last year of life of adults with congenital heart diseases: causes of death and patterns of care( )
AIMS: Although life expectancy in adults with congenital heart diseases (CHD) has increased dramatically over the past five decades, still a substantial number of patients dies prematurely. To gain understanding in the trajectories of dying in adults with CHD, the last year of life warrants further...
Autores principales: | , , , , , , , , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2022
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9637423/ https://www.ncbi.nlm.nih.gov/pubmed/36030410 http://dx.doi.org/10.1093/eurheartj/ehac484 |
_version_ | 1784825183030214656 |
---|---|
author | Van Bulck, Liesbet Goossens, Eva Morin, Lucas Luyckx, Koen Ombelet, Fouke Willems, Ruben Budts, Werner De Groote, Katya De Backer, Julie Annemans, Lieven Moniotte, Stéphane de Hosson, Michèle Marelli, Arianne Moons, Philip |
author_facet | Van Bulck, Liesbet Goossens, Eva Morin, Lucas Luyckx, Koen Ombelet, Fouke Willems, Ruben Budts, Werner De Groote, Katya De Backer, Julie Annemans, Lieven Moniotte, Stéphane de Hosson, Michèle Marelli, Arianne Moons, Philip |
author_sort | Van Bulck, Liesbet |
collection | PubMed |
description | AIMS: Although life expectancy in adults with congenital heart diseases (CHD) has increased dramatically over the past five decades, still a substantial number of patients dies prematurely. To gain understanding in the trajectories of dying in adults with CHD, the last year of life warrants further investigation. Therefore, our study aimed to (i) define the causes of death and (ii) describe the patterns of healthcare utilization in the last year of life of adults with CHD. METHODS AND RESULTS: This retrospective mortality follow-back study used healthcare claims and clinical data from BELCODAC, which includes patients with CHD from Belgium. Healthcare utilization comprises cardiovascular procedures, CHD physician contacts, general practitioner visits, hospitalizations, emergency department (ED) visits, intensive care unit (ICU) admissions, and specialist palliative care, and was identified using nomenclature codes. Of the 390 included patients, almost half of the study population (45%) died from a cardiovascular cause. In the last year of life, 87% of patients were hospitalized, 78% of patients had an ED visit, and 19% of patients had an ICU admission. Specialist palliative care was provided to 17% of patients, and to only 4% when looking at the patients with cardiovascular causes of death. CONCLUSIONS: There is a high use of intensive and potentially avoidable care at the end of life. This may imply that end-of-life care provision can be improved. Future studies should further examine end-of-life care provision in the light of patient’s needs and preferences, and how the healthcare system can adequately respond. |
format | Online Article Text |
id | pubmed-9637423 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-96374232022-11-07 Last year of life of adults with congenital heart diseases: causes of death and patterns of care( ) Van Bulck, Liesbet Goossens, Eva Morin, Lucas Luyckx, Koen Ombelet, Fouke Willems, Ruben Budts, Werner De Groote, Katya De Backer, Julie Annemans, Lieven Moniotte, Stéphane de Hosson, Michèle Marelli, Arianne Moons, Philip Eur Heart J Fast Track Congress AIMS: Although life expectancy in adults with congenital heart diseases (CHD) has increased dramatically over the past five decades, still a substantial number of patients dies prematurely. To gain understanding in the trajectories of dying in adults with CHD, the last year of life warrants further investigation. Therefore, our study aimed to (i) define the causes of death and (ii) describe the patterns of healthcare utilization in the last year of life of adults with CHD. METHODS AND RESULTS: This retrospective mortality follow-back study used healthcare claims and clinical data from BELCODAC, which includes patients with CHD from Belgium. Healthcare