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Is there a “pandemic effect” on individuals’ willingness to take genetic tests?
In this cross-sectional, semi-longitudinal and quasi-experimental study, our goal was to determine the effect of data storage conditions on willingness to take a genetic test. We compared individuals’ preferences regarding how they want to store health data collected from genetic tests through two s...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9646467/ https://www.ncbi.nlm.nih.gov/pubmed/36352012 http://dx.doi.org/10.1038/s41431-022-01223-6 |
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author | Deruelle, Thibaud Kalouguina, Veronika Trein, Philipp Wagner, Joël |
author_facet | Deruelle, Thibaud Kalouguina, Veronika Trein, Philipp Wagner, Joël |
author_sort | Deruelle, Thibaud |
collection | PubMed |
description | In this cross-sectional, semi-longitudinal and quasi-experimental study, our goal was to determine the effect of data storage conditions on willingness to take a genetic test. We compared individuals’ preferences regarding how they want to store health data collected from genetic tests through two survey experiments fielded in Switzerland in March 2020 and January 2022. We tested for differences whether genetic data are presented as private goods or public goods. Results confirm our initial research expectation: more control over storage increases willingness, so does framing genetic data as private good. However, they also show that the willingness to take a genetic test has noticeably increased between 2020 and 2022. Our results point toward a “pandemic effect” which would have increased willingness take a genetic test, nevertheless, more data are needed to understand this putative effect. |
format | Online Article Text |
id | pubmed-9646467 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Springer International Publishing |
record_format | MEDLINE/PubMed |
spelling | pubmed-96464672022-11-14 Is there a “pandemic effect” on individuals’ willingness to take genetic tests? Deruelle, Thibaud Kalouguina, Veronika Trein, Philipp Wagner, Joël Eur J Hum Genet Brief Communication In this cross-sectional, semi-longitudinal and quasi-experimental study, our goal was to determine the effect of data storage conditions on willingness to take a genetic test. We compared individuals’ preferences regarding how they want to store health data collected from genetic tests through two survey experiments fielded in Switzerland in March 2020 and January 2022. We tested for differences whether genetic data are presented as private goods or public goods. Results confirm our initial research expectation: more control over storage increases willingness, so does framing genetic data as private good. However, they also show that the willingness to take a genetic test has noticeably increased between 2020 and 2022. Our results point toward a “pandemic effect” which would have increased willingness take a genetic test, nevertheless, more data are needed to understand this putative effect. Springer International Publishing 2022-11-10 2023-03 /pmc/articles/PMC9646467/ /pubmed/36352012 http://dx.doi.org/10.1038/s41431-022-01223-6 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . |
spellingShingle | Brief Communication Deruelle, Thibaud Kalouguina, Veronika Trein, Philipp Wagner, Joël Is there a “pandemic effect” on individuals’ willingness to take genetic tests? |
title | Is there a “pandemic effect” on individuals’ willingness to take genetic tests? |
title_full | Is there a “pandemic effect” on individuals’ willingness to take genetic tests? |
title_fullStr | Is there a “pandemic effect” on individuals’ willingness to take genetic tests? |
title_full_unstemmed | Is there a “pandemic effect” on individuals’ willingness to take genetic tests? |
title_short | Is there a “pandemic effect” on individuals’ willingness to take genetic tests? |
title_sort | is there a “pandemic effect” on individuals’ willingness to take genetic tests? |
topic | Brief Communication |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9646467/ https://www.ncbi.nlm.nih.gov/pubmed/36352012 http://dx.doi.org/10.1038/s41431-022-01223-6 |
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