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Is there a “pandemic effect” on individuals’ willingness to take genetic tests?

In this cross-sectional, semi-longitudinal and quasi-experimental study, our goal was to determine the effect of data storage conditions on willingness to take a genetic test. We compared individuals’ preferences regarding how they want to store health data collected from genetic tests through two s...

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Detalles Bibliográficos
Autores principales: Deruelle, Thibaud, Kalouguina, Veronika, Trein, Philipp, Wagner, Joël
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9646467/
https://www.ncbi.nlm.nih.gov/pubmed/36352012
http://dx.doi.org/10.1038/s41431-022-01223-6
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author Deruelle, Thibaud
Kalouguina, Veronika
Trein, Philipp
Wagner, Joël
author_facet Deruelle, Thibaud
Kalouguina, Veronika
Trein, Philipp
Wagner, Joël
author_sort Deruelle, Thibaud
collection PubMed
description In this cross-sectional, semi-longitudinal and quasi-experimental study, our goal was to determine the effect of data storage conditions on willingness to take a genetic test. We compared individuals’ preferences regarding how they want to store health data collected from genetic tests through two survey experiments fielded in Switzerland in March 2020 and January 2022. We tested for differences whether genetic data are presented as private goods or public goods. Results confirm our initial research expectation: more control over storage increases willingness, so does framing genetic data as private good. However, they also show that the willingness to take a genetic test has noticeably increased between 2020 and 2022. Our results point toward a “pandemic effect” which would have increased willingness take a genetic test, nevertheless, more data are needed to understand this putative effect.
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spelling pubmed-96464672022-11-14 Is there a “pandemic effect” on individuals’ willingness to take genetic tests? Deruelle, Thibaud Kalouguina, Veronika Trein, Philipp Wagner, Joël Eur J Hum Genet Brief Communication In this cross-sectional, semi-longitudinal and quasi-experimental study, our goal was to determine the effect of data storage conditions on willingness to take a genetic test. We compared individuals’ preferences regarding how they want to store health data collected from genetic tests through two survey experiments fielded in Switzerland in March 2020 and January 2022. We tested for differences whether genetic data are presented as private goods or public goods. Results confirm our initial research expectation: more control over storage increases willingness, so does framing genetic data as private good. However, they also show that the willingness to take a genetic test has noticeably increased between 2020 and 2022. Our results point toward a “pandemic effect” which would have increased willingness take a genetic test, nevertheless, more data are needed to understand this putative effect. Springer International Publishing 2022-11-10 2023-03 /pmc/articles/PMC9646467/ /pubmed/36352012 http://dx.doi.org/10.1038/s41431-022-01223-6 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Brief Communication
Deruelle, Thibaud
Kalouguina, Veronika
Trein, Philipp
Wagner, Joël
Is there a “pandemic effect” on individuals’ willingness to take genetic tests?
title Is there a “pandemic effect” on individuals’ willingness to take genetic tests?
title_full Is there a “pandemic effect” on individuals’ willingness to take genetic tests?
title_fullStr Is there a “pandemic effect” on individuals’ willingness to take genetic tests?
title_full_unstemmed Is there a “pandemic effect” on individuals’ willingness to take genetic tests?
title_short Is there a “pandemic effect” on individuals’ willingness to take genetic tests?
title_sort is there a “pandemic effect” on individuals’ willingness to take genetic tests?
topic Brief Communication
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9646467/
https://www.ncbi.nlm.nih.gov/pubmed/36352012
http://dx.doi.org/10.1038/s41431-022-01223-6
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