utilization comprises cardiovascular procedures, CHD physician contacts, general practitioner visits, hospitalizations, emergency department (ED) visits, intensive care unit (ICU) admissions, and specialist palliative care, and was identified using nomenclature codes. Of the 390 included patients, almost half of the study population (45%) died from a cardiovascular cause. In the last year of life, 87% of patients were hospitalized, 78% of patients had an ED visit, and 19% of patients had an ICU admission. Specialist palliative care was provided to 17% of patients, and to only 4% when looking at the patients with cardiovascular causes of death. CONCLUSIONS: There is a high use of intensive and potentially avoidable care at the end of life. This may imply that end-of-life care provision can be improved. Future studies should further examine end-of-life care provision in the light of patient’s needs and preferences, and how the healthcare system can adequately respond. Oxford University Press 2022-08-28 /pmc/articles/PMC9637423/ /pubmed/36030410 http://dx.doi.org/10.1093/eurheartj/ehac484 Text en © The Author(s) 2022. Published by Oxford University Press on behalf of European Society of Cardiology. https://creativecommons.org/licenses/by-nc/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com |
spellingShingle | Fast Track Congress Van Bulck, Liesbet Goossens, Eva Morin, Lucas Luyckx, Koen Ombelet, Fouke Willems, Ruben Budts, Werner De Groote, Katya De Backer, Julie Annemans, Lieven Moniotte, Stéphane de Hosson, Michèle Marelli, Arianne Moons, Philip Last year of life of adults with congenital heart diseases: causes of death and patterns of care( ) |
title | Last year of life of adults with congenital heart diseases: causes of death and patterns of care( ) |
title_full | Last year of life of adults with congenital heart diseases: causes of death and patterns of care( ) |
title_fullStr | Last year of life of adults with congenital heart diseases: causes of death and patterns of care( ) |
title_full_unstemmed | Last year of life of adults with congenital heart diseases: causes of death and patterns of care( ) |
title_short | Last year of life of adults with congenital heart diseases: causes of death and patterns of care( ) |
title_sort | last year of life of adults with congenital heart diseases: causes of death and patterns of care( ) |
topic | Fast Track Congress |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9637423/ https://www.ncbi.nlm.nih.gov/pubmed/36030410 http://dx.doi.org/10.1093/eurheartj/ehac484 |
work_keys_str_mv | AT vanbulckliesbet lastyearoflifeofadultswithcongenitalheartdiseasescausesofdeathandpatternsofcare AT goossenseva lastyearoflifeofadultswithcongenitalheartdiseasescausesofdeathandpatternsofcare AT morinlucas lastyearoflifeofadultswithcongenitalheartdiseasescausesofdeathandpatternsofcare AT luyckxkoen lastyearoflifeofadultswithcongenitalheartdiseasescausesofdeathandpatternsofcare AT ombeletfouke lastyearoflifeofadultswithcongenitalheartdiseasescausesofdeathandpatternsofcare AT willemsruben lastyearoflifeofadultswithcongenitalheartdiseasescausesofdeathandpatternsofcare AT budtswerner lastyearoflifeofadultswithcongenitalheartdiseasescausesofdeathandpatternsofcare AT degrootekatya lastyearoflifeofadultswithcongenitalheartdiseasescausesofdeathandpatternsofcare AT debackerjulie lastyearoflifeofadultswithcongenitalheartdiseasescausesofdeathandpatternsofcare AT annemanslieven lastyearoflifeofadultswithcongenitalheartdiseasescausesofdeathandpatternsofcare AT moniottestephane lastyearoflifeofadultswithcongenitalheartdiseasescausesofdeathandpatternsofcare AT dehossonmichele lastyearoflifeofadultswithcongenitalheartdiseasescausesofdeathandpatternsofcare AT marelliarianne lastyearoflifeofadultswithcongenitalheartdiseasescausesofdeathandpatternsofcare AT moonsphilip lastyearoflifeofadultswithcongenitalheartdiseasescausesofdeathandpatternsofcare AT lastyearoflifeofadultswithcongenitalheartdiseasescausesofdeathandpatternsofcare |